Tinnitus for a Year and Need Help More Than Ever

Discussion in 'Support' started by Mark A, Jun 23, 2016.

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    1. Mark A
      Mellow

      Mark A Member

      Location:
      California
      Tinnitus Since:
      06/05/2015
      Cause of Tinnitus:
      Noise exposure
      I have noise induced Tinnitus. It was about two or three weeks after the noise the Tinnitus became noticeable. It was more of a static sound at first with periods of painfully high pitched tones. The high pitched tones became more and more continuous. The high pitch is continuous now and never goes away. It keeps getting louder. If it continues, I can't imagine this being survivable. About the only time I don't hear it is in the shower, but the water sounds different and annoying. I can hear it while driving, flying on jets, walking around busy streets, just about everywhere. It is loud and uncomfortable. I have gone to three different places looking for treatment, but no one will do anything. All they do are hearing tests, MRIs, etc... Hearing test show minor hearing loss in the mid range, but nothing remarkable. Why can I not get any treatment? What about CBT, TRT, biofeedback, etc... I can't get anything. Even if it doesn't help, I would at least like to try. I was on cloud 9 before I got this stuff, now I'm hoping the rest of my life goes by quickly. I hate sleeping since I hear this awful noise all night long. I think about it 24/7. I can't relax, nothing. I loved life and now hate it. how do I get treatment?
       
      • Hug Hug x 2
      • Agree Agree x 1
    2. Ears Hurt

      Ears Hurt Member

      Location:
      USA
      Tinnitus Since:
      10/2012
      Cause of Tinnitus:
      Whiplash or Buzzer (abuse from ex)
      I can relate to you. I just started CBT. It is through a psychologist. He gave me tasks to do for the next month to take my mind off the T. Just find someone that does CBT in your area.
       
    3. Mark A
      Mellow

      Mark A Member

      Location:
      California
      Tinnitus Since:
      06/05/2015
      Cause of Tinnitus:
      Noise exposure
      Thank you for the reply, but that is the problem, I can't find anyone. What should I be looking for? If only psychologists, should they have some knowledge/experience with T?
       
    4. william adams
      Wishful

      william adams Member Benefactor

      Location:
      S Jersey
      Tinnitus Since:
      December 2015
      Cause of Tinnitus:
      one week after leg surgery plus hearing loss in higher freq.
      Mark, Kevin Hogan a Tinnitus specialist in Minnesota gets his patients on xanax and zoloft , listen to classical music with a mp3 player, and uses psychotherapy to treat this condition. Also go on youtube and checkout Julian Cowan Hill I found him very helpful. The more you get worked up the worst the T seems to get. Maybe get some meds to calm down some. Doctors wont give you some meds for Tinnitus but tell them that you have depression and anxiety and generally they will get you on meds. We all struggle at times but you will get through this !!!!! I hear my T over the TV and while driving but im doing good. If its really bothering me I play my cd player with ear phones and at night I play nature sounds from youtube usually birds chirping. Hope I have been some help.... Exercise and no sugar or salt is also helpful and try to calm yourself for stress feeds t.
       
      • Useful Useful x 1
    5. Mark A
      Mellow

      Mark A Member

      Location:
      California
      Tinnitus Since:
      06/05/2015
      Cause of Tinnitus:
      Noise exposure
      Thank you William. I really appreciate your thoughts. I try to be so perfect with diet, exercise, sleep, and stress, but to no avail. It seem like if I do everything right, it's hell, and if I do anything wrong, like drink a beer or have too much salt, I pay big time and want to end it. It is getting tougher for me. That is why I would like to get some extra help. I have gone to the LA Hearing Clinic, Johns Hopkings Hopital, and George Washington Hospital, all of which brag about working with Tinnitus patients. But not one has suggested any treatments. I've looked for audiologists, psychiatrists, psychologists, etc, and nothing! No one wants to try anything. That is why I am rather frustrated after hearing others talk about some treatments that may have help them habituate, or what ever. Support groups, anything.
       
    6. william adams
      Wishful

      william adams Member Benefactor

      Location:
      S Jersey
      Tinnitus Since:
      December 2015
      Cause of Tinnitus:
      one week after leg surgery plus hearing loss in higher freq.
      Mark it certainly isnt easy and yes you do feel alone in your search for relief. Go on youtube and listen to Julian Cowan Hill and there is light at the end of the tunnel. I live in S. Jersey and there is no Doctors that deal with T in my area. Xanax helped me the most and at the beginning I used ambien for I could not sleep. I try to stay busy to get my brain off of T and take on mind challenging projects and I do not hear it for awhile. Sounds like you are doing everything you can except you need to get rid of the stress and you may need meds.
       
