Pinhead
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Jun 15, 2024 at 7:10 AM
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Pinhead

Member, Male, from USA

"I understand, I get migraines." Oh, and they go away? Then you have no idea. Jun 8, 2024

Pinhead was last seen:
Jun 15, 2024 at 7:10 AM
    1. Pinhead
      Pinhead
      The fluctuating squeal in my right ear is really the worst thing. It's just unbearable. I can totally ignore the pure tones.
      1. 4Grace, Sansa and gameover like this.
    2. Pinhead
      Pinhead
      I just want to live. I wish, at least, that I could live while I am alive.
      1. crescentsky, 4Grace, Sansa and 3 others like this.
    3. Pinhead
      Pinhead
      Does anyone remember the Twilight Zone episode where the man breaks his glasses but loves to read? That's what this life feels like.
      1. 4Grace, gameover, tpj and 2 others like this.
      2. RunningMan
        RunningMan
        Apr 24, 2024
        4Grace, Pinhead and gameover like this.
    4. Pinhead
      Pinhead
      I just found out that a coworker has a friend who is housebound with tinnitus. It became progressively worse.
      1. 4Grace, gameover and RunningMan like this.
      2. View previous comments...
      3. 4Grace
        4Grace
        @gameover one guy told me. How loud is going to get. It’s not going to make my head explode. He says after 3 years he just lives. Eats and endures the major spikes. They say that it’s insuring the spikes that leads to habitation.
        Apr 25, 2024
        gameover likes this.
      4. 4Grace
        4Grace
        @gameover I find it hard to accept that my friends are that much different when I know that they are .. they are not impacted by food or clenching or touching the side of your head. I feel like I’m wrong but I at the same time that I need to learn to eat and go out and let it do what it is going to do…
        Apr 25, 2024
        gameover likes this.
      5. 4Grace
        4Grace
        @gameover / I just don’t have a life that will make me think or live different. This is a problem for me. I cut everything out of my life. I cannot reinvent my life. This is FN crazy. The stupidity that got me here drives me insane. Sorry for all the typos and grammar errors. I waiting to see an ENT. Another waist of time!!
        Apr 25, 2024
        gameover likes this.
    5. Pinhead
      Pinhead
      It's such a terrible thing. It's like waking up to find yourself weak and naked again about to be enveloped in a cocoon of cold steel nails.
      1. tpj, gameover, 4Grace and 2 others like this.
    6. Pinhead
      Pinhead
      Woke up today to find my sleeping sounds had turned off overnight. I listened as, slowly, my mind was invaded by hissing and screeching.
      1. gameover, 4Grace, Sansa and 1 other person like this.
      2. BlueMoon86
        BlueMoon86
        I know this feeling well. One day in December I woke up and it was so quiet I thought it had gone. I had to listen for several minutes to find it. Those days are well and truly gone, it's 10/10 24/7 now.
        Apr 23, 2024
        4Grace and gameover like this.
    7. Pinhead
      Pinhead
      Three years and one day.
      1. gameover likes this.
      2. SamRosemary
        SamRosemary
        :| sorry
        Apr 22, 2024
    8. Pinhead
      Pinhead
      Three years ago today, my life shifted catastrophically. Nothing will ever be the same.
      1. weehiru, 4Grace, tpj and 3 others like this.
      2. 4Grace
        4Grace
        This is so true. I feel like an Alien on this planet. I was so happy. I try so hard not to give a shit about this noise. It consumes me beyond words. It’s just to loud and worsens. I have not been able to enjoy anything. The last few days 24/7 stress. Trying so hard.
        Apr 22, 2024
        Pinhead likes this.
    9. Pinhead
      Pinhead
      I get fleeting moments where I remember how deeply happy I felt before tinnitus. They vanish just as quickly, replaced by noise.
      1. Ngo13, weehiru, 4Grace and 1 other person like this.
    10. Pinhead
      Pinhead
      My girlfriend complains that I don't listen to half of what she says. Trust me, I'm trying.
