BB23

Take care of yourself mate. I hope they can help you out. Sending you strength

❤️❤️ you are not alone. With God anything is possible.❤️❤️ These are not empty words.

Hope you're alright mate. Keep up the fight

Yeah, I've had those.... even back to back at one point. I feel like I can function reasonably well on 4 hours and am able to get 5+ a lot of the time with the assistance of multiple meds.

I'm shadow dancer over there. I don't think the kV7 stuff will do much for vss. I believe it's all kcc2. But let's see... I hope it helps with both vs and tinnitus

Have you tried rhe supplements?

@Utdmad89 what is there for us to try other than prescription drugs...

What dosage did he prescribe?

@Pinhead why are you prescribed mirt? If it's for sleep, try other means, this isn't a sleeping aid. Also you will hit tolerance and it will take your sleep away after some time. it has a black box warning for suicidal ideations. It gave me vss/hppd and fried my histamine/dopamine receptors. Turned my life into hell. Do you want to risk it?

@Pinhead many people on surviving antidepressants committed suicide after this poison. Go read the stories of muddles, tramond to name a few. There's kata who's also dead on the neurotoxicity Facebook page among many others. Also Robin Williams was on it when he died.. the guy who crashed the plane In Europe a few years back on purpose, also got vss on it.

❤️❤️

@RunningMan I guess everyone's brain is different. I find Hydroxyzine hits me like a tranquilizer dart. More reliable than a Benzo for inducing drowsiness. Only take occasionally and haven't built any tolerance. For me sometimes Benzos have the chance of producing a paradoxical reaction....a feeling like getting buzzed on alcohol: my skin gets kind of tingly and I get light headed but I'm fully amped up and awake.

@Varda, anecdotal stories are on reddit. I got spiked but it was so loud i couldnt hear my mom talk over it, cant risk it being permanent again.

Try make yourself tired and sleeping should be easier, I'd recommend to do some cardio before sleeping might help.

Only time will tell, I believe there will be something at least treatment, but the question is how long?

I believe something will. The question is can we hang on in there on faith? I'm not sure I can....

@BB23 what does it help, but just saying i symphatize..

But yea, with hearing pro inside my ears, the crackling is much quieter. It also depends on my posture and other things. I think those tubes equalize pressure?

@Kiyomi I feel some strange physical sensations when I swallow. Assume the Tensor tympani muscle is tugging on other stuff in weird ways inside the ear..

When I have incidents of TTTS fluttering in my left ear while listening to speaking, putting an earplug only in my right ear will stop it. I'm not sure earplugs help with the occasional TTTS thumps.

Who is that?

Yes, we can do that! Just met him again at the TRI conference and he's very approachable. I really like his work...

All the why's and what ifs doesn't serve any purpose @BB23 other than being counterintuitive for any chance of acceptance and habituation. We could all ask ourself that question, and I've been through it many times myself. Ive stopped asking those questions to myself long time ago as it will only make one miserable.

I was selective about people. For the most part I could ignore them. Now I can't because they invade me with their loud ways. Hate people 100x more now. This is extremely sad.

@gameover i dont want to interact with doctors or anyone, i hate interacting with people and now i am dependant on others to help me out...

It is all so meaningless

Agree. I often wonder if this planet is indeed hell.

For the most part the world is a beautiful place. People are beautiful. Most people, even the poorest are happy. The poorest countries in the world experience the least anxiety and depression. Did you ever see kids playing in war torn countries. I don’t know. Outside of my soul everything looks like a dream.

Just a fact check: No one was getting 'nuked' before the industrial revolution.

I feel this. You are not alone.

Same :( narcissist got me caught up.

@BB23 - you are incredibly strong. Honestly. Much stronger than me.

I didnt realize I was being Narcissist absued till 35.. been stuck in fight or flight all my life. I think this is number one reason why I got this shit. Been taught to ignore gut

Welcome to the club. There's actually a very strong link between autism and tinnitus, we're far more sensitive to sounds and it seems easier to develop hearing issues through that.

Made you different. Has given to a different view of this life. Not worse. Not better. Just your own. No one here gave themselves tinnitus knowingly. Therefore NOONE is at fault.

Don't be too hard on yourself @BB23 Autism is a spectrum and that could make it difficult to get the right diagnosis and adequate help, but as of late there's luckily more public awareness about it and that also helps to make society more inclusive for people like us

The "floxies" awareness stuff online and them getting a black box warning on that stuff really saved my life. Almost every time I go to a doctor the very first thing they do is try to push fluoroquinolones on me.

When I tell them I won't be taking them without fail the doctards give me a dirty look and tell me "wtf are you crazy? you don't know what you're talking about fluoroquinolones are fine."

@Varda street dealers have the same mentality. they wouldnt tell you their products are bad.

Feels like.

I estimate within 6 months for me, possibly sooner.

Well, said @RunningMan

@RunningMan I hope it wasn't all for nothing or we get to continue in another form.

Nah. We're dead, we don't exist.

However how I have been treated since getting T, has made me lose all faith in doctors.

@Tryn2BHopeful if it were just the t, I'd be ok with it. There is a neurotoxicity page on facebook, my symptoms align with the things mentioned there...

I once had to go to a doctor for a simple broken bone and the idiot couldn't even manage to bolt it back together without cutting a huge nerve cord in the process.

@Tryn2BHopeful sleep and vision is fucked, have constant headaches. sleep especially fucked

Fuck the ignorant doctors!!! All they had to do was tell us time and quiet is our only survival tool!!!

I managed to avoid fluoroquinolones because of the "floxies" harm awareness and black box warning stuff. I think the same sorts of things should be done around azithromycin which I had thought was a "well tolerated antibiotic"

Muscle relaxants are all serotonergic, they might exacerbate your T or give you Visual Snow syndrome, I didn't try any. Those sensations are indicative of TTTS, on top of those my ears vibrate to loud sounds and touching my face. That's how I know I have TTTS.

People say magnesium helps them, some people on facebook support groups say antiepileptics help them... IDK.