Juliane

@Pinhead I know for sure it is in my head because it follows me around. But since I can somehow manipulate the sound by plugging my ear, I wonder if the sound literally/ organically comes from a place inside my head? I read that true objective tinnitus can be heard by other people eg with a stethoscope

@Tryn2BHopeful Perhaps all the WiFi surrounding us is finally getting to the more sensitive among us :-( It def cannot be healthy with all that electronic shite

I had a tone like this! It was my neighbors noise machine since she had horrible t at night.

Thanks for checking in on me. Struggling at the moment. How are you?

Hi Juliane, sorry to hear that. I hope things turn around for you. I'm ok, I'm not sure if its going down in volume or im getting used to it. I miss silence

I'd rather be lucky than good any day.

Yes. Survival of the fittest doesn't mean the strongest survive. The strongest could die in an accident. It doesn't relate to physical fitness. It means to fit the environment. to avoid all complications of life long enough to pass on your genes.

@BB23 I agree. But even mental strength is also not enough when e.g. having T. It wears you down over time. If it spontaneously lowered that's a different story. Then you are Lucky. Then you start thriving again. But not because of strength. Because of luck. Pure luck.

I desperately wish this was an option - take all my investments and stocks. take all my friends too. don't have a husband, but take him too! i don't care. just give me the damn permanent silence.

In the modern world we think in very limited and self centered ways. I don't think being homeless is the worst thing, compared to this scenario. You could be a farmer and vikings can come invade your land and rip your heart out and eat it to please their gods etc. stuff like this used to happen all the time. nobody in the world is destined to be happy.

@cjbhab So would I! But my point was also that some homeless people probably also have T in addition to other multiple issues. We just never know what people struggle with which is why we should never judge anyone.

i don’t recommend shouting. that will give you a spike.

@cjbhab :-) I know!

imagine being deaf with T!! i would pull the trigger immediately.

@cjbhab I know! That's why being deaf with ZERO T would be the only manageable way. However, being deaf with no T becomes more and more appealing. Funny how life changes your perspective

deaf with zero T, complete 100000% silence - the dream!

It does not comfort me. I was hoping for a good life

Also, I would not know how to follow Jesus even if I wanted to. How does one follow Jesus?

It is nice psycho babble. If it works for one, great. Does not help me, sorry.

In a heartbeat! *pun intended*

Yeah, I really like the idea. I would feast on all the Harley riders, rednecks in loud trucks and other noisy scum. Win-win.

@gameover You could be a Ventrue with a preference for noisy people xD

I am truly sorry to hear this. My anxiety is also through the roof the last 3 days. I am experiencing some symptoms from it that I don’t even want to mention. It’s your damned if you do and your damned if you don’t. Constant fear of noise I find can be just as bad as T. I use youtube guided meditation videos. Try to go out in noise friendly places. Talk to people.

Thank you @4Grace ❤️

Not really. I've been staying put at home, walking more, taking some supplements, I seem to be feeling better lately. But during my spikes I felt off, so maybe I had something.

I am so glad to hear you are better @gameover

Thank you @Juliane. Usually when I write I am better, I turn worse. I am suffering through a hellish day and night today. Do you get better/lower T days at all these days?

For what?

You're spending too much time on this forum. Real friends in the real world don't gaslight each other that they have a "mild case" like they do here.

@Varda; while I do believe all things are relative, I also know for a fact that it helped me in the past when I suffered from mild T to learn from others who objectively had it a lot worse than I to come out of my depression. Tough love can also be love. And helpful. Today, I would be so happy if I had mild T. Not saying you or anyone else here has mild T. But I know I did, before it became worse

And while I would never minimize anyone's pain or suffering, I honestly believe that having treatment available that WORKS or even gives temporary relief means being in a much better place than tinnitus sufferers for whom there is no treatment, not even temporarily. My friend who I referred to will be given treatment for something that is temporary. I don't think that is the same level of tragedy as chronic tinnitus

I empathise, so much. It's why I have reframed my mind in considering life being the experiences, the connections and the memories I'm making alone, rather than the conditions I'm facing. Turning it away from just myself as a means to cope. But it's hard. Extremely. Giving you strength today and tomorrow Juliane.

I said those words to myself today... but then will turn around and say I can do this. I think I am T bipolar...