      1. 4Grace, Juliane, HighleyTall and 5 others like this.
    11. Pinhead
      Pinhead
      Get up and prepare for another day in hell without a single moment of happiness or relief. I am in hell.
      1. 4Grace, Juliane, HighleyTall and 7 others like this.
    12. Pinhead
      Pinhead
      I'm really struggling today. I can't keep myself focused. I feel like leaving work and never coming back. My brain won't shut up.
      1. 4Grace
        4Grace
        I was a manger for 23 years. Had to step away. Try all you. Can not to leave work. Besides the money work is a good and needed distraction. Not to say I did not feel like you do everyday when I was working.
        Apr 18, 2024
        L along the way, Pinhead and gameover like this.
    13. Pinhead
      Pinhead
      The auditory nerve is capable of feeling pain. I may not have hyperacusis but, instead, nerve damage. That can be treated.
      1. streifzug, 4Grace, gameover and 2 others like this.
      2. View previous comments...
      3. 4Grace
        4Grace
        How do you treat that nerve damage. I think I have nerve damage too due to high bilirubin in blood. Gilbert Syndrome.
        Apr 18, 2024
      4. Pinhead
        Pinhead
        This is just my conclusion after reading some things. I don’t have pain specifically in response to sound.
        Apr 18, 2024
      5. cjbhab
        cjbhab
        @Pinhead i think i have nerve pain / damage too but im not sure what to do about it. i thought tinnitus was just supposed to be a sound. id be managing better if it was but some days the pain and pressure is insane.
        Apr 18, 2024
    14. Pinhead
      Pinhead
      Looking for a single sign of improvement. I've tried to be so positive, but it never pans out. It's just pure, uncut, false hope.
      1. Juliane, 4Grace, tpj and 4 others like this.
      2. 4Grace
        4Grace
        I hate to agree with you here. I had have tried everything too. Volume and reactivity is everything. I want so bad not to give a shit!!
        Apr 18, 2024
      3. Juliane
        Juliane
        That is why it is the worst kind of gaslighting when "tinnitus therapists" tell us that our mindset and mood define our T volume. Utter BS. It has nothing to do with it. If your T fades, and I sure hope it will, it can do so while you are thinking happy thoughts or wishing you had never been born. T is indifferent to our feelings, as are facts.
        Apr 21, 2024
        tpj likes this.
    15. Pinhead
      Pinhead
      Absolutely terrible today. Both ears ache and my right is blaring. Wondering if it’s infected. It’s unbearable.
      1. 4Grace and L along the way like this.
    16. Pinhead
      Pinhead
      1. weehiru likes this.
      2. weehiru
        weehiru
        Have a Nice Life songs are always so harrowingly beautiful. Music sometimes detail my experiences & feelings better than words can. Post more songs that relate to you if you're up to it, I'd love to listen :)
        Apr 15, 2024
        Pinhead likes this.
    17. Pinhead
      Pinhead
      Next Sunday is my three-year tinnitus anniversary. I plan on getting completely wasted. Things will worsen on MY terms, goddammit!
      1. L along the way, weehiru, tpj and 5 others like this.
      2. SamRosemary
        SamRosemary
        My 2 year is May 1st.
        Apr 15, 2024
        gameover likes this.
      3. Jammer
        Jammer
        Sounds like a good time; I wish I could join you.
        Apr 16, 2024
        L along the way likes this.
      4. eldudebro
        eldudebro
        May 14th is my two year worsening anniversary. Well done on reaching three.
        Apr 17, 2024
    18. Pinhead
      Pinhead
      My friend decided to go for a walk with me. I think he quickly realized that it wouldn’t be relaxing, more like A to B as fast as possible.
      1. Kiyomi and weehiru like this.
    19. Pinhead
      Pinhead
      Sometimes the ringing spikes so loudly it makes my eyes unfocus. Absolutely insane.
