Levetiracetam (Keppra) Worked for My Hyperacusis

Discussion in 'Support' started by Danny Boy, Apr 1, 2015.

NOTICE About Levetiracetam (Keppra)

Keppra is a prescription medication. It needs to be prescribed by a doctor who will make sure you are safe to use it. Serious adverse effects may occur.
tinnitus forum
    1. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Hello! I have had severe hyperacusis, fans would send my tinnitus crazy and trains etc...And everything was amplified, including tinnitus...However, since I used keppra it's totally disappeared as has Vikings. Good luck people!
       
      • Like Like x 2
      • Informative Informative x 1
    2. Afeef
      Cowboy

      Afeef Member

      Tinnitus Since:
      09/2014
      Cause of Tinnitus:
      Loud noise
      Nice to know that it has helped you @Danny Boy
       
      • Like Like x 1
    3. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      It works on the KV3.1 channels which makes sense why it can work to rid of us hyperacusis. As it works on the auditory processing, it can possibly restore it to normal function.
       
      • Informative Informative x 1
    4. Craig in Cali
      Spaced

      Craig in Cali Member Benefactor

      Location:
      East Bay Northern California
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Someone screaming
      Danny,

      Please let us know the specifics of your usage:
      how many milligrams
      how many times per day
      how long total duration

      Also, how long until you started to have improvement? Did it come on suddenly, or gradually.

      My hyperacusis is killing me. I couldn't care less about the T at this point. I just want to be able to go out to eat in a restaurant or talk with my friends without cringing.
       
      • Agree Agree x 1
    5. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      I'm on 500mg keppra twice a day. I take one in the afternoon and one at night.
       
    6. Craig in Cali
      Spaced

      Craig in Cali Member Benefactor

      Location:
      East Bay Northern California
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Someone screaming
      Thanks. How long are you planning on staying on it?
       
    7. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      2 months maybe.
       
    8. Craig in Cali
      Spaced

      Craig in Cali Member Benefactor

      Location:
      East Bay Northern California
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Someone screaming
      Awesome. Looking forward to knowing how the H does after you stop.
       
    9. Rube
      Fine

      Rube Member Benefactor

      Location:
      U.S.A
      Tinnitus Since:
      7/2014
      This is great news. As another member asked how long from when you started keppra did the improvement In H happen?
      Does anyone know if @Viking is still H free?
       
    10. @Danny Boy *if* I can get a doctor to script me this, I will try it.
       
      • Agree Agree x 1
    11. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Viking said he's completely h free as am I. I only took it for a few days. This drug works for sure.

      Don't see why you wouldn't be able to get it, as it's given to babies from 1 month orally. Anyway, no more hypercusis is fabulous! I hated when fans used to make it go crazy!
       
    12. Rube
      Fine

      Rube Member Benefactor

      Location:
      U.S.A
      Tinnitus Since:
      7/2014
      That's great news as he has been off keppra for a couple of months now and you found relief after a few days. Looking forward to seeing if you experience the same lasting improvement!
       
    13. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      This could save millions of lives! Hyperacusis can be far worse than tinnitus, so the word need to get out there! Doesn't anyone find it funny how they said they don't understand hyperacusis and couldn't cure it, yet there's a cure out there!? They supposably don't understand the mechanisms of how keppra works, so go figure.
       
    14. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Well, it's a 100% success rate so far...Me and Viking are the only two to try it and we are 100% cured of h.
       
      • Like Like x 2
    15. ruben ruiz

      ruben ruiz Member

      Location:
      Tucson, AZ
      Tinnitus Since:
      2012
      Cause of Tinnitus:
      I believe it was meds and stress
      Is Kepra ototoxic? Does it not elevate yout T? I hope you have some long turn results.
      MY H elevates big time in the evening Ive become a anti-social.
      Thank you Danny.
       
    16. Craig in Cali
      Spaced

      Craig in Cali Member Benefactor

      Location:
      East Bay Northern California
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Someone screaming
      @Danny Boy
      One other question. You're taking Trobalt also, right? So is your opinion that the reduction in H is due to the Keppra mostly, or perhaps a combo?
       
