Pulsatile and Regular Tinnitus

Discussion in 'Support' started by billy43, Jan 10, 2014.

tinnitus forum
    1. billy43
      Lucky

      billy43 Member

      Location:
      nj usa
      Tinnitus Since:
      9/28/13
      hello everyone.just wondering if anyones unfortunate enough to have both.the pt is the one that's the toughest to deal with.have had it for about 14 weeks.all test came back negative.losing hope and wonder if ill ever get use to the noise in my head.
       
      • Hug Hug x 3
    2. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Billy,

      I have both pulsatile tinnitus and regular tinnitus, and so do some other people on this forum. I'm so sorry you're suffering from this condition, and I totally sympathize. I've had several tests, too, and they all came back negative. What tests have you had, so far?

      I've had both PT and regular T (high-pitched hissing sound) for 3 1/2 years now. Before that, I had very mild tinnitus that wasn't bothersome. How am I coping now? Well, I finally gave up on going from doctor to doctor, trying to find a cure. Instead, I began taking supplements; one that has worked well for me is magnesium, because in the beginning, my PT was so bad that it felt like my whole body was shaking when I tried to sleep. The magnesium is very calming, and it took awhile, but things have improved. It has gotten considerably better since then, and I can now sleep most nights, and mostly ignore the PT during the day.

      Do you have any idea what caused yours to begin? Mine started after I took a blood pressure drug. I'm now off the drug, but the PT remains, although much improved.

      You're welcome to private message me, if you'd like, and we can discuss your condition further.

      Best wishes, and sympathetic hugs (believe me, I understand!!)
      Karen
       
    3. EdnaLegume
      Cheeky

      EdnaLegume Member

      Location:
      Maryland
      Tinnitus Since:
      10/1999
      I have both. I've had pulsitile since 0ct of 1999. It was a bear to deal with in the beginning. I wore ear plugs to bed and played a CD player with headphones the rest of the time. I eventually habituated and it only really became something I noticed if I was congested. I started with ringing in my ears in Nov of 2011. It wasn't dreadful, but the beginning was hard. Habituated. Now, about 5-6 weeks ago my ringing has gone up to where I notice it over everything. I believe it's anxiety/TMJ related. Hoping to habituate and/or have it settle down once the antidepressant I'm on kicks in properly. Of course the louder ringing puts tinnitus at the forefront of my mind now, and that makes me notice the PT more now as well.

      I have no idea what caused mine. The PT just showed up one day out of the blue. Now, oddly, I prefer to hear the PT. In fact when the ringing is going a bit too much, I'll intentionally make the PT louder (by turning my head) so it becomes the noise my brain focuses on. I'm scheduled to see an ENT the end of this month. I saw one about 2 years ago after the ringing started but never went for the MRI he wanted me to get. Think I'll get all that taken care of now just to make sure nothing is amiss.

      The hardest part in the beginning is believing that you can habituate. It's possible, but it does take time. Spending less time thinking about tinnitus is the key... and that includes reading about it online. Use masking if necessary when it's really bothering you. I try to limit the amount of time I mask, usually only in the evenings when it's really loud. I think too much masking slows the habituation process. That's just me. I do use a white noise machine at bed, a fan, and an app on my ipad that creates nature sounds. Typically wind or summer bug noises.

      It will get better if you allow yourself to believe it. It's just a noise.
       
      • Like Like x 1
    4. billy43
      Lucky

      billy43 Member

      Location:
      nj usa
      Tinnitus Since:
      9/28/13
      hi Karen.ive had mri with contrast,
       
    5. I who love music
      Cheerful

      I who love music Member

      Location:
      Michigan
      Tinnitus Since:
      mid seventies
      Got em both. Sugar and loud sounds makes the PT go nuts. Then I'm sound sensitive for a week or so. This is when I stuff cotton in my ears because almost every little sound will then really get my ears pounding. 40 plus years of this.
       
      • Hug Hug x 2
    6. billy43
      Lucky

      billy43 Member

      Location:
      nj usa
      Tinnitus Since:
      9/28/13
      hi Karen. I had mri.mra,ct of the brain and ct angiogram of the neck area.the pulsating noise is worst at night.and loudest at night and in the morning.also very frustrating because it gets louder with any physical activity.it just started out of the blue.had a bad concussion 2 months earlier but three different doctors didn't think the pt was related to the concussion.thank you so much for the kind response.im so glad I found this site
       
    7. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, again, @billy43,

      Thanks for the response. You've definitely had all the right tests; I'm glad they didn't find anything, but I know how frustrating it is to have this condition and not know what to do next. Mine seemed to start "out of the blue", too, but I think that a traumatic incident might be what caused it to appear. In your case, that would be the concussion. Even though the doctors don't think it's related, I think it could have something to do with anxiety or trauma.

      Mine started with a different kind of trauma (I had a bad reaction to blood pressure drugs, and the doctors kept telling me to stay on the drugs). But ours might be similar in that there was an indirect cause.

      Like Edna Legume (above), I think it might be possible to habituate to it. That seems to be what is finally happening to me. It took awhile, but things have improved. So, it's possible that the same thing could happen to you --- unless you begin having any additional symptoms. Then, you should definitely go back to a doctor to have it checked out.

      We're really glad you joined us on Tinnitus Talk! We all support and understand one another here.

      Best wishes and welcome,
      Karen
       

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