TMJ Patients...

Discussion in 'Support' started by Geoffman, Dec 26, 2014.

tinnitus forum
    1. Geoffman

      Geoffman Member

      Tinnitus Since:
      Forever?
      Are there any here?
      If there are - I was wondering what your tinnitus sounds like. I have a problem with my jaw on the side where my tinnitus is at it's worst.
      Also was just wondering if anyone has had any success treating TMJ and then having a decrease in their tinnitus. I will search the forum for answers as well.

      Thanks
      - Geoff
       
    2. Carlos1

      Carlos1 Member Benefactor

      Location:
      Boston
      Tinnitus Since:
      08/2013
      Cause of Tinnitus:
      Root Canal
      I had tmj arthroscopic surgery to aliviate some jaw issues but the T remained post surgery
       
    3. MichaelM
      Chatty

      MichaelM Member

      Location:
      Finland
      Tinnitus Since:
      mild since ´90 ´s. severe ->2013 on
      Cause of Tinnitus:
      Meniere´s Disease/acoustic trauma?
      Hello there,
      i am using a night bite guard. I have had it for 2 weeks now. Long story short: i am trying to find out which of my many symptoms are from Meniere´s and which from bad occlusion, huge stress or from some weird combination of all these.

      It´s good to see a dentist if suspecting something dental / TMJ stuff. It´s easy, cheap and can help a lot.

      My tinnitus sounds, for most of the time, like pure tone 16kHz dog whistle with nice low hummmmm in the background.
       
    4. Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      Hi there! Not sure how to describe my T, it's like an electrical sound mixed with eeee. Fortunately with my splint, the ringing has gone way down and it's only been 2 months since I've worn it. My jaw is still swollen so it will take a while for it to be healed. Good luck!! :)
       
      • Like Like x 1
    5. russiancarl

      russiancarl Member

      I have TMJD but I have not been treating it properly.

      I was diagnosed over the summer and given a mouth guard. However, by the time it was made and ready I found my tinnitus was naturally going down so I didn't use it at first. I eventually did start wearing it for 12hrs a day but it did weird things to my teeth... I was afraid that they were shifting much like with braces.

      I was supposed to go back for the 3 week appointment but never did. I am planning on picking it back up after I get my cavities taken care of, however. Just life got in the way ... definitely don't want to waste the $1250 it cost for the splint.

      I'll let you know how it goes but personally I don't think my ringing is related. Mine is primarily a high pitched 8kish sound in my left ear though it sometimes goes central or to the right. I will from time to time get a mid pitch sound also. My right ear has a lower tone but I rarely hear it as sounds cover up that one and my mind seems to focus on the higher pitch going on in my left ear more.
       
    6. ashlee
      Supportive

      ashlee Member

      Location:
      Wisconsin
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Unknown
      I have TMD issues, and my T sounds like white noise/static, with a ring in my left ear where my jaw is the worst. My jaw often cracks and I can hear clickingb in my ear when chewing when it's really bad. The T is always present softly, but is exacerbated after eating. Let me know what yours sounds like!
       
      • Agree Agree x 1
    7. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      I have TMJ problems; most annoying T stuff is electrical / CRT noises, also worse on the side with the worse jaw joint problems.

      When my jaw gets really bad for a period of time, I do think it contributes to more prominent ringing.
       
      • Agree Agree x 1
    8. Jay M
      Thinking

      Jay M Member

      Location:
      South Carolina, USA
      Tinnitus Since:
      4/4/14
      Could TMJ possibly be the cause of sound sensitivity, H and or reactive T? I might post this question too depending on the response I get here.
       
    9. My TMJ is pretty messed up and my T is a static hissing buzzing and always louder when i know that i have grinded teeth during sleep.
       
    10. ashlee
      Supportive

      ashlee Member

      Location:
      Wisconsin
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Unknown
      Mine is static that gets louder after eating, with a slight ring in the left. I plan to seek out the help of a TMJ expert, and hope it goes away for good. Anyone know of success stories after treating TMJ that it went away completely?
       
