Lenire — Bimodal Neuromodulation Treatment by Neuromod Devices

Discussion in 'Treatments' started by Tinnitus Talk, Apr 20, 2019.

    1. Emma33

      Emma33 Member

      Location:
      Australia
      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Trauma
      In Neuromod's media release from about a month ago, they said they were getting ready to roll-out in Ireland and Germany.

      Does anyone have any idea when Germany might happen and where the clinic would be located?

      I'm Australian and have been thinking about going to Ireland, but Germany would be a little bit closer and a bit cheaper - the Airbnb prices for accommodation in Dublin are SO high!!
       
      • Good Question Good Question x 2
    2. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      Maybe. There also may be nerves that need some BDNF or NT-3 to regenerate as well. I think the technology is here but my concern is that it will take a very long time to not only get these things approved but for them to be used in conjunction to regenerate all affected areas.
       
      • Agree Agree x 3
    3. punkaddict
      Tired

      punkaddict Member

      Tinnitus Since:
      03/2019
      Cause of Tinnitus:
      Self-syringing (I think?)
      Anyone else concerned about using this before regenerative treatments in the future, if that might mess things up or 'lock in' the tinnitus so to speak?
       
      • Good Question Good Question x 5
      • Creative Creative x 1
    4. Jack Straw
      Balanced

      Jack Straw Member Benefactor Ambassador Hall of Fame

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Is this true? I didn't know that.
       
      • Good Question Good Question x 3
      • Agree Agree x 1
    5. Ear Drummer
      Heartbroken

      Ear Drummer Member

      Location:
      Canada
      Tinnitus Since:
      03/2003
      Cause of Tinnitus:
      Drummer/Lack of REM sleep/Bruxism|TMJ(?)
      @Don Tinny

      According to Clearance it was pretty severe.

      I know, I have made the same mistakes many times myself, but I think part of ignoring protecting one's ears is because one already has a problem and perhaps doesn't necessarily see a cure or just stops caring all the time. If I was able to hear much less tinnitus or even silence I feel I would be much more careful with my ears. But at the same time, because we know we can fix it again maybe we would never care again? I'm honestly not trying to get down on Clearance as I make the same mistakes, again, just something about the sudden appearance and story seemed odd.
       
      • Like Like x 1
    6. Ear Drummer
      Heartbroken

      Ear Drummer Member

      Location:
      Canada
      Tinnitus Since:
      03/2003
      Cause of Tinnitus:
      Drummer/Lack of REM sleep/Bruxism|TMJ(?)
      @Jack Straw

      I believe I read somewhere within the last year that age related hearing loss isn't actually true. Modern life is just so noisy that most elderly people end up with hearing loss. I just did a quick google search and couldn't find anything though so perhaps I am wrong. It's not such a far out idea though...

      To add: Sorry this wasn't really what you were asking about... but to answer what I believe you were asking about, it seems to me that any hearing loss must be due to the cilia dying, no? In which case there would be accompanying tinnitus?
       
      • Agree Agree x 1
    7. Ear Drummer
      Heartbroken

      Ear Drummer Member

      Location:
      Canada
      Tinnitus Since:
      03/2003
      Cause of Tinnitus:
      Drummer/Lack of REM sleep/Bruxism|TMJ(?)
      For all the reasons they give for why one has hearing loss in old age this suggestion seems to admit right there that it's mostly noise exposure that gives you hearing loss in old age.

      https://www.hopkinsmedicine.org/health/conditions-and-diseases/presbycusis

      What can I do to prevent age-related hearing loss?
      The most important way to prevent age-related hearing loss is to protect your hearing.
      • Avoid loud noises and reduce noise exposure
      • Wear ear plugs or special fluid-filled ear muffs (to prevent further damage to hearing)
       
      • Informative Informative x 1
    8. Martin69
      Artistic

      Martin69 Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      10/2013
      Cause of Tinnitus:
      (Health) Anxiety
      Nothing known yet for Germany.
       
      • Like Like x 1
    9. Oceanick
      Inspired

      Oceanick Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Antibiotics
      Hey all, I’m trying to somewhat accurately test the loudness of my tinnitus for the Lenire questionnaire. Does anyone know of some tone generator either online or as an app where you control the decibel level to match it?

      I imagine it would have to be used with headphones as computer/phone speakers would vary.

      Hoping to fly out from Vancouver to Dublin in late summer to start treatment.

      Also a reminder to everyone to be very careful what antibiotics you take as they can cause or worsen tinnitus.
       
    10. Don Tinny

      Don Tinny Member

      Location:
      Argentina
      Tinnitus Since:
      2017 (worsening)
      Cause of Tinnitus:
      Loud concert with ear plugs
      On the web they have a contact form for professionals. I wonder if they will be looking for clinics in different countries or if they will simply wait to be contacted. If it's the second option I'm totally fried. I guess most professionals will consider it "an unproven treatment".
       
    11. Striveon

      Striveon Member

      Tinnitus Since:
      08/2018
      Cause of Tinnitus:
      Unknown
      How long did it take for your tinnitus to go away and how bad was It? What was the cause of your tinnitus??
       
