PennyCat

Good luck

Good luck.

You're a trooper @PennyCat. Best of luck to you.

I'm sorry you're going though so much pain. It's not easy to deal with a break-up, let alone with tinnitus. Stay strong

@PennyCat - such beautiful and strong people on here. Stay strong. You are not alone.

good luck pennycat!

Take it easy Penny, breakups are rough especially with everything else you're dealing with. But you're going to be alright.

I don’t think so, just a temporal spike for me

@Marshall It hasn’t settled for me yet. How long does it usually take for you?

I think it’s fairly common for it to seem worse when hungover.

The whole next day until I wake up again

It's great to see you're coping with everything better! Just one question, has your TTTS calmed down at all?

@HearingHell Hey! I actually just left a comment about that on @BB23 page if you want to read that. But TL;DR, yes for the most part it has. I still get flare ups maybe once every month or two and it lasts for a few days to a week. But in comparison to how it was this time last year, that aspect is much better.

I did! I was stented because I had Venous Sinus Stenosis. Unfortunately it didn’t work for me in regards to getting rid of the sound. I had more testing done which lead to a dead end, and now I have scans scheduled for March 3 - getting scans of my temporal bones to test for dehiscence. Are you struggling with PT as well?

Mine comes and goes. Seems caffeine can irritate it. I'm sorry it didn't work for you! I'm not a candidate for the stent. Hopefully they can find another way to get that fixed.

@tpj I’m okay, my groin is just super sore where they went in. And I’m pretty devastated that the balloon occlusion didn’t yield positive results, because if it did, that would indicate that a coil in the jugular bulb would fix my PT. But he is consulting a colleague to see whether I might have superior semicircular canal dehiscence, which can be caused by the turbulent blood flow of the stenosis and diverticulum.

Any news from results from angiogram? (good I hope) @PennyCat I'm sorry you're going through this. Is this T different than what you had before the stent?

@sakrt The angiogram showed a small aneurysm but nothing to be concerned about. I had a balloon occlusion test done in my jugular because I have a diverticulum (outpouching). But sadly the test didn’t indicate that fixing that diverticulum would solve my PT ;( so I’m having even more testing done on March 3rd. Thank you for asking! The T is still the same though sadly.

SAME!! ❤️

TTTS as in spasms reacting to external noise? I have that too, but my plague is actually MEM which is spontaneous spasms' episodes lasting for hours at a time... Scared it'll never go away as well. Hope the new year help us!

@DimLeb Yes, the spasms in response to sound and my own voice. I had it for a good 4-5 months earlier this year, but as the year went on I had long stretches of time where it disappeared, then came back for a few days. But it’s sticking around longer this time :(

Hope you recover soon!

@kingsfan Somehow I have all of the symptoms except the respiratory ones. Vomiting, fever, violent uncontrollable cold sweats/shaking/chills, muscle aches, headache, eye pain (which is very random?), fatigue, and probably a few more symptoms I’m forgetting. But no cough, sore throat, or congestion which is weird.

@Joe Cuber @Juliane Thank you, I hope so too!! I’m miserable.

@gameover It’s certainly not fun, that’s for sure

Being sick with T is awful. Hope you feel better soon.

@tpj Thank you <3

My mentality has improved. Tinnitus, not so much. =(

@SarahMLFlemmer so sorry to hear that, I hope it gets better with time, wish you the best

@Viridiana same to you, thank you. ❤️

Ugh. I just hit my one year too.

@SarahMLFlemmer TT just gave me a 3 year trophy today. I definitely earned it I suppose. Glad to see you hanging in there. Stay strong girlie!

@BrOKeN_1 at least someone recognizes our fight! Lol. Congrats??!!

=|

My spikes usually last 1-3 days 1 or 2 times per month and come about randomly. In a sense that the regular tones of my mild tinnitus (an air exhaust sound in my left ear and a group of mid tones in both ears) get amped up and become more noticeable. They come back to normal after the night's sleep on that 2nd or 3rd day.

For reference, my T is idiopathic and doesn't spike to outside noise. And I also get periods where I get many many SBUTT's (with loud tones appearing for seconds).

@DimLeb I’ve been having a new tone for a week now so I’m not sure if it’s a spike or not, but I hope it is

Sorry to hear.. Just never be impulsive about that one (neither while under influence) is what I told myself... trying to keep hope that it may get better with time.. for all of us..

One day, one moment at a time Pennycat. I am so sorry you're going through this. One foot in front of another.

I know the feeling but you will @PennyCat.

Just going day by day is only thing i can say... pffft.. wishing us all well..