    11. Kaelon
      Wishful

      Kaelon Member Benefactor Team Tech Team Awareness Team Research

      Location:
      Boston, Mass.
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Muscle Spasms
      I'm glad I found this thread, in addition to the more detailed Alternative Treatments Thread for TMJ. For some time now, I have suspected that TMJ has been the cause of my Tinnitus, but I was living in a bit of denial (my first ENT actually was adamant that TMJ was the cause, but subsequent doctors dissuaded me of that notion and took me down a rabbit's hole of infection or allergic responses -- turns out, the anti-inflammatory regimen has been temporarily alleviating some of my TMJ symptoms).

      My Tinnitus is bilateral, high-pitched, and oscillating. It grows louder and softer (very subtly so) as if it's throbbing, but it's not a "pulsatile" Tinnitus in the strict sense (no clicking, whirring, thumping, whooshing, etc.). I've learned that this oscillation is a primary sign of inflammation - think of when you sprain OR strain a muscle through exertion, the throbbing that you experience, it is in tune to circulatory processes. It also changes cyclically:
      • Quietest at the start of the day, when I wake up.
      • The ear that I sleep on is softer than the ear that I don't.
      • Gets worse as the day progresses, especially as I chew food.
      Other signs:
      • I can increase/decrease volume by moving my lower jaw. I can nearly silence it if I move my lower jaw in the direction of the ear I'd like to silence. Relaxing my jaw in its normal state produces the normal amplification of the sound.

      • Hot water (steam) and anti-inflammatory regimens (high doses of ibuprofen, a regular taper of prednisone) alleviates Tinnitus and makes it very quiet, but the relief from prednisone in particular only lasts a couple of days.

      • Clicking jaw movement, especially when clenching my teeth, in the opposite corresponding jaw joint, also produces pain and swelling in that ear. Crazy, right?

      • Neck strain, especially when awaking, and headaches (again when waking up) that appear to be muscular or tension-based. Possibly neck-derived?
      I've been seeing a chiropractor and getting considerable ongoing relief. She taught me how to properly use pillows, and this seems to be improving the volume of my Tinnitus (specifically, as a side-sleeper, wedging the pillow between my neck and shoulder, to provide proper support). This lowers the volume at the start of the day, but it doesn't entirely resolve it. The closest to "resolved" I have gotten has been through prednisone, and even then, primarily in one of the two ears.

      I saw a maxillofacial surgeon at the start of this adventure back in November 2014, and he said that I had considerable swelling, but there was nothing skeletally wrong with my jaw aside from some minor wear at the joints. His physical examination, however, was particularly painful.

      I'm going to another maxillofacial surgeon later next week (this time, at Mass General Hospital, and one of the best in the country). I'm hoping that at the very least he can refer me to a genuine TMJ expert, especially one who is familiar with Tinnitus caused by TMJ. The problem that I've encountered and read about is that many profess to be experts in TMJ, but they actually only have a certificate from a short Continuing Medical Education course. A real expert has hundreds of clinical hours understanding, treating, and curing this condition.

      That said, the cure is very long-term because TMJ disorders are chronic conditions. They will wax and wane with time. Surgeries, also, aren't a sure thing at correcting the problem -- and it's the underlying psychological behavior, the clenching/grinding of teeth throughout the day and night, that will require months of retraining therapy to allow the jaw a chance to "heal itself." But I have been told that all jaws are capable of healing themselves and returning to the proper position.

      I wonder if anyone has any experience with this etiology, and any thing that you've done that has led to help. I feel that I came across major discoveries with inflammation and treating the inflammatory aggravating conditions, but the underlying cause (TMJ) is something that is still largely mysterious to me.
       
      • Like Like x 2
    12. Thongjy
      Balanced

      Thongjy Member

      Location:
      Singapore
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Unsure
      Your is TMJ related?

      Are there any test that we can do to determine if our T is due to TMJ?
       
    13. Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      @Thongjy The dentist and chiro both confirmed my jaw is misaligned and a nerve is being pinched causing my ringing (inflammation). They didn't do a test, they just looked inside my mouth, felt it, and then did x Rays. When the inflammation from my jaw goes away, so does the ringing. Since going to the chiro, my ringing is slowly going away. I would have it checked out to see what they say!
       
      • Like Like x 1
    14. Rube
      Fine

      Rube Member Benefactor

      Location:
      U.S.A
      Tinnitus Since:
      7/2014
      Hi @Kara77
      Where exactly do you have swelling and Are you on any meds for the inflammation?
      What does that chiro do that is helping? Thanks!
       
