What Would You Like to Ask Bryan Pollard, the President of Hyperacusis Research Limited?

1: Different Types of Hyperacusis
From what research seems to be suggesting there is no one condition labelled hyperacusis but rather several poorly or un-classified conditions causing intolerance of sound. Could you go over and describe the various types of hyperacusis? I also understand this podcast is focused on pain hyperacusis.
1: Loudness Hyperacusis
2: Pain Hyperacusis (noxacusis)
3: TTTS/trigiminal nerve irritability

2: Prognosis
Why do you believe some people have pain hyperacusis for several hours after an acoustic injury and others have it for several months, to years to indefinitely? The prognosis seems to be a mystery but resting ones ears makes it better. I am already aware a general rule of thumb is the more history of noise exposure the less likely recover chances are but some people are just unlucky to say the least.

3: Standard of Care and the Stereotypical Visit to the Audiology Clinic
Do you feel like audiologists can possibly be doing a disservice to patients with noise-induced pain by treating it with sound therapy as if it were something that could be retrained or desensitized? From what a lot of people are saying here is that audiologists have historically had a poor track record of helping patients with pain hyperacusis. Another issue audiologists have is failing to test for hidden hearing loss which seems to be an epidemic for people with tinnitus. Some are not even familiar with hyperacusis.

4: When Is Research Going to Change the Standard of Care?
The research of Paul Fuchs, Charlie Liberman and others in this field are showing how the inner ear works on a much more sophisticated level which seems to be challenging how the clinical standard of care is practiced. There's no regenerative treatments yet for damaged hair cells and cochlear neuropathy, but how do we get doctors to be familiarized with research? Doctors would obviously understand this research a lot better than laymen's like myself. When will patients be diagnosed with cochlear synaptopathy and noxacusis? When will doctors understand the concept of setbacks?

5: Information About Pain Hyperacusis
Can you do you best to explain the pathologies of noxacusis and the trigeminal nerve issues sufferers have?
Do you believe it has striking resemblance to peripheral neuropathy and/or phantom pain elsewhere in the body?

6: Will Numbers Rise?
With noise pollution being a real threat, are rates of pain hyperacusis going upward in the next several years?

7: Hypotheticals
With companies like Frequency Therapeutics, Decibel Therapeutics and Otonomy working on regenerating hair cells, synapses and possibly more. Would regenerative medicine be the most plausible treatment for pain hyperacusis?

 

What can we as patients with hyperacusis do to help you and others accelerate the speed of research to find effective treatments and ideally a cure?

 

Yes, I did. Thought it might be helpful to others to see what I put in the survey link, since I found I helpful to see the questions posed by @Contrast.

 

Will do.

 

Is hyperacusis just like the type of sensory perception of sensitivity from other types of tissue damage like burns and cuts?

 

Questions delivered.

 

@Hazel - About a week ago, after you had suggested soliciting people for more questions, I posted in several hyperacusis & tinnitus Facebook groups. Hopefully that helped generate some additional Qs.

Looking forward to the podcast, thanks so much for organizing it. Even though I cannot listen to it I will look forward to reading comments about it from others and I will ask Bryan if he might be able to give me a transcript. I don't know if you have a way to do subtitles automatically similar to how YouTube offers that option, if so that would be great. There are others in my situation than are severe enough they cannot listen.

 

Ah rats. Hopefully there is good quality if not quantity.

And many thanks to @Jack Straw too, I am a little slow on the uptake realizing who all is doing the heavy lifting. You all rock and have my gratitude.

 

@Markku and @Hazel,

I realise I am past the deadline. I have not been able to follow the forums lately due to photophobia and I must limit my screen time.

If it is not already covered in the surveys I hope it's possible to add a question: What is Bryan Pollard's view on the Round and Oval Window Reinforcement Surgery performed by Silverstein?

 

You can download software to dim the screenlight on your computer screen.

Windows 10 might even have something built in with a setting called night mode.

 

I'm also very curious about this. Right now that surgery seems like the most realistic thing that could currently help hyperacusis sufferers. It's had good results supposedly, but the sample size is so small (30 people or so) that it's hard to get too excited about it without more information.

 

There is a Facebook group called "Hyperacusis Surgery Success" where more information is shared, though mostly in anecdotal format.

The papers only covered surgeries up until 2017 and there have been many done since then.

 

@Markku @Hazel

https://hyperacusisresearch.org/hyperacusis-device/

Sorry if this is really late but a few years ago Bryan Pollard was testing out a device to reduce noise and pain hyperacusis. Is there any news on this? Was it successful?