UKBloke's Recent Activity

  1. UKBloke rated Lurius's post Agree in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    I share the same fear, but tbh it's impossible to answer your question. The only way you will know if Lenire is beneficial to you is to try it....

    Feb 20, 2020 at 10:43 PM
  2. UKBloke liked glynis's post in the thread Tinnitus Week 2020: Focus on Research — Get Involved!.

    To @Tinnitus Talk, I'm just reading all the work during Tinnitus Week 2020. Well done everyone and so proud of Tinnitus Talk. Sorry not to have...

    Feb 20, 2020 at 7:59 PM
  3. UKBloke rated Rb86's post Agree in the thread Hough Ear Institute's Hair Cell Regeneration Project.

    Well, ultimately it's all about money. And this applies to all health conditions that are underserved. Costs a lot to research, and who wants...

    Feb 20, 2020 at 8:33 AM
  4. UKBloke rated mrbrightside614's post Agree in the thread Hough Ear Institute's Hair Cell Regeneration Project.

    No, it’s because the medical industry fails to acknowledge the plight of severe sufferers and all funding goes to equivocal bullshit treatments of...

    Feb 20, 2020 at 8:33 AM
  5. UKBloke rated Shera's post Agree in the thread Who Is Your Main Source of Support with Tinnitus?.

    In real life my mom has had it since I was in middle school. When she first got it she'd scream and rage at me. Since then she has wished I had...

    Feb 20, 2020 at 8:31 AM
  6. UKBloke liked Jorge P. Simoes's post in the thread Analysing UK Biobank Data Together.

    Hi @brokensoul, Thank you very much for the kind words, and thank you very much for all the thought put into this. Here's some food for thought:...

    Feb 20, 2020 at 8:29 AM
  7. UKBloke rated Rigsbin's post Informative in the thread Lenire — User Experiences and Reviews.

    6 Week Update Okay, so I've now completed 6 weeks of using Lenire with 100% compliance to the treatment regime, which has not been easy at times....

    Feb 19, 2020 at 9:02 PM
  8. UKBloke rated FGG's post Informative in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    Yes. Watch the Q and A. Everyone should watch the JP Morgan presentation and the Q and A. In the Q and A, they were asked about tinnitus and...

    Feb 18, 2020 at 9:27 PM
  9. UKBloke liked Ed209's post in the thread Tinnitus Week 2020: Focus on Research — Get Involved!.

    I have absolutely no idea and didn’t realise how bad it was until I witnessed a few projects first-hand. I could reel off a few examples but I...

    Feb 18, 2020 at 4:01 PM
  10. UKBloke liked fishbone's post in the thread Who Is Your Main Source of Support with Tinnitus?.

    Cherish her, she's an amazing person. Shes your mom and she's your tinnitus inspiration. Kudos to both of you for the support you show each other.

    Feb 18, 2020 at 8:13 AM
  11. UKBloke rated Sash's post Agree in the thread Who Is Your Main Source of Support with Tinnitus?.

    I have a friend who has mild Tinnitus so sometimes we discuss it but not really in depth. When I was seeing the audiologist even though she...

    Feb 17, 2020 at 11:46 PM
  12. UKBloke replied to the thread Who Is Your Main Source of Support with Tinnitus?.

    My mum. She has tinnitus as well so when things get really bad we share war stories from the trenches. A while back someone on Tinnitus Talk...

    Feb 17, 2020 at 11:42 PM
  13. UKBloke rated fishbone's post Agree in the thread Who Is Your Main Source of Support with Tinnitus?.

    You are a good soul! Keep paying it forward. I firmly believe in doing this.

    Feb 17, 2020 at 11:28 PM
  14. UKBloke rated FGG's post Winner in the thread Who Is Your Main Source of Support with Tinnitus?.

    It's been really rough. My husband left me soon after my ear issues and my mother is far away and doesn't really get it. She says things like...

    Feb 17, 2020 at 11:28 PM
  15. UKBloke rated Agrajag364's post Agree in the thread “You Should Try Yoga”.

