Leine
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Gender:
Female
Birthday:
Oct 1, 1990 (Age: 33)
Location:
Sweden
Occupation:
Registered Nurse

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Leine

Member, Female, 33, from Sweden

You have to be healthy to be sick. incredibly hard to fight to get right in the healthcare system when you can't even take care of yourself. Feb 13, 2024

    1. Skriet
      Skriet
      Hej!

      Lustigt nog är jag också en svensk sjuksköterska, med H & T. Hör av dig om du vill snacka lite. :)
    2. dipp
      dipp
      Also, I don´t know if this would interest you in anyway, but I started Swedish lessons on September in order to try to improve my mood. I was enjoying a lot the lessons but since this started again I struggle a lot just assist.
      I want to let you know that you have all my support and I hope that you find a way to live with this.
      1. aab likes this.
    3. dipp
      dipp
      I had other sounds that I heard everywhere also, and had a lot of different sounds, but this is just too high frequency and it´s very difficult to live with, it´s almost like a dog whistle. I don´t know what to do and don´t know if I can live like this. If only I could go back to my previous T, I would be more than happy..
      1. aab likes this.
    4. dipp
      dipp
      Hi! I have read some of your posts and I relate a lot to them.
      Just wanted to let you know that I´m in a similar position than you. I have habituated to all my previous worsenings, which have been a lot through the years, but a month ago I developed an ultra-high frequency sound and it´s unbearable right now, I can hear it almost everywhere and it´s disgusting.
      1. aab likes this.
    5. Leine
      Leine
      You have to be healthy to be sick. incredibly hard to fight to get right in the healthcare system when you can't even take care of yourself.
      1. Yosemite, kingsfan, Chess and 2 others like this.
      2. Chess
        Chess
        well stated!
        Feb 14, 2024
        Leine likes this.
      3. kingsfan
        kingsfan
        I've lost quite a bit of money from not having the energy to fight with my American insurance company and doctors for reimbursements and charges that exceed their original quotes.
        Feb 15, 2024
    6. Leine
      Leine
      Doctor refused sick leave. Despite S-thoughts, not getting out of bed, H, crying, anxiety, he told me I am not depressed. 100% Back to work.
      1. aab likes this.
      2. View previous comments...
      3. RunningMan
        RunningMan
        Strange things happen with health care. I was prescribed 3 Lorazepam per day and a 90 pill prescription. When I got my monthly refill, it was only 30 pills. I can't can get 90 doses out of that. I called in, and the nurse said I would get addicted taking 3 times per day and just told me to refill. But I had been told to take 3 times per day.
        Feb 13, 2024
        gameover likes this.
      4. Jupiterman
        Jupiterman
        Is your tinnitus not a bigger problem than the depression?

        Can you get another doctor’s opinion?