    7. Alue

      Alue Member

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      I can relate. Loud very high pitched head hissing that never goes away (although it was that way from day 1). Can hear it everywhere but the shower too. Wish I had suggestions, but I'm still looking for relief after 6 months. What was your noise exposure?
       
    8. Robert44

      Robert44 Member Benefactor

      Location:
      New York
      Tinnitus Since:
      April 2015
      Cause of Tinnitus:
      loud concert
      Yeah Check out Julian
       
    9. Mark A
      Mellow

      Mark A Member

      Location:
      California
      Tinnitus Since:
      06/05/2015
      Cause of Tinnitus:
      Noise exposure
      Thanks everyone, I really appreciate the support. My noise exposure was going to a company event or celebration where I was a manager of a large group and was stuck near a large extremely loud speaker for way too long. When I left, I heard the loud ring as if I went to a concert, which I have only done a couple times when I was in my teens. But this was nothing near the loudness of a concert, but apparently enough to destroy my hearing. It seemed like it mostly went away the next day, but I never felt the same. The T slowly emerged over the next week or two. And for the last year, it has steadily increased in volume. I have since left the position I was in, and even turned down a promotion as I was no longer myself. Although it freaked me out when it first started, I wish it was at that level today. I go through ups and downs a lot, sometimes many times in a minute. Once again, thank you all for the help.
       
    10. Bobby B
      Fine

      Bobby B Member Benefactor

      Tinnitus Since:
      11/2015
      Cause of Tinnitus:
      long term NIHL and recent acoustic trauma
      Are you protecting your ears in Public noisy places , train stations , on planes ?
      Have you gone to bars or clubs , movie theaters etc.. soon after your initial loud noise exposure ?
      I'm not talking about super loud events just the type of place where you may have to raise your voice a bit - 70db or more
       
    11. Mark A
      Mellow

      Mark A Member

      Location:
      California
      Tinnitus Since:
      06/05/2015
      Cause of Tinnitus:
      Noise exposure
      Hi Bobby, I have been very careful to protect myself in any noisy environment, and have not gone to any clubs/movies since. I always wear headsets on flights and noise reducing earbuds on subways/trains, with no music. But going to a restaurant is usually really loud for me now, so if I think it is too much, I'll try to leave quickly. I can't think of too many restaurants where you don't have to raise your voice. I don't go out very often anymore.
       
    12. Bobby B
      Fine

      Bobby B Member Benefactor

      Tinnitus Since:
      11/2015
      Cause of Tinnitus:
      long term NIHL and recent acoustic trauma
      I go out a lot but I always wear the best foam 33nrr earplugs or the biggest earmuffs and that's fine

      I have all sorts of plugs at home but these days I like the moldex meteors - 33db NRR and easier to insert than most foam plugs

      I don't think those active noise canceling buds are sufficent thought -
       
    13. JasonP

      JasonP Member

      Tinnitus Since:
      6/2006
      Go ahead and get a trial of hearing aids. Have them amplify a little more where the frequency is located (safe level of course). Have them correct your hearing to the 0db baseline. This probably won't get rid of it but it may "lower" the T. Maybe get on a short prescription of Xanax while getting on something to help with depression like Lamictal (has to be titrated up very slowly because of serious rash concerns) or maybe you can get an anti depressant. I heard a combination of Klonopin and Neurontin can work for lowering T that is noise induced, but the question is, if it works, how long would it last for and the withdrawals can be bad. Not only that but I believe long term Klonopin use could make T worse in some people. I think that happened to me after taking it for 3 years.
       
    14. JasonP

      JasonP Member

      Tinnitus Since:
      6/2006
      Hey, if your T was noise induced, have you tried a Neurontin and Klonopin combo? I don't recommend it long term but it might help lower your T some. If you take it too long it will probably lose its effect and withdrawal could be bad. After about 3 years of Klonopin use for me I think it started to lose its effect and started to make my T louder. I have no idea that if it works, how many days it would work for. If you try this and it works I would suggest using the lowest possible dosage you can.
       
    15. Mark A
      Mellow

      Mark A Member

      Location:
      California
      Tinnitus Since:
      06/05/2015
      Cause of Tinnitus:
      Noise exposure
      Bobby, thanks for the advice on the earplugs. I find that all foam plugs are hard to insert, but I will give these a try. It would be nice if there were plugs that inserted easily and weren't a bright color to draw attention.

      JasonP, thank you for the advice. I was told that my hearing loss is not great enough to use hearing aids to help T. I have yet to find someone willing take my money to try some of these things that might help. But I also refuse the snake oils. I am very reluctant to do any addictive drugs, but at times I really hate this T enough to try. It might take the edge off.

      Every day I wake up thinking this can't be it for the rest of my life. But it is.
       

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