Comments on Profile Post by CRGC

  1. Forever hopeful
    Forever hopeful
    Did your otologist suggest that this was a possibility? How much HL do you have?
    Sep 24, 2022
  2. MaxRabbit
    MaxRabbit
    User RadioKid had 3 shots. No issues. Do a search on here. Theres a few other users who had it done so you can read their experiences.
    Sep 24, 2022
    CRGC likes this.
  3. CRGC
    CRGC
    @Forever hopeful the only adverse effect he raised was the risk of a perforated eardrum (which he minimized). He has good experience regarding IT injections.

    My hearing loss is 30db at 6khz, probably greater around 5khz from testing myself at home.
    Sep 24, 2022
    MaxRabbit likes this.
  4. Forever hopeful
    Forever hopeful
    Wow. That is considered very mild HL. My ENT or otologist in Boston would never even consider an injection. Maybe a prednisone taper. I had loss at 35db at one mid frequency in left ear 2 years ago. It came back up to 25db on its own after about a year. The associated tinnitus resolved completely. They think it was a virus or ischemic event.
    Sep 24, 2022
    CRGC likes this.
  5. Guywithapug
    Guywithapug
    No, made my t a little better for a while.
    Sep 24, 2022
    CRGC likes this.
  6. MaxRabbit
    MaxRabbit
    Another user on here, Travis Henry, had one ear done about a month ago. He was pretty far into his T though. No effects after, good or bad. The hole in the ear drum is very very rare to not heal on its own. His healed fast.
    Sep 24, 2022
    CRGC likes this.
  7. MaxRabbit
    MaxRabbit
    ENTS should offer shots as soon as you call them. It can entirely restore hearing and stop T. Pill form wrecks your body, is not as potent, and is often only temporary. Give the suffering patient their best chance for relief. How is this not common practice today.
    Sep 24, 2022
    CRGC likes this.
  8. CRGC
    CRGC
    @Forever hopeful we discussed oral steroids too but this neurotologist seemed of the opinion that injections have a better chance of being effective.

    My hearing loss is mild indeed but bothersome on its own...not to mention the resulting T and H. It's either noise or ototoxicity induced (this doc seems to think it’s the latter) so unlikely to resolve on its own.
    Sep 24, 2022
  9. CRGC
    CRGC
    @MaxRabbit this neurotologist said that most ENTs aren’t as up to date with the practice as otologists, neuro or not. So it’s worth it to find a doctor that’s specifically specialized in this stuff. Mine is younger too, and appears to be very up to date.
    Sep 24, 2022
    MaxRabbit likes this.
  10. CRGC
    CRGC
    @Guywithapug thanks for the info :) is your T the result of hearing loss?
    Sep 24, 2022
  11. MaxRabbit
    MaxRabbit
    I saw a "top" doc, Dr. Djalilian of UCI Med. Asked why he didnt offer this and he said its not made for tinnitus. I said its KNOWN to help or stop it. He gave me 2 heavy meds which are in clinical trials for migraines. I dont have migraines. Told him he was wrong in nearly everything we discussed. Waited 2 months for that idiot to state nonsense, dismiss my concerns and quickly exit.
    Sep 24, 2022
  12. MaxRabbit
    MaxRabbit
    You are very lucky to have be seen by a dr. open to and current on possible treatments. There are drs. who make you worse instead of saying they have no idea how to treat you. Also, do what feels best for your ears and situation. I wish you the best if you do or dont do it!
    Sep 24, 2022
    CRGC likes this.
  13. ajc
    ajc
    how much did the top doc charge?
    Sep 24, 2022
  14. CRGC
    CRGC
    @MaxRabbit Really sorry to hear about your experience. Do you have hearing loss? To be fair, I don't think my doctor would have offered the injections if it wasn't for my measured unilateral HL.

    I came to his office prepared with printouts of some studies arguing for IT injections as useful treatment, but didn't need to show them. Could be a useful thing to do in the future.
    Sep 24, 2022
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  15. MaxRabbit
    MaxRabbit
    You took paperwork, thats good. The doc I saw has google reviews and the last one posted (just saw it) was same experience as mine. Some drs. have agendas. Mine was migraines cause all T and you need to take a lot of medications. Ugh.
    Sep 24, 2022
  16. CRGC
    CRGC
    That sounds like a very strange theory for a medical expert to be pushing.
    Sep 24, 2022
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  17. MaxRabbit
    MaxRabbit
    Thats what his research is in. I didnt know that beforehand. I do agree T and migraine activity share traits. Also seizures and T share traits. T fucks your brain up or it was already messed up in some way. I truly believe heavy chronic stress was the reason I got and continue to have this garbage.
    Sep 25, 2022
  18. MaxRabbit
    MaxRabbit
    I dont know if I have hearing loss..too scared to test. I had muffled sound and distortions in one ear when it first started. I think there must be hearing loss in some range but not tested to be sure. The dr. didnt push for tests since he was on the migraine train and said ear drums were normal.
    Sep 25, 2022
    CRGC likes this.
  19. CRGC
    CRGC
    @MaxRabbit i’m pretty sure regular audiometric testing is safe for your ears, as long as you stay away from tympanometry testing and especially the acoustic reflex test. Who knows, maybe having more info on the state of your hearing could be useful going forward

    Agreed on migraines and T probably sharing some traits. I know i’ve been having some weird head/eye symptoms since onset
    Sep 25, 2022
  20. Forever hopeful
    Forever hopeful
    @CRGC, I do hope these work. Just had my hearing checked yesterday. That 35 db loss is back up to 10 db so it completely came back. I took some oral steroids that got it back to 25 I. 2021. Then the rest healed on its own.

    Hoping for the best for you.
    Oct 12, 2022
    CRGC likes this.
  21. CRGC
    CRGC
    @Forever hopeful that's fantastic about your loss healing! Unfortunately mine has stayed exactly the same even after 2 injections. Not holding my breath for improvement on that end. Just wish T and H get better!
    Oct 12, 2022
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  22. Forever hopeful
    Forever hopeful
    @GRGC, You may have mentioned this somewhere but how long have you had hearing loss? Do you know what caused it? Was an acoustic trauma or a virus? Forgive me if you’ve written this before and I’ve read it. I’m like I remember my own name these days. They think mine was caused by a virus as or as unilateral.
    Oct 12, 2022
    CRGC likes this.
  23. CRGC
    CRGC
    Hey @Forever hopeful :) my constant tinnitus and hyperacusis date back to June of this year. Acoustic trauma from loud club + intense stress / medication is the likely cause. Looking back, I think I had some warning signs in the months before (fleeting T, occasional pain). Unilateral HL might have happened in June, or might have been there before. I'm guessing noise induced in any case
    Oct 13, 2022