Cmspgran

How long have you had your symptoms and how did they come about?

Hello friends in misfortune. I have Morse code against a background of chorus and other sounds in one ear, and shrill monotones in the other. Very reactive noise. I can't go outside if you can do it very well. I've been staying at home for 3 months

All the OTC meds, trazodone, and hydroxyzine along with many supplements haven't helped my sleep. Only zolpidem (Ambien) seems to work. I take it about everyday, but use it in the middle of the night sublingually trying to keep dose under 3 mg. I use a "thousands of crickets" video from youtube overnight.

I feel your pain, don’t give up you’ve been amazingly strong and I know you’ll continue to be. I wish we had some sort of in person support group if we all lived in the same country!

@Cmspgran I want to quit my job and go to the country side too. This winter has been so long and painful

@Cmspgran , stay strong. I’ll sure your distortions won’t be an issue for you down the line. You’ll see some kind of resolution. it’s rough I know, but you’ll get there. Cheers.

Might just read that book...Sounds interesting. Does it help you?

I find comfort in reading peoples accounts of suffering severe illness and injury and finding a way to continue and it talks about that quite a lot. Sounds sadistic but I’m sure you know what I mean!

I understand. Makes sense.

@Cmspgran Yes you are right. I need to play with completely open cards. I don't have a choice.

Honestly, I find that being in the office sometimes gives my brain more to focus on. I have severe, constant tinnitus, and slight hyperacusis, and the office environment hasn't been too tough. I have also laid all of my cards on the table with my bosses, and they allow me to play background noise/music in the office. It doesn't bother anyone.

How do you cope with the constant reactive element? Sounds like you have kind understanding bosses which I'm really glad about for you.

Hi Andrew, sorry for delay the only thing that I have found that makes any difference for reactiveness is clonazepam.

Hi Andrew, sorry don’t understand what you mean by jet tinnitus.

Beautifully said ❤️

Who knows, perhaps years from now we will randomly meet somewhere in the real world both only having tinnitus as a distant unpleasant memory because it has improved for both of us!

Wouldn’t that be something. I know you’ve been struggling as much as me lately but stay strong and keep going into 2024. We all need each other to lean on.

Same for me. Never had a more horrible year. I am almost afraid to hope for a better 2024 as hope can be devastating. But I do hope for a better new year for both of us, for all of us.

You don’t have to apologise you can post anytime you’re want to reach out on my wall, same for anyone here. I’ve had the same conversation with my sister just as this started I’d moved careers and in my current state I’d be off work if I wasn’t mainly working from home so it’s like fate in a twisted way, but I’d said I need a year off to try and recover and she agreed.

I just can’t afford it, part of me thinks it’d be a good idea but then part of me thinks would it be case of just wallowing in your own misery , whereas at least with work you still have some structure and purpose?

@Cmspgran I understand. I have the same thoughts. It is so damn devastating to deal with something that continues to be horrible and life-shattering - with no end in sight. Just so difficult to know what to do.

I’m unsure what to do at this point, I’m so sorry you are having to lead the same life, I can’t offer you much only that I totally understand how you feel and daily torment of it all. None of us deserve this, I’ve tried to be a good person, but not good enough it seems.

@Cmspgran I think that you being able to tolerate online meetings better is a sign of a small improvement?

I am so sorry too. About all of this and for all of us. I still hope that one day we'll be able to tell each other that things are a lot better. AND I am sure you are a good person. Bad stuff happen to good people all the time :-(

Sending you good vibes and wishes ❤️

Sorry @Juliane didn't see this, you are a really kind soul and I wish to God that however long it takes we can be sharing tales of success in some form whether it is 12 months away or more.

Sending you good wishes and vibes back for the week ahead, keep fighting and keep staying strong, we're all in it together ❤️

Oh no :-(

Sorry to hear this brother. Is it Mask able? My machine gun/morse code is only maskable by dale snales 13000khz masker.

Thanks @Stayinghopeful it is maskable, the left ear is around 1000hz and the right 2000ish, this is on to of multiple sine wave tones (which I'd always had) and electrical reactive fizz to external sounds in the left. I use Dale Snales sounds too.

So sorry @ErikaS I can relate totally but your case sounds even worse than mine. Stay strong, I pray to god we can all improve at some point soon.

Mine improved for 3 weeks in July and would only spike if I spoke wearing earplugs. I think it was because the 2-3 weeks prior I spent most of my time at home and wan't exposed to loud noise.... however in August it came back.

Mine hates showers, driving and noise lol. It’s the most stupid frustrating condition.

Mine doesn’t go above any sound it just spikes from the above, like fans and things are fine.

Thank you @Michael Leigh you are always so kind with your words. I'm hoping for better times ahead.

So so sorry @Cmspgran. It is horrible to lose a loved pet. And very sorry about your relationship too. When it rains, it pours... 2023 can go f... itself. You seem like a kind person. Better days MUST come our way soon! ❤️

@Juliane my dream would be we are all posting how much better we are in 12 months time on here but it just doesn't feel like that's going to happen for me on current progress. I shall remain hopeful for us all!

@Cmspgran i am not sure if it was last noise trauma, Meds, anxiety when I was off the meds, the place where I stay during the day. I’m 50. I can’t see how to do this. Honest to God don’t see how. I don’t know how long I can sustain the worsening. Sorry for the negative post. If I continued to stay inside I would have gone insane the same.

So sorry you are feeling this way, I can completely relate I’m 40 and have wasted years with other health issues in the past and now feel like here I am again, life wasting away. Don’t be sorry for being negative I can relate and understand to how you feel, reactive tinnitus is ten levels above regular T and I would give anything just to go back to how I was.

@Cmspgran - it’s the best of the ADs for T. I think my problem is that mine really reacts to food. I can’t see how being on it would not impact my T. Honest to God I trend worse daily. I have reached that insane loudness point and I know it can get louder because I have had scary fleeting tinnitus. There is no mercy with this thing. I feel my case is a little unique.

No, working from home has been a blessing I couldn’t have coped 5 days back in.

It does involve lots of teams calls but for me it beats going back to the classroom as given what I’m currently going through I wouldn’t have been able to do it. I currently work as a Business Analyst, there should be remote jobs that don’t involve lots of calls I’m sure, what about things like video editing or graphics, coding?

I'm finding it hard to keep going even with a remote job as it's a daily rollercoaster of anxiety and despair but I think it's really important to keep going.

I hope and think you will.

I know how you feel. I am guessing that your new job may be stressing you. It did for me, it challenges the entire system. Please hang in there. The working week is almost done.

Thanks Sarah, been out on two walks today to try and get some form of relief, just can’t escape the ringing. Why must we all endure this torture. Hope we all have a better day tomorrow.

Yeah, the only escape seems to be sleep. It's insane. =[

Hi Paul,

So happy to hear you are seeing a bit of improvement! Hope it continues to improve even further.

I will definitely check out the YouTube video. Looks interesting.

I have not really been experiencing any improvement unfortunately but I am trying to do the "right" things: eating healthy, exercising moderately and avoiding stress. It is a bit rough at the moment. But have to try and stay positive.

Sorry to hear you are going through a rough patch, coincidentally the day after I wrote those messages above, I had a terrible day and felt back to square one. How many months has it been for you now?

@Cmspgran I have had T for many years but the worsening came after a loud firecracker on New Years Eve...

Hi Jupiter man nice to meet you. I teach secondary which is 11-18 but soon to be leaving for a new career. I don’t need plugs at work as not around loud noise.