    12. Jack Straw
      Balanced

      Jack Straw Member Benefactor Ambassador Hall of Fame

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Anyone have any guesses as to how loud the audio from the headphones will be?
       
      • Like Like x 1
    13. Clint Azzopardi
      Woot

      Clint Azzopardi Member

      Tinnitus Since:
      October 2018
      Cause of Tinnitus:
      Not sure, Gentamicin or allaergy or both !
    14. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      I don't know. That's what I've assumed, perhaps wrongly.
       
    15. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      I'd think no. I'm not so sure tinnitus gets "locked in".
       
      • Like Like x 1
      • Helpful Helpful x 1
    16. Candy

      Candy Member Benefactor Advocate

      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Unidentified
      Anyone got an appointment yet? C’mon Neuromod sort it out...

      How come the DailyMail hasn’t picked the story up...

      Every single miracle cure or gadget is on there normally...
       
      • Agree Agree x 2
      • Like Like x 1
      • Funny Funny x 1
    17. GamesB2
      Smoking joe

      GamesB2 Member

      Location:
      Huddersfield, UK
      Tinnitus Since:
      2010
      Cause of Tinnitus:
      Dumb brain
      No idea, woke up with it one day.
       
    18. MarkLud

      MarkLud Member

      Tinnitus Since:
      11/2015
      Cause of Tinnitus:
      Noise/music/unknown
      As someone who has both hyperacusis and reactive tinnitus, I'm dying to know this. (I'll power through either way but I'm hoping it's not too irritating to listen to for us hyperacusis folks).
       
      • Agree Agree x 1
    19. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      Not quiet. This is the main reason for the hyperacusis exclusion I believe. It was louder then I would normally use headphones. I would be fully confident that it's not going to be loud enough to actually cause damage of course.
       
      • Informative Informative x 2
      • Helpful Helpful x 1
    20. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      It's less likely to cause tinnitus because your brain has time to adapt. Slow hearing loss over an extended period of time does not usually cause the brain to wake up one day and panic.
       
      • Helpful Helpful x 1
      • Informative Informative x 1
    21. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Many older people develop tinnitus as result of presbycusis. What we don't know is why some do and some don't.
       
    22. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      No it is not true.
       
    23. Don Tinny

      Don Tinny Member

      Location:
      Argentina
      Tinnitus Since:
      2017 (worsening)
      Cause of Tinnitus:
      Loud concert with ear plugs
      Supposedly the brain adapts better to a gradual loss over the years. The sudden damage, I read, increases the chances of having tinnitus.
       
      • Informative Informative x 2
      • Agree Agree x 1
    24. Heinrich_S7
      Relaxed

      Heinrich_S7 Member

      Tinnitus Since:
      Uncertain
      Cause of Tinnitus:
      noise exposure
      I believe it’s 70dB.
       
    25. acute
      Depressed

      acute Member

      Location:
      Spain
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      Loud music. Stress, long taking meds ?
      I was lurking on Facebook, and sadly I saw this... They are talking about Lenire.

      I'm a little bit sad now...

      1.jpg
      2.jpg

      P.S. I censored the names.
       
      • Informative Informative x 4
    26. Jack Straw
      Balanced

      Jack Straw Member Benefactor Ambassador Hall of Fame

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      That’s... loud. Lol
       
      • Agree Agree x 4
    27. Don Tinny

      Don Tinny Member

      Location:
      Argentina
      Tinnitus Since:
      2017 (worsening)
      Cause of Tinnitus:
      Loud concert with ear plugs
      Surely those who were successful are reading and talking about happier things.

      However, it is unfortunate to read about worsenings.
       
      • Agree Agree x 1
    28. KotaDomowa
      Dreaming

      KotaDomowa Member

      Location:
      Poland
      Tinnitus Since:
      Februar 2018
      Cause of Tinnitus:
      Unknown
      If I understand correctly, a month had passed from the end of the treatment to the tinnitus worsening. It could be for reasons other than the treatment.
       
      • Agree Agree x 2
      • Like Like x 1
    29. Ruse

      Ruse Member

      Tinnitus Since:
      03/2019
      Cause of Tinnitus:
      Hearing loss & TMJ
      Seems a bit suspicious to me the person who claims that they were on the trial but thought it was 6 months long?

      Regardless, the data did show a minority of people who had very little to no change in their THI score.

      It’s also important to note that the programming of the device has been improved since the original release.
       
      • Agree Agree x 3
    30. Heinrich_S7
      Relaxed

      Heinrich_S7 Member

      Tinnitus Since:
      Uncertain
      Cause of Tinnitus:
      noise exposure
      We have far more successful stories than bad ones. The overwhelming majority had nothing but good experiences.

      This person may also have a form of tinnitus that this device doesn’t treat well.

      Same thing when you have surgery, there’s a slight chance of complications. But the majority of people have their problem fixed. But yes, you never want to be that 1% that had a complication.

      To me though, it’s worth it. I had the same fear when I had surgery, but I was a success story.
       
      • Optimistic Optimistic x 3
      • Like Like x 1
      • Agree Agree x 1

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