    I hear your pain. It's important to remember that in a proportion of cases (no one seems to know what %), tinnitus actually goes away, and can do...

    Feb 17, 2020 at 11:21 PM
  16. UKBloke rated Dr. Nagler's post Helpful in the thread Habituation: What Can I Expect in My Case, with a Loudness Match of 20dB SL?.

    @Bartoli, some of the wording in my original response may have been unclear. I have cleaned it up a bit, and I hope it now makes more sense....

    Feb 17, 2020 at 11:16 PM
  17. UKBloke liked Dr. Nagler's post in the thread Habituation: What Can I Expect in My Case, with a Loudness Match of 20dB SL?.

    Hello @Bartoli - Thank you for your interesting question. Let me first address the issues surrounding your 20dB SL tinnitus loudness match. You...

    Feb 17, 2020 at 11:16 PM
  18. UKBloke rated MRItechssuck's post Agree in the thread Biobank for Tinnitus — Debate.

    Someone will eventually abuse the data, or there will be a data breach IMO.

    Feb 17, 2020 at 8:21 PM
  19. UKBloke replied to the thread Biobank for Tinnitus — Debate.

    Again, in principle, yes - but I think the case for anonymizing the data still needs to be explored. Perhaps there's a bigger hurdle that would...

    Feb 17, 2020 at 8:21 PM
  20. UKBloke liked brokensoul's post in the thread Analysing UK Biobank Data Together.

    Hi @Jorge P. Simoes, It is really great that researchers are reaching out to the biggest tinnitus patient community. Thank you so much for doing...

    Feb 17, 2020 at 7:59 PM
  21. UKBloke replied to the thread Biobank for Tinnitus — Debate.

    Hi Frederic, Not really sure about question 1 but have a couple of viewpoints on 2 & 3: Yes, I would happily give whatever test data I could for...

    Feb 17, 2020 at 4:19 PM
  22. UKBloke replied to the thread Tinnitus Week 2020: Focus on Research — Get Involved!.

    Yes, this was essentially my point. Tinnitus apathy is something I've been giving quite a bit of thought to lately. I believe one of the reasons...

    Feb 17, 2020 at 2:31 PM
  23. UKBloke replied to the thread Analysing UK Biobank Data Together.

    Jorge, Thank you for taking the time to write this post. There's certainly enough here to help me understand a little bit more about the project....

    Feb 17, 2020 at 1:16 PM
  24. UKBloke rated Snake's post Agree in the thread Tinnitus Week 2020: Focus on Research — Get Involved!.

    I shared the petition on Polish Tinnitus Group and trying to make all of my friends to sign, better late than never. I'm so depressed and feeling...

    Feb 17, 2020 at 10:38 AM
  25. UKBloke replied to the thread Tinnitus Week 2020: Focus on Research — Get Involved!.

    @Ed209 I have a feeling that one side of the problem with slow uptake on the petition lies beyond this community. It seems to me, having posted...

    Feb 17, 2020 at 10:36 AM
  26. UKBloke rated Autumnly's post Agree in the thread Tinnitus Week 2020: Focus on Research — Get Involved!.

    Most comments I got in German support groups were along the lines of "Why should I sign this? It's happening in the UK, not in Germany". There's...

    Feb 16, 2020 at 9:54 PM
  27. UKBloke rated FGG's post Agree in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    @mrbrightside614, I was the one who said "research wanking", not Hootowl and I meant it more playfully than it sounded. I would just like to...

    Feb 16, 2020 at 8:15 PM
  28. UKBloke liked HootOwl's post in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    I just wanted to add that I’ve done my fair share of research wanking lol but it’s always important to step back and say “but why are we seeing...

    Feb 16, 2020 at 8:15 PM
  29. UKBloke liked hans799's post in the thread Thanks for Having Me.

    3-year update. Wow, I can't believe it's been three years... how time flies. The bad news is that the noise is still there. The good news is...

    Feb 16, 2020 at 8:02 PM
  30. UKBloke replied to the thread Morse Code Type Tinnitus Is Practically GONE After 5 Years.

