Discussion in 'Support' started by Mario martz, Jun 3, 2016.
Separate names with a comma.
...Makes me wanna keep going, I wish we find relief soon.
I would love mine to go away but I already have it in my mind that it's here to stay and it makes me better bc I have no hopeless wishes! we will be fine !
Sometimes i feel like we are super humans,
even that there are awful illness out there like cancer, aids, etc..
we have to manage an unstoppable noise, give up silence and also avoid social events.
(people with other illness still can go to the cinema, dates or concerts with no problem at all)
Once there is a cure, or treatmente, we are gonna be an stoppable force,
no problem will causes us distress at all
You are something else Mario. I love your attitude.
Hugs and kisses
I think tinnitus does go away for some people, but they probably aren't going to come on here to tell us about it. I am still hoping it will go away while trying to live my life.
I kind of think this habituation stuff is nonsense. It almost seems medieval. In another 200 years, people will be looking back at TRT and thinking how ridiculous it seems. There is obviously something wrong with us and tinnitus is a symptom of that something wrong. Why would we just want to get used to something being wrong without trying to figure out what it is? I am still going to try to figure out what is wrong with me and hope that I can rid myself of it. I hope the same for all of us
I Agree 100%
The day people stop fighting it , is the day they find relief. It may sound odd, but it's true.
You are very right too,
in my case,i dont fight it, cause if i fight it, its a war im not gonna win.
i have good days where tinnitus is not longer my main focus, and then i have days were the sound is so loud and i cant stand it.
the thing is, we all have dreams, and some of them have to do with music, travel, being around loud noises, amusement parks etc..
i think we are born to experience life to the fullest, not just a little, dont get me wrong, right now we have to focus on things we can do and thats okey.
but... the idea, of getting back to this "outer world" where other "normal people" live...
and being part of it again, well thats beautiful...
I totally understand your point. My tinnitus is very loud and annoying but i am back trying to date again and gonna go back to school to finish my degree..all without a hearing aid....my ears have good amount of hearing loss as well....I am trying to defy the odds again in my life and I am not bothered by my hearing loss or tinnitus....Being strong is the key!
I just found out my co worker is deaf in her left ear and has T. She got it from swimming and her ear drum burst. It made me think " who else has this". She is so happy and bubbly. She told me it was rough in the beginning but now she doesn't care about it. She goes on about her day and is in school and does fun things without even thinking about it. She is what I will be soon! @Mario martz we can still do things but just be careful! I plan on going to Vegas ( I'm polish and we drink and gamble ) and it will be loud there but I'll just come prepared! Nothing will stop me from having this noise in my ear! I do miss listening to loud music at a high volume but I'm slowly increasing the volume every day
@Jamie m I used to go to Vegas with my friends yearly, but I stopped going due to fear of noise. Please keep me posted on your trip. If you can do it, you will give me hope to do so also.
@Ears Hurt well I went to New York ( very loud) and I went to a loud Broadway show ( ears plugs) but everything came out fine no increase, I even didn't wear ear plugs all the time. I'm going to go for my bachlorette party! No T will stop me! I would go. I've been to casinos in Detroit which was around 93 db ( ear plugs) and I was there for 8 hours so I'm praying I would be fine in Vegas! how loud is your T
@Ears Hurt plus you could go to the pool that should be quiet too!
@Jamie m the pools are not quiet. They play music the entire time. My t fluctuates. Some days it is maskable others not so much. It's also starting to become reactive. I'm trying not to let it impact my life but it sure is hard. It punishes you when you do something it doesn't like. I went running for the first time since I got it and it's acting up now.
@Ears Hurt I'm sorry! That's good that you started running again! I miss running so much but I can't run without listening to music, did you play ear buds? When did you run? I know when I worked out my t was a little loud for a good 6 hours until I went to bed
@Jamie m I missed running too. I didn't wear ear buds. I ran at a trail near a stream so just listened to the water. I went this morning at 10am. Ears are starting to calm down now.