Wondering... Hyperacusis and TTTS Relationship

Discussion in 'Support' started by ozgeA, Mar 22, 2018.

    1. ozgeA
      Curious

      ozgeA Member

      Location:
      turkey
      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
      Hi everyone..

      I am just new around here and I honestly say I am not as fluent speaker as you guys.. so lately I am thinking that I have this TTTS syndrome (not confirmed by any specialist yet).

      Just because I have some symptoms like fluttering sensation (when I hear loud voice, because of the fear of any damaging to my ears) or whatever does it mean that I have hyperacusis in some way?

      Is there any relationship between these two? OR does it have to be a relationship???

      Thanx a lot...
      Wish all the best..
       
    2. MajaC
      Not worthy

      MajaC Member

      Tinnitus Since:
      fleeting (2012) Chronic (end 2017)
      Cause of Tinnitus:
      Birth, hearing loss, hearing trauma
      Welcome here!
      What is at TTTS? I've searched and find something about a twim syndrom.
       
    3. AUTHOR
      AUTHOR
      ozgeA
      Curious

      ozgeA Member

      Location:
      turkey
      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
      tonic tensor tympani syndrome (TTTS)
       
    4. MajaC
      Not worthy

      MajaC Member

      Tinnitus Since:
      fleeting (2012) Chronic (end 2017)
      Cause of Tinnitus:
      Birth, hearing loss, hearing trauma
      Oh ok! Hyperacusis! I have that sometimes (ironicly, I also have hearing loss ahah). If you wanna talk, don't hesitate to come in private!
       
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    5. sjtinguy

      sjtinguy Member

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise
      Yes I believe there is a relationship.. TTTS is caused by the muscles in your ear becoming overworked, because your brain thinks everything is too loud. The pain/odd sensations from the TTTS makes you think that the sound you heard is causing damage, further reinforcing in your mind that the sound was too loud! But just feeling TTTS does not mean any damage has occurred, at least that is what I have read. Learning this really helped me out and reduced both the TTTS and hyperacusis. Here is an article that really helped me http://www.hyperacusis.net/other-factors/tensor-tympani-syndrome/
       
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    6. AUTHOR
      AUTHOR
      ozgeA
      Curious

      ozgeA Member

      Location:
      turkey
      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
      @sjtinguy @MajaC

      The point is i actually dont think all sounds are too loud. This stiuation that i am going through is funny cause i cant describe it even to myself. My LDL(loudness discomfort level) decibel are between 90-100. I become strongly think that i develop PHONOPHOBIA . the fear of having H. or something. :/

      Thanks a lot for your replying.
      Wish all the best .
       
    7. sjtinguy

      sjtinguy Member

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise
      if your LDLs are in the normal range then you probably don't have hyperacusis.. when mine were checked a few months ago they were like 70db
       
    8. AUTHOR
      AUTHOR
      ozgeA
      Curious

      ozgeA Member

      Location:
      turkey
      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
    9. Wenno
      Lucky

      Wenno Member

      Location:
      Melbourne, Australia
      Tinnitus Since:
      March 2018
      Cause of Tinnitus:
      Likely chronic sinus inflammation
      I was diagnosed with TTTS a few weeks ago. This followed Sudden Sensorineural Hearing Loss some months back. Re TTTS and my internet searches of this term, I find it very hard to believe in my case. Yes I have Hyperacusis, Diplacusis and low-impact Tinnitus ( all in one ear). But I don’t spend my days ‘readying myself’ for unexpected loud sounds, nor do I have any pain as such. What I have is no fun, and I wish to hell I were not stuck with this, but the implication that my ‘reaction to loud sounds’ has caused me to be on the ‘emotional look out’ seems to be a somewhat subjective observation. Sure, in restaurants I carry earplugs in case- because the physical discomfort CAN be unbearable, same in live theatre or cinema, but I’m somewhat sceptical about HOW TTTS is diagnosed.
       
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    10. Taylorslay
      Happy

      Taylorslay Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Years of excessively loud headphone use
      Yes they do. Hyperacusis is believed to be in the brain or the auditory nerve. Or both! (Depends on who you ask and if its loudness or pain Hyperacusis.).

      TTTS is related to the facial nerve. The muscle in the middle ear are connected to the facial nerve. A quick Google search will tell you that. But I've also found that in my case, if I brush my something lightly against my cheek that my eardrum contracts. Further telling me it as to do something with the facial nerve.

