Comments on Profile Post by Bbop

  1. sven1987
    sven1987
    Hey Bbop. I haven't really been active here lately, which probably is a good sign. My tinnitus has diminished, so my life has improved. The progress has been very slow and at first I thought I was habituating, but now I'm certain the noise has gone down. When I wake up in the morning I can hear it only slightly. Have you noticed any improvement yourself?
    Sep 3, 2017
  2. Bbop
    Bbop
    It was uncanny reading your story at how alike my symptoms were! Been really tough. Hopefully mine will do the same. So happy for you! Im going on 7 weeks now. Been some improvement the last couple of week. Was yours going up and down a lot? How long ago was your exposure? Made a mistake today. Had a video blast through my earphones accidentally today for a second. So fingers crossed I don't have a set back.
    Sep 4, 2017
  3. Bbop
    Bbop
    Mine almost worse during the day? Was yours the same? What sounds did you hear? Would love to keep in touch. Can you tell me what measures you took to improve yours?
    Sep 4, 2017
  4. sven1987
    sven1987
    Mine went up and down a lot and it still does. My noise exposure was in the 4th of May. And don't worry about the earphones thing. I've had a lot of short loud noise accidents since getting tinnitus and it never caused a permanent increase of the tinnitus.
    Sep 5, 2017
  5. sven1987
    sven1987
    Mine is always low in the morning, but ramps up during the day. In the beginning I had screeching, buzzing, ringing and hissing sounds, but now it's mostly just white noise. I never took any extra measures apart from using earplugs in loud environments. I took some vitamin supplements, but they didn't really help.
    Sep 5, 2017
  6. sven1987
    sven1987
    In any case don't put a timeframe on the tinnitus going away. I'm not sure if mine will even completely resolve. It could take a year, maybe longer. But it wil get better, remember that!
    Sep 5, 2017
  7. Bbop
    Bbop
    Thanks Sven. You're right. Have to keep telling myself that. I'm hearing about 5 different noises. Usually a few a once. Had a hearing test today. Have above average hearing, go figure. So all specialists and audiologists are scratching their heads. Have you had your hearing tested?
    Sep 5, 2017
  8. Bbop
    Bbop
    I'm taking a whole bunch of vitamins as well sceptical whether they're a waste of time as well. But I'm up for anything that could possibly help. Even if it's a bit of a placebo. I work in aviation. So I'm having to rethink my whole career and life at this point. Adding to the stress of everything.
    Sep 5, 2017
  9. Bbop
    Bbop
    I hope it only gets better for you!
    Sep 5, 2017
  10. sven1987
    sven1987
    Yes, I also had my hearing tested and it showed I had no hearing loss whatsoever. Seems tinnitus is more related to the brain. It's horrible that you may have to give up your job because this. Tinnitus really ruins everything.
    Sep 5, 2017
  11. sven1987
    sven1987
    Do you also have hyperacusis?
    Sep 5, 2017
  12. Bbop
    Bbop
    I think so. I get some pain with noise every now and then, headaches and some dizziness. Was really bad at the start but has improved significantly. How loud is yours? Are you hearing high pitched cricket sounds? I find them the most annoying.
    Sep 6, 2017
  13. Bbop
    Bbop
    Ok definitely have hyperacusis. Happened to me yesterday pretty bad. Do you know what the treatment is for that? Do you have it in one ear or both?
    Sep 6, 2017
  14. sven1987
    sven1987
    It is said that hyperacusis will go away on it's own. Mine is also still there, but not as bad as it used to be. My tinnitus is in both ears, but it seems worse in my left. It used to be loud enough to easily hear it above the tv, but now I can only hear it when I'm in a quiet room.
    Sep 7, 2017
  15. sven1987
    sven1987
    My tinnitus woke me up last night and it was louder than before going to sleep, so I guess I'm experiencing a spike. Don't know what caused it though.
    Sep 7, 2017
  16. sven1987
    sven1987
    I would like to add though that progress probably won't be noticeable in days. I can only compare my tinnitus to how it was a month or 2 ago and say that it has improved. Is it better than last week? Couldn't tell you, so please hang in there. I've read a lot of stories of people's tinnitus taking 12 to 18 months to fade.
    Sep 7, 2017
  17. Bbop
    Bbop
    Good to hear. My hyperacusis seems to come and go. But I often have the feeling of pressure in my ears and eardrum feels tight. I also sometimes wake up night with pain and my eardrum moving and fluttering. Sorry to hear you're going through a spike. Did the DR explain to you why you had fluid in your ear?
    Sep 9, 2017
  18. Bbop
    Bbop
    Just curious because I was told that may be the cause my of my T. But all fluid is gone obviously and still have T. Have you seen a whole bunch of specialists as well? Really opened my eyes. Couldn't believe how some drs treat people with this condition.
