Leine

I've lost quite a bit of money from not having the energy to fight with my American insurance company and doctors for reimbursements and charges that exceed their original quotes.

Strange things happen with health care. I was prescribed 3 Lorazepam per day and a 90 pill prescription. When I got my monthly refill, it was only 30 pills. I can't can get 90 doses out of that. I called in, and the nurse said I would get addicted taking 3 times per day and just told me to refill. But I had been told to take 3 times per day.

Is your tinnitus not a bigger problem than the depression?

Can you get another doctor’s opinion?

Most doctors don't take tinnitus seriously and fewer even believe there is such a thing as severe tinnitus.

@Leine My tinnitus worsened after Covid-19, but it did improve after many long months. Not quite back to its previous baseline, but it was much more tolerable. There's still hope yours will improve.

I think the Shore device will reduce tinnitus to a noticeable degree in about 30% to 40% of the users, plus some will have a placebo effect as well. Hopefully it works a lot better than the disappointing results of Lenire. I'm skeptical of any medication treatments anytime soon.

You really don't want to know.

@AfroSnowman Every time my T has worsened I have managed to habituate and get my life back, my H has also decreased. But now my T is much, much louder and so many, many more sounds. Damn, how I miss my old life and my old T. But I hope that in time I can be happy again. Wish you the same.

The peaceful cabin in the snowy woods in front of the fireplace suddenly isn't peaceful once severe tinnitus enters the picture. Suddenly I need to escape.

@Leine I've moved past the hoping for improvement or mourning the past stage, all that matters is I continue to try from where I am right now to have the best life I can going forward. CBT may help or it won't but it is part of that trying.

@Leine - I feel this one. I can’t imagine anything much worse. There is just as bad but this is top of the line. Eating worsens me, noise worsens me, can’t do anything … this thing has touched all aspects of my life. Destroyed all of it. Up until a few days ago I could go out. I lost that…

I didn't even know this was possible until I got it. I thought losing my hearing meant having to turn up the TV. Now I can barely stand the sound of it.

@BrOKeN_1 I didn't know about it either until they showed a documentary at school about T. Remember coming home and listening to the silence and realizing it could go away.

I got some brief instances of ringing as a child with fireworks and caps, but didn't experience more extended ringing until hours out late listening to loud music. I would hear it in bed trying to sleep. But it was gone in the morning until years later.

I also have the morse code in my left ear. It's my favorite!

@streifzug I have a lot of them. I think my messy brain loves them so it want me to listen to them too. What does your T sounds like?

it's a monster :( I think it sounds like one huge dental drill sound mainly around 8000khz made up off a bunch of smaller dentist drills left, right and center. like a proper monster it's pretty scary.

Potential COVID worsening T concerns me more than the vaccination causing T. For sleep, I was really hoping my brain could get used to it and be able to sleep better, but I'm really not seeing any improvement in 2 years. I've done all the sleep hygiene research, tried supplements, THC, CBD - no help.

@RunningMan I agree, I was so afraid of covid because of T, but after this I'm terrified. Sorry to hear that nothing you tried worked. Missing falling asleep in peace and waking up refreshed.

@gameover Yes, Covid is very sneaky. Good you are having better days despite the suffering and that your T is calming down during the day, that is a step in the right direction. I hope with time you get well again, despite T and H.

I really hope you get better!

Guten Abend @streifzug I understand how you feel living with your T, its hard. Life will not be the same as before with loud T. Have read your thread and I am very sorry to hear that you also suffer from schizophrenia. I don't have it myself, but have people close to me and have also worked with patients with schizophrenia, so have a certain understanding.

@streifzug I don't wish T on my worst enemy or getting chronically ill in any other way. Thank you for your concern, I also hope you feel better soon. Although it is very, very difficult, we are not alone.