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ErikaS
Six and a half weeks since my most severe bout of MEM/TTTS vibrations started in my right ear. It is so frustrating and mood crushing. Things that gave me relief or took it away in the past (chiropractor ear adjustments) don't seem to be working right now.
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ErikaS
@MindOverMatter I then get upset and think "if I don't stop simple life things for a while, it will continue to be agitated and become permanent". But also staying at home and limiting more simple things life has me fixated on it and increases depression because I'm isolating.
ErikaS
@MindOverMatter what also makes it tricky is if I'm around other ambient sound, it's stops while the other sound is going on, so that gives me a nice mental break and boost. But after I stop talking, turn the car off, go into the quiet, go to bed, etc that's where it really comes out and shows me its agitated state. Waking up is rough too.
MindOverMatter
I do get where you come from @ErikaS - it is all familiar to me. You can't stop living, but you need to pace tmyour life and make time for proper rest. I would not stop doing things, but maybe limit things until you stabilize more. My process was non-linear. Setbacks, unless you do something "stupid", is an unavoidable part of this journey.
JJL
Hi - any even 5% help from doing the NYU tDCS study? Where did they place the electrodes?
W
I'll share a detailed report in a month or so. While I was using it, I felt some mild improvement. But I wasn't tracking it very systematically so I took a couple months off and have been tracking my tinnitus so I can see if it actually improves when I start again in a couple weeks.
W
The clinic I am working with built the headset custom to place the electrodes in the correct spot. I sent them the study and a measurement of the circumference of my head.
Tryn2BHopeful
Missing another one of my kids school events. Breaks my heart.
MindOverMatter
Don't be so hard on yourself @Tryn2BHopeful It doesn't help. I've missed out on a lot of my kids happenings, but they understand why. I've come to peace with it. I can support them with other things/in other ways.
W
Do you have musician's earplugs? I wear them to weddings and such.
delta784
you seem mild as hell bro
S
Who are you to tell someone they're mild? You're on every post. Look within and stop judging others.
S
@delta784 I'm not sure what the point is in commenting somebody "seems mild" here. A comment like that speaks more to who you are vs what I am. This is not a competition. You're only in competition with yourself. You can't possibly know what my tinnitus is like on a daily basis just as I can't know what yours is like. I wish you the best and hope you find some maturity and some tinnitus relief.
Sodlin
Seems like the tinnitus is really flaring up now and mostly on the ear i hit with the rake. Im feeling very low at the moment and sad, im really struggling to find the tools how to make progress with both H and T that keeps spiking and i would say in the last 2 months it got like 20 % louder. :(
Maruashen
How did this work out for you? It seems like those clumsy incidents are impossible to avoid, I do them to :(
Sodlin
It worked out fine. I did have some serious panic about the incident tho lol
delta784
hello do you used lamictal at the end or any other meds doesnt touch serotonin
delta784
Grodan how are you :(
GrodanB
Bad, really bad. But soon it will again be another level of bad. Nothing good happens anymore. Im negative, im sorry. I thank you for asking though, i really do appreciate it.
Tryn2BHopeful
Think I got a new "pure tone" in my left ear... its relatively low atm, I don't hear it all the time and is maskable unlike all the others but is definitely new... ugh... Even avoiding everything and protecting my ears... Trying to not feel doomed. My right ear on the other hand seems to be doing better than it was, but still loud. The "hum" is still very hard to deal with.
Sodlin
Urk im so clumsy. Was out in the shed with earmuffs to remove all the leafs that blow in during the winter. Stepped on a rake that went up with full force and hit my earmuff... Little bit panicky now since it was very loud on the plastic but hope it will not make a spike.
Maruashen
Again im very interested in this because I feel like these things keep happening.
How often do you use earmuffs? do you use earplugs as well?
Sodlin
@Maruashen i use earplugs the most since they make the best "dampening effect", i use earmuffs if im gonna do small stuff and just wanna put something on "incase". It somehow didnt spike me more then a day even tho it was VERY loud. Its important you insert the plugs right
S
Caffeine again affects my T. This hasn't happened in few years now. Darnit. Let me enjoy my morning coffee!!!
in_LA
Hi, hope you're well, you got tinnitus from acutane? I took acutane when I was in my teens, that stuff made me feel really sad all the time, later found out some users had unalived themselves.
Marina Moon
A door slammed on my finger on the 14th of last month and it's healing better, i guess? It's still stiff and swollen but it doesn't hurt when I move it (much) hopefully it heals completely this month. I've been avoiding using it unnecessarily and have been splinting it, along with moving it a bit for light exercise.
ECP
That's great news! I hope it continues to heal quickly and completely. And I bet it feels strangely gratifying to watch an injured body part heal at a reasonably acceptable pace. Our ear problems are so much slower to resolve.
Marina Moon
@ECP Thank you! I can already tell that it feels better week by week :D I thought about this earlier and it really does feel strangely gratifying in perspective to everything else. The improvement reminded me how fast healing can occur, for some things. Being stuck in my chronic health issues made me forget that healing could occur at all 😂
S
"Have you ever danced with the devil in the pale moonlight? I ask that of all my prey. I just like the sound of it." -Tinnitus
Marina Moon
I also bit into an apple earlier today and my right TMJ hasn't stopped hurting. My facial muscles have been spasming alot more lately too and it's painful, and odd looking. I'd hate if anyone were to see me like this, because my facial expressions look funny. I'm not purposely making a face at anyone, my facial muscles (in my cheeks and jaw) do what they want without my control...but damn it hurts.
Marina Moon
It's been more than a year and I am back here. I don't really have good news, just the same pain and T symptoms like before, just kind of worse. I honestly don't know what's wrong with me, but I still crave for my old normal where constant pain was never in the scope of my reality. I have a follow up appointment with my physical therapy doctor tomorrow.
S
Back once again. I write this to myself as a reminder as well: NEVER GO INTO ANY LOUD PLACES, EVEN WITH EARPLUGS! I've been doing so well for past 2 years. My T&H were basically gone, I found new joy in life. But, because I just wanted to be with my friends just for ONCE before we graduate, it's all gone in few alcohol induced hours. A terrible spike going on. I even had my earplugs on all the time.
zatara92
T still raging but my mood has stabilised. I'm by no means happy, but at least I'm avoiding the deep pits of despair I was feeling before. Except when I try to listen to music - that really gets me down.
delta784
mine is caused by prednisolone which i used to avoid tinnitus i was so mild why? is it because of my veins?
Sodlin
Man im so frustrated. We got these old doors at my work that are "hard to close". You need to close it and then push very hard for it to stay closed. My IDIOT college was closing the door right next to me but instead of doing it the right way he takes and close it by just smashing it shut super hard creating a superloud BAM, i wasnt looking since i was talking to someone else. Anxiety is thru the roof!
kingsfan
Yeah no one bothers to accommodate me with anything despite constantly reminding them to just be quieter around me.
Sodlin
My tinnitus has been elavated for like 3-4 weeks now and i cant really find why it got louder. Ive had some misshapps happening but nothing extreme. i also feel a little bit "clogged" in my right ear where the spike is happening. Im getting less and less anxiety over "loud stuff" thats happening so thats good!
Juliane
I find it difficult to put into words how much I hate this horrible disease. My hate for tinnitus is deep and all-consuming. It has stolen so much life from me and I will never recover from that loss and pain. Never.
dreamer16
Me too. I hate it. Another night of going to bed with a high-pitched whine. No silence, no true rest, nothing.
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