    Sep 9, 2017
  19. Bbop
    Bbop
    I was told I have a hypersensitivity to noise. That's why I have T with no or minimal hearing loss. I was told by another that is could be TMJ. So was on soft foods and heat packs for 1 month. Even though I was convinced it was noise exposure.
    Sep 9, 2017
  20. sven1987
    sven1987
    My doctor told me I had fluid behind my eardrum, but my ENT told me I didn't, so I don't know.
    I never really asked what kind of noise you were exposed to. Was it a concert like me?
    Sep 10, 2017
  21. Bbop
    Bbop
    Nope was exposure in a helicopter. I was as rescue crew in helicopters. I was wearing protection but my headset slipped off quite a few times letting noise (approx 110db) as I was moving around the cabin. Wasn't even for that long to cause damage. But it must have been long enough for me! Would do anything to take that flight back.
    Sep 10, 2017
  22. Bbop
    Bbop
    Do you know much about steroids for hyperacusis? I know it has to be within 72 hours of onset. But would it work for someone who has the slow onset of it? What symptoms are you getting of hyperacusis? I've had ear burning and some
    Tingling on my face lately. Symptoms are always evolving. Very frustrating.
    Sep 10, 2017
  23. sven1987
    sven1987
    I'm afraid I won't be of much help when it comes to steroids. My hyperacusis mainly manifests itself as pain in my ears when it comes to hearing certain noises, like dishes clanging, compressed air and car brakes. Also my ears feel full, but only sometimes. In the beginning I had it all the time.
    Sep 10, 2017
  24. sven1987
    sven1987
    You also said you experience ear fullness and fluttering, which could also be caused by paying too much attention to your ears and sound. There is a muscle inside your ear that contracts to protect your hearing from loud noise, but by paying too much attention to sound could cause this muscle to overreact, causing fluttering etc.
    Sep 10, 2017
  25. sven1987
    sven1987
    So weird that despite little exposure time you still got tinnitus. Have you been exposed to this kind of volume more than once?
    Sep 10, 2017
  26. Bbop
    Bbop
    Yeah a few seconds maybe 8 times over the last 2 years.
    Sep 11, 2017
  27. sven1987
    sven1987
    How are you doing Bbop?
    Sep 15, 2017
  28. Bbop
    Bbop
    Yeah pretty good. Definitely subsided and havent had a spike in about a week and a half. It's not bothering near as much anymore...coming to terms with it. Just white static noise in quiet rooms. Still getting pain and aching. Im also very sensitive to pressure changes. Just driving and going up slight hills my ears feel like they have pressure in them and are popping heaps. Which is not normal for me.
    Sep 17, 2017
  29. Bbop
    Bbop
    You had this at all? Because of this I'm not sure whether to go on my overseas trip I have planned in regards to the long haul flight from Australia. I'm worried about this and doing more damage. How are you? How's your ears?
    Sep 17, 2017
  30. Bbop
    Bbop
    I have also been diagnosed with TTTS...
    Sep 19, 2017
  31. sven1987
    sven1987
    Hey Bbop, it's nice to hear that tinnitus bothers you less. I can't comment on pressure changes. Maybe when taking the elevator, but I never noticed any difference. I know there are special earplugs that can be used on airplanes to help with pressure changes, but they're probably expensive.
    Sep 19, 2017
  32. sven1987
    sven1987
    Is there anything that can be doen about TTTS? It probably is the cause of your ear fullness.
    Sep 19, 2017
  33. sven1987
    sven1987
    My T was really quiet last weekend, but the last 2 days haven't been so good. I got a moment of fleeting tinnitus today, but instead of it passing after a few seconds it lasted for a few hours. It scared the living hell out of me.
    Sep 19, 2017
  34. sven1987
    sven1987
    It has subsided, but my T is louder at the moment. Maybe after a good sleep it will return to baseline. Evenings are always the worst for me.
    Sep 19, 2017
  35. Bbop
    Bbop
    Nope it should subside as long as I get on top of it and start getting more positive about the T. It's funny because I have been more positive and no letting it get to me but symtoms keep evolving. Ive learnt so much about the body and the brain. And how much control we don't have.
    Sep 22, 2017
  36. Bbop
    Bbop
    I'm going to try and use this experience. To not take things so serious and enjoy myself. As I'm sure you have already read stress is a major player in T. Going to Set some challenging short and long term goals.
    Sep 22, 2017
  37. Bbop
    Bbop
    I went and saw an amazing audiologist on Monday. Myriam westcott. She was the first specialist who understood what I was going through, listened and gave me great advise.
    Sep 22, 2017