    15. Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      @Rube on the right side of my jaw where it clicks. My right side of my face is def bigger lol I take ibuprofen which helps a little, prednisone takes it all away. My joints are so inflamed right now, i think once it's realigned the symptoms will stay gone! She is using upper cervical treatment on me and I wear a mouth splint every night.
       
    16. walkthroughwalls

      walkthroughwalls Member

      Location:
      The Netherlands
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      possibly noise
      I have the exact same thing as you, except that my joints are not swollen. However, my dentist and ENT's didn't try to diagnose anything and can't help me. My orthodontist was the first one to tell me that my jaw is misaligned, but the first attempt at resolving it failed. I'm now looking for other specialists to go to...

      If I may ask... Who did the X-rays? (what profession?) Did these confirm that the T is caused by TMJ?
      Who prescribed the meds? And who gave you the splint?

      How is the chiro treatment coming along? I was never one for alternative medicine, but...

      Thanks.
       
    17. Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      @walkthroughwalls The dentist and chiro both did x rays... My jaw to my neck is misaligned because I didnt seek treatment for so long... But it's been 4 days of super low hissing like barely even ringing. It only took 3-4 weeks of the chiro to make me feel so much better. I've never had relief like this only taking prednisone, prescribed by my ENT, would do this. I honestly feel like it's going away after 8 months of hell! Oh and the dentist gave me the splint, my jaw doesn't click anymore too.
       
      • Like Like x 2
      • Informative Informative x 1
    18. walkthroughwalls

      walkthroughwalls Member

      Location:
      The Netherlands
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      possibly noise
      Thanks so much!

      My dentist never informed me about my jaw and the problems it could cause, and actually sent me to the orthodontist for something else. Unfortunately, my orthodontist doesn't think the T is jaw-related. So neither of them want to take X-rays :/
       
    19. Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      @walkthroughwalls when I had my braces again in college I mentioned the tmj to my orthodontist too, she didn't care either! I had to see a dentist who specializes in tmj, I get the headaches, dizziness, and neck pain too but the chiro is helping. Don't stop till if you find answers, I went through 7 doctors and they all dismissed me and now my ringing is almost gone.
       
      • Like Like x 1
      • Helpful Helpful x 1
    20. I have been seeing a TMD expert for 6 months. He has done nothing but work with TMD patients since the 1980s. He is very knowledgable, and says that I definitely have an orthopedic problem in my TMJs. But he thinks it is only partially related to the ringing. Chiropractics make it worse. My neuro-otologist says that I can nearly stop the ringing by pressing on my jaw because it changes the impedence of the nerve in the inner ear. So TMD can be a complete cause of T as some here have experienced, or a partial cause, with other factors also affecting it. My audiologist says that most of her patients can change their T by manipulating their jaw, and a lot of them have hearing loss and no TMD issues. So that points to the changing impedence theory. I am continuing my Ztmd treatments, but I am also
       
    21. Oops. Sorry. Accidentally hit post too soon. I am continuing with my TMD treatments, but I am also seeing a neuro-otologist who has discovered some things in my inner ear.
       
    22. Fiore
      Doubtful

      Fiore Member

      Tinnitus Since:
      02/2015
      Hello, I have a question. Is TMD/TMJ always associated with pain? Or one could have it and not even know?
       
    23. TMD or TMJD is not always associated with pain. Some people have it and don't know it, because they have no pain. I did not have any pain in my TMJs, but I have been positively diagnosed with TMD by one of the best specialists in the field. I went to him because I could almost completely stop my T by pushing on my jaw. He said that most people end up in his clinic because of pain, but the few that end up there without pain, experience pain when he puts pressure on certain areas of their face, neck and jaw. I have been doing TMD treatment for six months now.
       
    24. Thongjy
      Balanced

      Thongjy Member

      Location:
      Singapore
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Unsure
      How does your T get along with the TMJ treatment for 6 months?
       
    25. @Thongjy My T has definitely gotten worse from the TMD treatments. But when I do not wear a night appliance, it gets even worse. This goes along with my TMD specialist saying that the jaw is only a partial cause of the T, and my neuro-otologist saying that the jaw changes the impedence of the noise. Nonetheless less, my jaw has played a role, as is evidenced when the mouth appliances are not right, it makes the T worse, as do the other treatments that the TMD specialist has done. My jaw is such that I can't chew now, but chewing made my T worse, but when I pressed on my jaw, I could almost stop the T.
       