    17. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Trobalt never eliminated hyperacusis. Keppra did though. Viking just took keppra on it's own, so must be keppra not trobalt.

      Anyway, I just tried my white noise masker and the tinnitus never reacted to it, so I can confirm 100% hyperacusis is gone.
       
      • Like Like x 3
    18. Ha! you're not from Canada are you..or female with "anxiety" believe me, chances are I won't get it.
       
    19. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Oddly enough, Keppra can actually help with elevating mood. Anyway, you must keep on and on, this drug will cure you! I just know it! You can't live with hyperacusis for years on end, when all that suffering can end with a pill.
       
      • Like Like x 1
    20. Yep. .getting ready to jump off a cliff tbh. I will ask about it.
       
    21. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      I really hope you get it! Just imagine, no more sensitivity to sound!
       
      • Like Like x 2
    22. Viking
      No Mood

      Viking Member Benefactor

      Location:
      Italia
      Hi Rube, for me this is an incredible news because i had think to a placebo effect on me but now reading the DannyBoy experience i must signal this drug to my neurologist because we have another suffer with big improvement in H.
      Best wishes
       
    23. lapidus

      lapidus Member

      Location:
      Sweden
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Noise induced
      Still not sure if you had H at all. What you're describing isn't H but more like reactive T. And "severe" H? No, I don't believe you had that. Severe H is when ypu have LDL's of 60 and under. That means that you would be experiencing pain upon normal conversations, your own voice etc.
       
      • Agree Agree x 3
    24. lapidus

      lapidus Member

      Location:
      Sweden
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Noise induced
      What were your LDL's before and after Keppra?
       
    25. Viking
      No Mood

      Viking Member Benefactor

      Location:
      Italia
      Before Keppra alla sounds with an average between 20 and 40db made me crazy with painful headache. Now i can listen without problems all the sound and expecially my loved motorbike with Akrapovic exahust!
       
      • Agree Agree x 1
    26. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      Boys, can either of you describe as best you can how your hyperacusis presented? Did you both have similar symptoms?
       
    27. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Reactive tinnitus is hyperacusis. Anyway, as I said before all sounds were amplified thus sounds hurt like hell. Hyperacusis is now cured in me, as is Vikings...Shouldn't everyone be like OMG! There's a cure to something incurable!?
       
      • Like Like x 2
      • Agree Agree x 1
    28. Champ
      Woot

      Champ Member Benefactor Team Tech

      Location:
      Boston, MA
      Tinnitus Since:
      1/2013
      Cause of Tinnitus:
      Acoustic trauma from headphones
      I don't have hyperacusis but if this works for it the way it did for you and Viking... this shit should be getting tested asap.
       
    29. erik
      Breezy

      erik Manager Staff Benefactor

      Location:
      Washington State, USA
      Tinnitus Since:
      04/15/2012
      Cause of Tinnitus:
      Most likely hearing loss
      Some people say that reactive tinnitus is hyperacusis but I disagree. My tinnitus can react and change whether noise is involved or not. I am not afraid of sounds and sounds alone rarely affect my T. I usually will have low T before but it increases and is usually loud at the conclusion. It is reacting to my physical activity but not necessarily due to sound intolerance.

      I understand you are excited and this is great news, but lets not jump the gun here. A trial of 2 doesn't with good results does not mean it will be that way for everyone. Calling it a cure is a bit premature and may give people false hope even if the results are encouraging.

      It is however a step in the right direction and I thank you for posting your update. Time will tell if this is a viable treatment or not and of course more subjects and testing.
       
      • Agree Agree x 9
    30. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      My tinnitus went crazy on certain sounds, like fans, it would react and go eeeeeee but now after keppra, that's all gone. Also, it must've been hyperacusis, as all sounds were amplified and hurt, so now it's cured. As I said the science behind it makes perfect sense " Studies to date confirm the importance of Kv3 channels at all levels of the auditory pathway. Profiling of our lead compound shows it can modulate function in both brainstem and cortex". As you can see, it makes perfect sense for this to work for hyperacusis.
       

Share This Page

Loading...
If you have ringing ears then you've come to the right place. We are a friendly tinnitus support board, dedicated to helping you discuss and understand what tinnitus treatments may work for you.