        Most doctors don't take tinnitus seriously and fewer even believe there is such a thing as severe tinnitus.
        Feb 13, 2024
        gameover likes this.
      5. kingsfan
        kingsfan
        @Leine My tinnitus worsened after Covid-19, but it did improve after many long months. Not quite back to its previous baseline, but it was much more tolerable. There's still hope yours will improve.
        Feb 15, 2024
        gameover likes this.
    7. Leine
      Leine
      Today is a tough day. Hard to even get out of bed. Hear new tones over my already 15-20. Wish they could just disappear.
      1. aab and brixenbrixen like this.
    8. Leine
      Leine
      Do you believe there will ever be a cure? Or something that reduces T? I pray for Susan Shore device.
      1. RunningMan likes this.
      2. RunningMan
        RunningMan
        I think the Shore device will reduce tinnitus to a noticeable degree in about 30% to 40% of the users, plus some will have a placebo effect as well. Hopefully it works a lot better than the disappointing results of Lenire. I'm skeptical of any medication treatments anytime soon.
        Feb 11, 2024
        gameover and Leine like this.
    9. Leine
      Leine
      What does your T sound like? Mine sounds like the whole head is a computer and a fridge beeping and being sanded and rained heavily on.
      1. Jammer
        Jammer
        You really don't want to know.
        Feb 11, 2024
        Leine likes this.
    10. Leine
      Leine
      Today I started CBT with tinnitus specialists. Anyone tried CBT and been helped to better learn to live with T?
      1. View previous comments...
      2. Leine
        Leine
        @AfroSnowman Every time my T has worsened I have managed to habituate and get my life back, my H has also decreased. But now my T is much, much louder and so many, many more sounds. Damn, how I miss my old life and my old T. But I hope that in time I can be happy again. Wish you the same.
        Feb 11, 2024
        biggy312 likes this.
      3. RunningMan
        RunningMan
        The peaceful cabin in the snowy woods in front of the fireplace suddenly isn't peaceful once severe tinnitus enters the picture. Suddenly I need to escape.
        Feb 11, 2024
        Leine likes this.
      4. AfroSnowman
        AfroSnowman
        @Leine I've moved past the hoping for improvement or mourning the past stage, all that matters is I continue to try from where I am right now to have the best life I can going forward. CBT may help or it won't but it is part of that trying.
        Feb 11, 2024
        BrOKeN_1 likes this.
    11. Leine
      Leine
      After T and H worsened, my body is my prison and my world is a wall. An innocently convicted prisoner with a life sentence.
      1. 4Grace and Karolina like this.
    12. Leine
      Leine
      I have seen so much suffering due to work in healthcare. But could trade lives with many of them if only my T could calm down.
      1. gameover likes this.
      2. 4Grace
        4Grace
        @Leine - I feel this one. I can’t imagine anything much worse. There is just as bad but this is top of the line. Eating worsens me, noise worsens me, can’t do anything … this thing has touched all aspects of my life. Destroyed all of it. Up until a few days ago I could go out. I lost that…
        Apr 13, 2024
    13. Leine
      Leine
      When I was a child I was afraid of being paralyzed or getting tinnitus. Was only 14 y.o, at my first disco on a language trip. Glass ears.
      1. RunningMan likes this.
      2. View previous comments...
      3. Tryn2BHopeful
        Tryn2BHopeful
        I didn't even know this was possible until I got it. I thought losing my hearing meant having to turn up the TV. Now I can barely stand the sound of it.
        Feb 8, 2024
      4. Leine
        Leine
        @BrOKeN_1 I didn't know about it either until they showed a documentary at school about T. Remember coming home and listening to the silence and realizing it could go away.
        Feb 9, 2024
        BrOKeN_1 and RunningMan like this.
      5. RunningMan
        RunningMan
        I got some brief instances of ringing as a child with fireworks and caps, but didn't experience more extended ringing until hours out late listening to loud music. I would hear it in bed trying to sleep. But it was gone in the morning until years later.
        Feb 9, 2024
        Leine and BrOKeN_1 like this.
    14. Leine
      Leine
      Daily suicidal thoughts but I dont dare to take my own life. Walks around like a shell. Finding no joy. Everything is dark.
    15. Leine
      Leine
      My latest morse code tea kettle/beep tone makes me feel nauseous and cold sweaty. Heard everywhere. Is it possible to get used to it?
      1. streifzug
        streifzug
        I also have the morse code in my left ear. It's my favorite!
        Feb 8, 2024
        Leine likes this.
      2. Leine
        Leine
        @streifzug I have a lot of them. I think my messy brain loves them so it want me to listen to them too. What does your T sounds like?
        Feb 8, 2024
        streifzug likes this.
      3. streifzug
        streifzug
        it's a monster :( I think it sounds like one huge dental drill sound mainly around 8000khz made up off a bunch of smaller dentist drills left, right and center. like a proper monster it's pretty scary.
        Feb 9, 2024
    16. Leine
      Leine
      I feel so, so tired but impossible to rest. Hard to fall asleep. Wakes up several times at night. since Dec 21 2023, goodbye life.
      1. tpj, aab, gameover and 1 other person like this.
      2. View previous comments...
      3. RunningMan
        RunningMan
        Potential COVID worsening T concerns me more than the vaccination causing T. For sleep, I was really hoping my brain could get used to it and be able to sleep better, but I'm really not seeing any improvement in 2 years. I've done all the sleep hygiene research, tried supplements, THC, CBD - no help.
        Feb 7, 2024
        Leine and gameover like this.
      4. Leine
        Leine
        @RunningMan I agree, I was so afraid of covid because of T, but after this I'm terrified. Sorry to hear that nothing you tried worked. Missing falling asleep in peace and waking up refreshed.
        Feb 8, 2024
        RunningMan likes this.
      5. Leine
        Leine
        @gameover Yes, Covid is very sneaky. Good you are having better days despite the suffering and that your T is calming down during the day, that is a step in the right direction. I hope with time you get well again, despite T and H.
        Feb 8, 2024
        Mark F. likes this.
    17. Leine
      Leine
      My life was beautiful before this severe. Fuck this T and H. You have destroyed everything. I cant live like this.
      1. tpj, gameover and streifzug like this.
      2. View previous comments...
      3. streifzug
        streifzug
        I really hope you get better!
        Feb 7, 2024
        gameover, Leine and tpj like this.
      4. Leine
        Leine
        Guten Abend @streifzug I understand how you feel living with your T, its hard. Life will not be the same as before with loud T. Have read your thread and I am very sorry to hear that you also suffer from schizophrenia. I don't have it myself, but have people close to me and have also worked with patients with schizophrenia, so have a certain understanding.
        Feb 7, 2024
        streifzug, tpj and gameover like this.
      5. Leine
        Leine
        @streifzug I don't wish T on my worst enemy or getting chronically ill in any other way. Thank you for your concern, I also hope you feel better soon. Although it is very, very difficult, we are not alone.
        Feb 7, 2024
        streifzug, tpj and gameover like this.
    18. Leine
      Leine
      Yesterday a new tone on my 15-20 other terrible tones. Sounds like beeping in the distance. Heard everywhere. Can't handle this.
      1. gameover and Karolina like this.
    19. Leine
      Leine
      After covid my T just gets worse and worse. More and more tones. I can hear my T everywhere. This hyperacusis is killing me. How to survive?
      1. tpj and gameover like this.
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  • About

    Gender:
    Female
    Birthday:
    Oct 1, 1990 (Age: 33)
    Location:
    Sweden
    Occupation:
    Registered Nurse
    Tinnitus Since:
    06/2005
    Cause of Tinnitus:
    Acoustic trauma