    @Louise77 thank you very much for dropping by and updating your situation. This kind of success story is always music to my ears (pun intended).

    Feb 16, 2020 at 5:14 PM
  31. UKBloke liked fishbone's post in the thread Suicidal.

    You and I come from different walks of life. I respect people and DON'T insult them no matter how good or bad I feel.

    Feb 16, 2020 at 4:39 PM
  32. UKBloke rated mrbrightside614's post Agree in the thread “You Should Try Yoga”.

    Docs won’t render a formal diagnosis of tinnitus until 6 months out, from my experience.

    Feb 16, 2020 at 12:18 PM
  33. UKBloke rated zombiechick's post Friendly in the thread “You Should Try Yoga”.

    Everything hasn't been taken away! I got this at 27. It was so loud I could hear it over everything and I have it in both ears. Your life is no...

    Feb 16, 2020 at 12:17 PM
  34. UKBloke rated mrbrightside614's post Agree in the thread “You Should Try Yoga”.

    The first 3-4 months are unanimously the worst time you’ll probably ever have to experience in your life. By 6 months some of the anxiety should...

    Feb 15, 2020 at 11:02 PM
  35. UKBloke liked Hazel's post in the thread “You Should Try Yoga”.

    @Orions Pain, there's not a whole lot I can say to make it better. I can only express my hope that you take some solace from this forum and the...

    Feb 15, 2020 at 11:02 PM
  36. UKBloke rated brokensoul's post Informative in the thread Hough Ear Institute's Hair Cell Regeneration Project.

    Tinnitus has been described as a thalamocortical dysrhythmia of the auditory pathway. Visual Snow Syndrome has been described as a...

    Feb 15, 2020 at 10:56 PM
  37. UKBloke rated Hazel's post Winner in the thread Analysing UK Biobank Data Together.

    I will ask Jorge and Patrick to clarify further for everyone here (including myself) to better understand their vision. I don't want to make any...

    Feb 15, 2020 at 10:49 PM
  38. UKBloke replied to the thread Analysing UK Biobank Data Together.

    I agree, I think we've just spent too long where the leaning has been towards psychotherapists telling us to accept our symptoms rather than...

    Feb 15, 2020 at 10:49 PM
  39. UKBloke replied to the thread Analysing UK Biobank Data Together.

    No! Obviously the group as a whole will decide on that. On a personal note, I need to understand what I can, can't, wish to, and wish not to be...

    Feb 15, 2020 at 8:08 PM
  40. UKBloke rated Hazel's post Winner in the thread Hough Ear Institute's Hair Cell Regeneration Project.

    Hey folks, the transcript of the podcast is now available!

    Feb 15, 2020 at 7:33 PM
  41. UKBloke replied to the thread Analysing UK Biobank Data Together.

    @Hazel thank you for opening up another potentially useful avenue to this community. The Biobank data thing I think is very interesting. There's...

    Feb 15, 2020 at 7:26 PM
  42. UKBloke replied to the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    I think you need to be the judge of that. But remember, this list is very specific and a small sample size.

    Feb 15, 2020 at 3:34 PM
  43. UKBloke liked Chinmoku's post in the thread Suicidal.

    At least I hope we distracted ourselves and the other poor people in this thread from suicidal thoughts for a few minutes

    Feb 14, 2020
  44. UKBloke replied to the thread PILOT: Vote on Your Favourite Research Paper!.

    I want to second Hazel's thanks for taking a deeper look into this. I've got to be honest, I skimmed over the docs but it's all very dry...

    Feb 14, 2020
  45. UKBloke replied to the thread Hough Ear Institute's Hair Cell Regeneration Project.

    This point prompted my main question as well. What does 4 weeks in a rodent equate to in humans?

    Feb 14, 2020
  46. UKBloke replied to the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Hi everyone, Re: the snapshot of current user experiences: I realised this morning after @Mentos made quite an interesting update in the User...

    Feb 14, 2020