I Read About People Who Cope with Tinnitus When I'm Down...??

Discussion in 'Support' started by Marie79, Jan 22, 2017.

    1. Marie79

      Marie79 Member

      Location:
      USA
      Tinnitus Since:
      2/1/16
      Cause of Tinnitus:
      Ear infection
      So when I'm down or having a bad T day i read about others with T that are just fine. It helps me.

      Anyway sometimes I google "celebrities with T." Not that I particularly worship them or anything but it helps to see that someone you may have seen look happy and healthy are seemingly ok.

      Alot of these lists talk about hearing loss when the list says "celebrities that have T." It's find of frustrating because although hearing loss is an impairment it is not T.

      Or do they have T? I'm a little confused on that.
       
    2. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      You can have T without hearing loss and vice versa.
      You can also have mild, moderate, severe, excruciating T.
      You can also have mild, moderate, profound hearing loss.
      All combinations are possible.

      I don't find it particularly useful to compare your T with someone else's since you don't know what they feel. And even if you could somehow know, what would be the purpose of the exercise?
       
    3. Rasmus
      Cool

      Rasmus Member

      Location:
      Denmark
      Tinnitus Since:
      around 02/2015
      Cause of Tinnitus:
      Not sure maybe to much noise
      • Like Like x 1
    4. Sam Bridge

      Sam Bridge Member Benefactor

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Loud music/gigs probably
    5. Rasmus
      Cool

      Rasmus Member

      Location:
      Denmark
      Tinnitus Since:
      around 02/2015
      Cause of Tinnitus:
      Not sure maybe to much noise
      i was born with mild T i could only hear it when there was no sound around me at all now i can hear it when im driving in a car :/
       
      • Helpful Helpful x 1
    6. Jake007

      Jake007 Member Benefactor

      Location:
      Nebraska
      Tinnitus Since:
      December 2016
      Cause of Tinnitus:
      hearing loss for long time, chainsaw, infections
      I see alot of kids/teens with headphones on about everytime I leave the house. More than I ever used to. I can see tinnitus affecting a lot more people in the future.
       
      • Like Like x 1
    7. Alue
      No Mood

      Alue Member Hall of Fame

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      When I'm on medication that lowers my T and makes it more tolerable, I can still hear it while driving in a car if I look for it. Yet that reduction makes the difference between night and day for me. I just have no frame of reference for what other people hear. I've never had "mild tinnitus", just zero tinnitus and then severe tinnitus.
       
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    8. Bobby B
      Fine

      Bobby B Member Benefactor

      Tinnitus Since:
      11/2015
      Cause of Tinnitus:
      Large caliber rifles&machine guns, +30 years of loud clubs
      @Alue
      What medication can lower your T ?
       
    9. Jake007

      Jake007 Member Benefactor

      Location:
      Nebraska
      Tinnitus Since:
      December 2016
      Cause of Tinnitus:
      hearing loss for long time, chainsaw, infections
      Can you compare it to something or describe it?
       
    10. Alue
      No Mood

      Alue Member Hall of Fame

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      Strong medications I don't recommend you take unless you have severe T and are willing to take the risks...


      It's a very high pitched hissing like a dog whistle but a bit lower. Maybe 14-16kHz. It's more in my head than in my ears. Similar to the sound those old CRT televisions make. Or like a pinhole leak in a steam pipe. It's a single tone, but not really a single frequency, sounds like more of a hissing spanning several frequencies.
       
      • Agree Agree x 2
    11. Bobby B
      Fine

      Bobby B Member Benefactor

      Tinnitus Since:
      11/2015
      Cause of Tinnitus:
      Large caliber rifles&machine guns, +30 years of loud clubs
      @Alue
      What is the name ? You mean Xanax/Benzo or ?
      Or trobalt ?
      Crystal meth ?

      PM me if it's an issue
       
    12. Alue
      No Mood

      Alue Member Hall of Fame

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      Retigabine. Like I said, I wouldn't recommend it unless it's severe and you are willing to take the risks.
       
    13. Jake007

      Jake007 Member Benefactor

      Location:
      Nebraska
      Tinnitus Since:
      December 2016
      Cause of Tinnitus:
      hearing loss for long time, chainsaw, infections
       
    14. Alue
      No Mood

      Alue Member Hall of Fame

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      @Jake007 It's always there, never goes away. It does get worse at night or if I don't sleep well. I have hyperacusis too and loud noises seem to make it worse. That being said, it doesn't seem to fluctuate as much as most people's tinnitus.