How to say.. i just find this very profound statement. I have a tendency to be too philosophical about things maybe, well this statement.. i dunno.. i feel it. To me it's also about the physiology and psychology of it all. In the end to be honest, it's a big question mark how it all works, but i do feel that definitely we gotta try to make our life conditions as beneficial and natural as possible..

The search for psychological ease with painful t has been a harsh difficult ride here.. i think for most of us here. Maybe i gotta try to analyse less.. remind myself to not analyse things too much.. but just trying to improve the life conditions that we can improve, and live a natural and healthy lifestyle. I hope that with time things can improve.

@Andrei88 Thank you. I appreciate your words a lot. But how do we know if our T is even similar? These things are so hard to compare. I fear I can never adapt to such horrific life conditions.

For sure! I have very bad days still, but you get used to the fact that things to get better again, that helps you to endure.

@Juliane. I think so for me, too.

@4Grace You never bother me. I consider you a friend too. A friend I hope will soon feel better :-)

No did not cause mine either but no one needs all these multiple stressors from war, conflict and idiocy.

@Juliane i completely agree.. what a world this is.. for me personally, i have to think about.. when i started eating a plant based diet for health reasons, i've later seen a lot of footage of factory farming.. what the animals have to endure.. i hope people get more awareness on this, so we can make better informed choices..

The thing for me is.. the wars i can not fix.. but i can choose what i eat, so i try to focus more on own lifestyle choices, than on what's going on out there what we have no control over.

+1 only other thing is I don't have enough savings to last lol. Sometimes I wonder if T would be easier if we got it in our 80s, where we would have lived out most of our lives already and have done probably most of the things we need to do or accomplish. And living with it for 5 years is less daunting than say 40+ years.

I agree. I think getting T would always be a nightmare but less time to have to live with it when you are a senior.

:( not sure what to do to help but I truely hope you find some relief soon

I symphatize with you dear one.. can i just share.. i've had moments where i lost all hope.. lying in bed without being able to sleep, and just repeating to myself "let it all be over".. and such.. and then sometimes some days later.. i feel a bit better, and there is some form of relief, inspiration and hope again.. so for myself, i notice it fluctuates

everyday it's like dragging my already dead body around and pretending im not already very much dead inside.

@crescentsky I know.

They hardly even do any research on tinnitus because its not a "disability." Azithromycin is "safe" because it does not cause hearing loss and tinnitus is just a mild annoyance that we don't even need to bother checking or writing down how many people are getting it.

I should also clarify that as "-30db hearing loss." No one cares about hearing loss under 30db because you can still hear orders and do your job.

Mine might be a semi success story. I’ve been bedridden since December due to POTS and I’ve gone awhile without freaking out over T. Seems volume has went down but it finally spiked now

I’ve been able to do things like longer phone calls and listen to music throughout the day on my iPhone speakers without my T spiking

@cyberspace Happy to hear!

I will write tinnitus out in my blood. Multiple copies scatter it all over my house, front and back yard, and on all the walls, on my hardwood floor, everywhere!

@Juliane - sadly we are the only ones that know this truth. I tell my family all the time. @cjbhab said it perfectly. So hard to explain this to loved ones and they just cannot understand. Always pushing pills that would not help or change my situation. Being allergic to sound can make like very difficult. What we are feeling is normal.

@4Grace What you say hits the nail on the head: "What we are feeling is normal" YES! Let's normalize normal. Getting tinnitus is a fate so cruel that it should be recognized as a life threathening disease. Because it is.

@gameover the outlook of having to suffer like this for years i also find an unbearable idea. I know i'm repeating, but that's why hope, and going day by day is my only way

i’m not leaving till they drag me out of the building.

@L along the way The day by day approach stop working once each day is worse than the previous one.

@Juliane ❤️

Much love to you both.

Only hope that it can get better with time

to earn more money that I can give to friends who don't have enough. It gives me a strange motivation to go on a little longer. Then at least this suffering had a bizarre purpose.

Do you sleep well? I've had so much troubles with falling asleep... it was rough beyond words.. now i'm using temazepam, and i can at least sleep. I tell myself that things can get better by plenty of resting & healthy living, and time... because a life with t not getting better.. pffft i find that an unbearable outlook... i hope things may improve for us all

My progress is hardly a progress. T is louder, H is barely better, Nox creeps in more frequently. Life is there but I am watching from a distance. This is not a way to live.

T is a disease that keeps on giving. At first I thought oh will get better in 3 months...6 months...12 months...18 months...