    20. Pinhead
      Pinhead
      I recall how hopeful I was maybe a year after this started. It’s only worsened and hope for improvement is gone.
      1. _Shoto_ likes this.
    21. Pinhead
      Pinhead
      The reactivity is the worst part. Not being able to withstand traveling in cars, trains, and buses has left me totally stranded. Not living.
      1. _Shoto_ and Kiyomi like this.
    22. SumGuy
      SumGuy
      How are you doing friend?
      1. Pinhead
        Pinhead
        My standard answer: Not good. Can't do much of anything about it, though. Not really living anymore.
        Apr 9, 2024
        _Shoto_ likes this.
    23. Pinhead
      Pinhead
      Just got a new tone in my left ear. That makes three in each now.
      1. _Shoto_, Sansa and tpj like this.
      2. 4Grace
        4Grace
        :(
        Apr 8, 2024
        _Shoto_ likes this.
    24. Pinhead
      Pinhead
      Every SBUTT is a literal traumatic experience. I start to shake and my adrenaline shoots up. I panic. Two or three a day is actual torture.
      1. Kiyomi likes this.
    25. Pinhead
      Pinhead
      One of the most unbearable parts of being disabled is the unfathomable weight of no longer being able to create. It's just pure hell.
    26. Pinhead
      Pinhead
      I've noticed that things like brakes squealing are much more abrasive to me now. I must be getting hyperacusis, or I'm just more sensitive.
      1. Kiyomi likes this.
      2. View previous comments...
      3. Utdmad89
        Utdmad89
        Sounds like it. Mine just got worse and worse. Then Noxacusis kicked in.
        Apr 4, 2024
      4. crescentsky
        crescentsky
        I started w/o H then I got it in one ear and then both ears and now I get pain @ certain sounds. And now every few days I get this pressure or fullness. It's a fucked up journey.
        Apr 5, 2024
      5. Pinhead
        Pinhead
        @Utdmad89 What was your progression like? I think I may just be 'hyper-aware', but it's incredibly hard to tell.
        Apr 5, 2024
    27. Pinhead
      Pinhead
      Took a 5 day vacation to NYC/Philly. Every day was just too much. It's all just too much.
      1. _Shoto_, gameover and L along the way like this.
    28. Pinhead
      Pinhead
      I slept in silence last night but woke up with hissing, highly reactive ears. Why?
      1. Sansa, L along the way and gameover like this.
    29. Pinhead
      Pinhead
      A strong feeling to no longer engage with the world. A resignation.
      1. _Shoto_, Sansa, Karolina and 4 others like this.
      2. gameover
        gameover
        Yeah. For me that level of suffering makes it simply impossible and impractical.
        Mar 28, 2024
    30. Pinhead
      Pinhead
      Self-help or motivational content no longer applies to you once you're disabled like this. Those things lose their importance. Just survive.
      1. View previous comments...
      2. RunningMan
        RunningMan
        @BB23 Why would you want to have kids first?? Seems that would not be a priority when suffering.
        Mar 27, 2024
        ECP, gameover, ZFire and 1 other person like this.
      3. crescentsky
        crescentsky
        @Pinhead i find those self-help content useless as well.
        Mar 27, 2024
        Pinhead and gameover like this.
      4. BB23
        BB23
        @Utdmad89 @RunningMan I can't explain this to you, I was brought up differently. And we have a crowded extended family who would take care of things.. Also. I'm in constant physical pain with severe insomnia, that kinda puts some things into perspective. Or maybe I'm crazy from sleeping an hour a night...
        Mar 28, 2024
        RunningMan likes this.
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  • About

    Gender:
    Male
    Location:
    USA
    Occupation:
    Nonprofit
    Tinnitus Since:
    04/2021
    Cause of Tinnitus:
    Unknown
    "Unbearable, isn't it? The suffering of strangers, the agony of friends. There is a secret song at the center of the world ... and its sound is like razors through flesh."