Sad, Very Sad — Spoke to Someone Whose Family Member Killed Themselves Because of Tinnitus

Discussion in 'Support' started by Zach1230, Jul 5, 2019.

    1. Zach1230

      Zach1230 Member

      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      Just been speaking to someone whose family member killed themselves because of this damned annoyance - fortunately they managed to keep this from the media who are animals for this kind of story.
       
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    2. JohnAdams
      Murderous

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      What a fucked up disease this is that it doesn't kill you but drives you to kill yourself.

      This is why there should be a drive to push research and drug testing faster than normal.

      There is no good reason whatsoever that they should be able to take some government grant, get 20-50 people with chronic tinnitus and inject them with FX-322 and wait 3 months and see what happens. They could do this tomorrow. Also the same sort of test with the other hearing loss drugs, NT-3, BDNF, 7,8-DHF, etc. We deserve that damnit.
       
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    3. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      I want to be mindful of the desires of the family and do respect their choice, but I think it does the community of sufferers a disservice to keep these cases hidden away from public eye, because the world at large (including doctors) still believes this affliction isn't a big deal.
       
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    4. eagerUser

      eagerUser Member

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Stress, Pressure
      I totally agree with you and I wish it was out right now that we know it does improve the hearing system but there are still thousands of factors that we are all unaware of which keep this drug away from patients. They don't want to be the reason of the death or total deafness of even one single person. You know what I mean? But i sincerely hope they release it ASAP.

      stories like this must be published on the first page of audiology magazines.
       
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    5. Autumnly
      Wishful

      Autumnly Member Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      Germany
      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      Very sad to hear. Usually, stories about people who died due to tinnitus boil down to “they had depression, it wasn’t the tinnitus”, so in that sense, it might be a good thing the media didn’t get wind of the story. Perhaps this tragedy could be used to raise awareness for the need for real treatments but I understand if their family doesn't want to pursue this idea as it could be an incredibly painful process.
       
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    6. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Exactly. Thousands of people kill themselves every year due to "depression".....I can't help but think that at least a small amount of these are probably tinnitus cases, swept under the rug and signed off as depression.
       
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    7. JohnAdams
      Murderous

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      I understand not throwing caution to the wind, but at this point they have done 2 safety studies and I think they should allow ENTS or otologists to purchase it and treat willing patients.
       
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    8. eagerUser

      eagerUser Member

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Stress, Pressure
      Yeah I totally understand your concerns but there are always 2 sides to every story. Anyway, don't get me wrong I just want to say we can not judge them when we don't exactly know what's going on with them. They had 2 successful trials but they never said what needs to be investigated more after having 2 successful experiments. I am positive that their slow progress (if we can call it slow) means a better outcome.
       
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    9. JohnAdams
      Murderous

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      I'm not. Either the drug works or it doesn't.
       
    10. eagerUser

      eagerUser Member

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Stress, Pressure
      Rome wasn't built in a day.

      I wish everyone success (patients and doctors)
       
    11. JohnAdams
      Murderous

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      If they offered it to you today would you try it?
       
    12. AUTHOR
      AUTHOR
      Zach1230

      Zach1230 Member

      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      I have a feeling once his death comes out in the coroners offficd then the vulture media will pick up on it - I’m reading people say a death highlights Tinnitus makes people work hard to cure - sadly and maybe I’m in the minority but I don’t think there will ever be a cure for Tinnitus
       
    13. Autumnly
      Wishful

      Autumnly Member Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      Germany
      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      I mean, the very first medical treatment for chronic tinnitus might have launched this year (Neuromod's device, Lenire) - might because who knows how well it will actually do. So while a cure might still be years off, medical treatments to reduce chronic tinnitus are definitely possible.
       
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