Hello Fellow Sufferers

Hi All
I have a fun trio of Tinnitus, Hydrops and hearing loss. No vertigo. Have been diagnosed with atypical Meniers but no-one seems sure. Hydrops confirmed with ECOG in both ears. Hearing loss and tinnitus only on right side and is variable but neither goes away completely.

This all came on suddenly - a week before my 50th birthday! What a way to celebrate that milestone birthday.

Wearing a hearing aid has at least helped the hearing loss and sometimes with the tinnitus.

My biggest frustration is doctors that give a diagnosis and then basically leave you on your own to live with it. No support whatsoever! Glad to have found this site!

 

Welcome to the forum. Tell me about the frustration about the doctors. None of them could do anything for me too unless they are like our doctors in the Doctor's Corner who either have had T themselves or are specialized with treating T. My ENT uttered the unthinkable "The only way I can stop your ringing is to SHOOT you!". Gosh!!!

You will find many success stories here who may help you in your journey T and hydrops. You can search the forum also as we have many threads on hearing loss and hydrops. Have you tried masking your T? If not and if wishing to do so, here are some suggestions. Take care. God bless.

1) Mask at bed time if having trouble sleeping, by using a sound pillow or sound machine with pillow speakers. There are good sound machine & pillow therapy systems like this one: https://www.amazon.com/Sound-Oasis-...d-Oasis-Therapy-System-Speakers/dp/B00MH5HKTA

2) If you need masking on the go, try load an ipod with nature sounds or music using itune. If you have a smart phone, you can download free APPs for soothing or T-masking sounds. Use wisdom in the use of headphones or earbuds as extended use or excessive volume may hurt your ears. Try set the volume slightly below that of your tinnitus.

3) With PC & speakers, you can try these excellent masking sounds to see which one masks best:

TT's excellent audio player: https://www.tinnitustalk.com/audioplayer/

or this online sound library, particularly the self-mix nature sounds: https://mynoise.net

or download free sound generator ‘aire freshener’: http://www.peterhirschberg.com/mysoftware.html

or click play to mix these sounds with this simple sound generator: http://asoftmurmur.com/

or search youtube with words like tinnitus masking sounds, rain, white noises etc.

 

Thanks o much for your reply. It is good to feel that I am not alone in this journey. I will check out the websites you suggest. I am using various bird sounds as maskers. My hearing loss is low frequency so the rain and wind sounds dont work. I am getting quite fond of birds!