@DeanD I am praying that a neurologist will see you ASAP. Like tomorrow. You should not have to be suffering like this. Are you at all able to go to an emergency room with noise cancelling headphones?
@DeanD When I first heard my ears ring I was advised it could be built up ear Wax. so, I tried using a blue bulb syringe to suction it out. I feel like this caused damage to my tensor tympani and this also might be playing as a big factor in your case also. If I could go back I would have never tried suctioning out my ears
In my opinion I believe microsuction can damage the tensor tympani nerve and keep it on high alert. Sounds that shouldn't register as harmful cause the tensor tympani to tense up. From my own experience when the damage that was done starts healing the tones should fade away. This muscle starts to relax and isn't tensing as much so everything else seems to follow
Shortly after I could be sitting in a silent room and my shit would still be the blasting loud. It's just my personal opinion but I think your tensor tympani is on high alert and your LDL levels might be in the low 20/30DB which might explain why your T keeps raising in volume even in silent environments. I believe microsuction is what caused damage and the soda popping caused some form of extended shock
Hi @ErikaS - I saw a private neurologist last Tuesday. He did basic brain damage tests, and sent me for extended blood tests (still waiting results). Been to hospital twice, even had ambulance sent out based on health service advice. They see me, realise its tinnitus and just don't know what to do - and all tests come back clear.
UK NHS broken I'm afraid (and this came from the ambulance peramedic!)
@Sammy0225 thanks for your posts and I agree. My H is so weird. Things sound loud but not uncomfortable. Internal sounds though are crazy, my eustachian tube crackling now sounds like thunder. The soda can has either heighted H or its still the tensor tympani.
Can't sleep without Zopiclone. I think making it worse but i went 4 nights without sleep trying to take other sleeping tablets but to no avail.
@Sammy0225 - have noticed a pattern though as to whatever is causing the ear crackling to sound progressively louder happens at same time as tinnitus sounding much louder.
Loudness of ET been progressing for over 6 weeks. Don't think it's ETD but more tensor tympani or H.
Tonight though whole new ball game even for me and a level I only feared about - doesn't even have the energy of a spike
what ever is irritating tensor tympani is also causing H to flare up. The problem is typically in quite environments the standard noice level is around 35-45DB but, what if someone's LDL is below 35DB? We can't go below 30DB so how does someone cope or heal when anything above 30DB is to much? It's such a horrible complex @DeanD I thought about having the nerve burned off but I'm scared of it back firing
tensor tympani is tensing up to harmless sounds due to a lowered threshold ( this muscle is tensing too much everyday) which in return the nerve is constantly inflamed and H has no way of making any significant progress of healing. The nerve is constantly on high alert and is constantly causing irritation and inflammation. I believe this leads to more tones and higher volume levels cause of constant shock to nerve
stories I've read, The people who healed had to hermit into a quiet place (zero outside noise, no cars passing, no TV, no music, taking only baths, no shower and no crunchy food) the tensor tympani can't be irritated at all. I did read that even in quietness you are developing new tones your H threshold is extremely low it needs to build it's tolerance back. The question now is "How" I'm also stuck with this question
I've done months and months of research and the tensor tympani goes hand in hand witn H and reactive tinnitus. If You get this nerve to calm it's ass down and everything goes with it @DeanD@ErikaS by trial and error I've tested this theory and got rid of the reactivity and some tones by not giving the tensor tympani a reason to tense up
Hi @Sammy0225 - thanks for all your messages. They mean a lot. I have been diagnosed by Myriam Westcott as having TTTS, so yes absolutely this all fits. The only one small thing is at the onset of t I could feel the tempor tympani muscle tensing up to noise - causing a muffling sensation - yet I haven't felt my tempor tympani muscle tensing for around 2 months.
Could it still be this?
My ear doesn't hurt and have no fullness - quite the opposite my hearing feels too open and hollow, and ear cracking sounds like thunder since the soda can exploding - it sounded like glass breaking since the motorbike in December - and I couldnt hear the crackling between Oct and Dec, which I am assuming is h.
I'm already in ear plugs 24/7. I live in a quiet house with no road traffic and hardly any outside noise.
I am worried the Zopiclone is causing the worsening. Have tried not taking it, but ended up awake 4 nights in a row.
Diazapam is being recommended for a week but I am reluctant.
I am hoping to try Melatonin today.
Want to be off all meds but insomnia is making it impossible
Diazepam low dose 2mg/5mg may help you get through this transition period and allow you some sleep. You gotta do what you gotta do to get some sleep. Ive taken them sparingly with T and did not notice a change. Do what you think is best regarding your current situation.
Thanks @Strawberryblonde - although I feel medication has got a lot to do with my current issues, I havent completely ruled out short term Diazepam.
Neurologist secretary had 'PC issues' so not getting the melatonin until tomorrow now.
If that doesn't work, I may have to try the Diazepam
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