    26. Fiore
      Doubtful

      Fiore Member

      Tinnitus Since:
      02/2015
      Thanks for answering, well that sucks that someone could have a TMD/TMJ issue and not even know it. I have no pain but I am most certain I have it as I believe some of my teeth are uneven some higher than others :/ nonetheless is it normal that if i hold my head low and look towards the ground my T diminishes to a pitch so low I can barely hear it that I have to plug both my eras to hear it. I walk around like this all day just to make it through the day. and sleep in an odd position so as to keep it low. :/ you mentioned that you went to a really good specialist but he made your T worse, this puts me on edge that if I get it treated since the left side of my jaw by my ear sometimes feels weird like pressure and when i yawn it clicks/crackles :/ no excruciating pain though (slightly uncomfortable)....yet :/

      (sigh)
       
    27. Kaelon
      Wishful

      Kaelon Member Benefactor Team Tech Team Awareness Team Research

      Location:
      Boston, Mass.
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Muscle Spasms
      If you are suffering from TMD or TMJD, chances are that there have been side effects or chronic behavioral and physiological warning signs that have been easy for us all to ignore. In my case, I had some jaw aching in the mornings that I dismissed as meaningless for years. In reality, it was me clenching my teeth and night - and my dentist was able to confirm clenching through the wear patterns in my teeth.

      @Fiore, if you're able to silence your T or lower the volume just by moving your neck, you absolutely have some sort of neuromuscular inflammation that is causing the spasms around your ear drums and thus triggering your Tinnitus. You and I, actually, have a very similar condition (as does @Rube and @JayM, for what it's worth). It may or may not be TMD that is the cause, but TMD is often suspected because the neck, head, and jaw muscles are all deeply intertwined and interconnected and tension in one of them can offset all of them.

      FWIW, I've never had "excruciating" pain. But I very clearly have some neuromuscular dysfunction. In my case, seeing a chiropractor has helped tremendously and the volume of my T has grown much lower. Taking anti-inflammatory medications is a good first step - I recommend 800 mg of ibuprofen, 3 times a day (always taken with meals) for a maximum of 2 weeks, to see if you notice an improvement. If you do, then, inflammation is the smoking gun. Finally, I recommend you get diagnosed by a dentist ASAP, as an orthotic device to be worn at night can help considerably.
       
      • Agree Agree x 1
      • Informative Informative x 1
    28. Christian78
      Alone

      Christian78 Member

      Location:
      Gothenburg
      Tinnitus Since:
      (Sep 2013)
      Cause of Tinnitus:
      progressive tinnitus, time of expiring in next 3-6 months
      All you dear friends, take Iboprofen ant that dosage 2 weeks and then just dont complain he coused you severe tinnitus and hearing loss.
       
      • Agree Agree x 1
    29. Fiore
      Doubtful

      Fiore Member

      Tinnitus Since:
      02/2015
      Thank you! it could be! I doubt I clench because i never have jaw pain in the morning if anything its really low, just on my left side when i start using it through out the day more like a pressure. and my neck has been stiff like rock but its slowly loosening up. I notice a difference when I eat soft food. But then again all this started when I syringed my right ear so its all one huge mess and a maze to try to find what is causing it. According to my ENT he said no hearing loss from my audiogram only checked up to 8hz though. @Kaelon is your ringing in your ears or head? Mine is more so in my head :( its very uncomfortable I think I could bear it if it were in my ears but its like its coming from my head.
       
    30. @Fiore I understand what you are saying. My ringing is mostly coming from my head. It feels like my whole head is full of noise. I only started to have jaw pain after starting TMD treatments, I am hoping it subsides. I have a couple of uneven teeth too, and the TMD specialist that I don't clench or grind, or there would be wear on my teeth. Beware of ibuprofen, because it can cause tinnitus. I am able to almost silence my T by pushing on my jaw or opening my mouth wide. But my audiologist said that a lot of people with at can manipulate it by jaw movements. My TMD specialist thinks the jaw is only part of the problem. My neck is really stiff and sore, and I have been doing PT for it. Chiropractics sent the noise through the roof for a week. I have been eating soft food for four months now. My best to you!
       
      • Hug Hug x 1

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