      What's yours like?
       
      • Like Like x 1
    15. Jake007

      Jake007 Member Benefactor

      Location:
      Nebraska
      Tinnitus Since:
      December 2016
      Cause of Tinnitus:
      hearing loss for long time, chainsaw, infections
      I'm what you would call new, at first it was a loud tone, now it bounces from that to a high pitched dog whistle as yours, sometimes both at same time. Mine is constant always there. The only time I don't hear it is when I'm sleeping. I'm guessing since I'm only a little over a month into this there's no telling what I'll end up with as a baseline. I can hear it going 60mph with window cracked and my t ear is by window. I have a slight case of h, nowhere near what other people have. I was told it'll go away. Mine also seems to get worse at night. Do you have hearing loss?
       
    16. Alue
      No Mood

      Alue Member Hall of Fame

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      No detectable hearing loss in the normal range. Some loss in the very high frequencies >12 kHz, but I have no baseline for those to compare it to. I do have more loss in the 12-16 kHz range in my left ear than I do in my right ear. My left ear was the one facing my acoustic trauma and is worse than the right.

      No telling what will happen with your T. I don't know as much about cholesteatoma as I do about noise induced hearing loss.
       
    17. Rasmus
      Cool

      Rasmus Member

      Location:
      Denmark
      Tinnitus Since:
      around 02/2015
      Cause of Tinnitus:
      Not sure maybe to much noise
      I had this problem to for 1 or 2 weeks it was i 2016 december, i had a very loud sound, i startet out with a low sound in my left ear then it got worse over 1 week it was a insanely loud sound in my left ear and i could only hear it in my left ear, no matter how i turn my head or body i could only hear it when my computer is on so everytime i turn my computer of it stop and i could only hear my normal T again. But after 1 or 2 weeks this did go away by itself and now i only have my normal T and a sound more in my left ear, that sounds like someone is whistles in my ear but this sound is as low as my normal T now, and is has been like that for over 1 mounth now so i think its some kind of scar in my ear after dat experince :/ and now i sometimes have some reactive T, reactive T is sound i only can hear when there is other sounds around me :/ its pretty wired.

      Sorry bad english.
       
    18. Jake007

      Jake007 Member Benefactor

      Location:
      Nebraska
      Tinnitus Since:
      December 2016
      Cause of Tinnitus:
      hearing loss for long time, chainsaw, infections
      My left was at 50db right at 20db. I don't know how to figure kHz, can I figure that out by looking at my hearing test?
       
    19. Jake007

      Jake007 Member Benefactor

      Location:
      Nebraska
      Tinnitus Since:
      December 2016
      Cause of Tinnitus:
      hearing loss for long time, chainsaw, infections
      Reactive t is when you can hear a different t sound with certain noises?
       
    20. Rasmus
      Cool

      Rasmus Member

      Location:
      Denmark
      Tinnitus Since:
      around 02/2015
      Cause of Tinnitus:
      Not sure maybe to much noise
      ye i think so atleast that what i heard, and it match with what i have :/
       
    21. Rubenslash

      Rubenslash Member

      Location:
      Zurich
      Tinnitus Since:
      04/2016
      Cause of Tinnitus:
      Bad luck and bad decisions
      Or that your T gets louder after exposure to (moderate) noise. Sometimes when I try to listen to music, my T just gets louder and I stop listening because it ruins everything.

      Right after my last acoustic trauma, even the voice of someone could spike my T.
       
    22. Foncky
      Tired

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      March 2004
      Cause of Tinnitus:
      Music. Balloon. Genes.
      One year after mine, it still does that :(
       
    23. David G
      Movie buff

      David G Member

      I've read that actor Kiefer Sutherland has profound hearing loss in one ear and partly in the other, due to all the loud noise he's been surrounded by in action movies/tv shows. He can't wear ear protection because he has to hear the cues during the action.

      I'm not sure if he has T though, but I guess it goes with the job he's sacrificed.

      Apparently, Neve Campbell has T too. From too many night clubs.
       
      • Like Like x 1
    24. gorirasan
      Ape-like

      gorirasan Member

      Tinnitus Since:
      08/2017
      Cause of Tinnitus:
      Unknown
      I was doing that today. Bad idea, I stumbled upon some heavy negativity on this forum. This place can be very helpful when you are new to this world, but sometimes people here can really put you down with a bunch of misinformation.

      But reading about Willian Shatner always inspire and helps me.
       
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