      You don't need a specialist to tell you anything. They are generally useless when it comes Hyperacusis and Tinnitus. It's safe to assume if you have Hyperacusis and symptoms of TTTS then you have TTTS. I remember doing some small research on TTTS when my Hyperacusis was still bad. From what I can recall, hyperacusis and some other condition are the only ailments that trigger TTTS.

      Some speculate, since many of hyperacusis cases are induced related thaat TTTS is related to the muscles in the middle ear constantly contracting over and over. But this is a very debatable speculation. I can think of 3-4 arguments for this right now.

      I want you to know that TTTS is believed to be relatively harmless.
       
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    11. Coffeebean

      Coffeebean Member

      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Noise
      I have the exact same thing! On the basis on what I have been able to research, the TTTS symptoms (which are indeed believed to be a psychosomatic, subconscious, harmless, but annoying 'defense' response of the ear in anticipation of loud noises) can irritate the facial nerve due to the close proximity of this nerve to the muscles/nerves that are involved with TTTS. I hypothesize that in their sensitized state, stimulating the facial nerve by touch can also sent a signal back to the nerves/muscles in the ear, causing more rumbling in your ear. I had not come across anyone though who experienced this as well, until I read your message.

      I can imagine its a sort of feedback loop, whereby the T, H, and related anxiety caused the muscles in the ear to contract more easily, in turn irritating the nearby nerves such as the facial nerves and the jaw. In turn, the tension in the jaw and the face can keep the muscles in the ear in their hyperactive state. I've often heard of TTTS disappearing only after H has been treated and the related anxieties been brought under control.
       
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    12. Taylorslay
      Happy

      Taylorslay Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Years of excessively loud headphone use
      For me my TTTS got better as my H did. And I thought everyone with TTTS felt the muscles in their ears moving when brushing their face. I guess not? Haha the more you know!
       
    13. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      I am wondering the same thing if tinnitus, hyperacusis and ttts share a direct relation but we won't know until more research comes in. Personally I'm pretty sure they do
       
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    14. TLion

      TLion Member

      Tinnitus Since:
      2006
      Cause of Tinnitus:
      stress/loud concert
      My Hyperacusis is 90% gone but the TTTS symptoms are not. The problem is that I feel a kind of move in my ear even when it is very quiet. It feels like a switch. After this switch the ear is a little more "cramped". I'm already taking magnesium, zinc and Ginko. I really don't know where this comes from. Is it the neck? I also have TMJ. What can I do? My ear is not reacting to loud noises.
       
    15. TLion

      TLion Member

      Tinnitus Since:
      2006
      Cause of Tinnitus:
      stress/loud concert
      If I have a day of twitching it happens 3-4 times during the day. On other days not once.
       
    16. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      that's not ironic at all, do you have pain hyperacusis or do you notice noises sound too loud, or both?

      The problem is there is no one and only "hyperacusis" it's a vague word for 2 or 3 separate issues.
       
    17. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      What caused the sudden sensorineural hearing loss?
       
    18. Geekysugar

      Geekysugar Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Ototoxic meds, Chiari
      Did this ever improve for you? I also have this and it drives me crazy! I havent found much info on it, though. I plan to ask a maxilofacial surgeon I know about it. He treats innervation of the face so hopefully he gives me some answers.
       
    19. Taylorslay
      Happy

      Taylorslay Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Years of excessively loud headphone use
      Yeah it rarely happens now.
       
    20. Melike
      Studious

      Melike Member

      Location:
      Istanbul, Turkey
      Tinnitus Since:
      17 / 03 /2017
      Cause of Tinnitus:
      Most probably TMJD and neck issues that came with it.
      Hi @Taylorslay . I've read somewhere that you get ear spasms sometimes when you touch certain places of your face area. Did it improve for you? And do you have typewriter tinnitus (morse code) ?
       
    21. Taylorslay
      Happy

      Taylorslay Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Years of excessively loud headphone use
      Yeah it improved. My ttts all together doesn't happen much now. And no I got ringing and a little bit of what I assume is hissing.
       
    22. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      Do you have hyperacusis too?
       
    23. Taylorslay
      Happy

      Taylorslay Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Years of excessively loud headphone use
      Thing is ttts is not as annoying and hurtful as tinnitus. Try not to focus on ttts so much because it's harmless
       

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