xLuchiaaa

You have time on your side. Stay strong. You can heal.

Better days will come, one day we'll be okay again <3

Hope you've been well Luchia, take it easy

❤️

I'm okay, On the moment much pain at the back of my head and around my ears and jaw. My ear is also leaking they think because of the eczema in my ears. How are you ? @Marina Moon

Keep hanging in there! We'll one day get back to pain free days. The left side of my face is constricting really badly, but the nerve pain down my arm has stopped recently.

I think it just depends on the person but if you have an ear infection then I would be more afraid of that then the drops. There's also other meds to treat ear infection.

Think I am going to ask for something else, I was reading that they also can give a antibotic if you are very sick of it

Hello / how has your T been doing? Better?

TMJ??

Here they are calling it TMD, Because it's D for disorder and the J for the joint but that's how they are calling it here in Holland :)

@BellaMia Everyone has two TMJs but not everyone has TMD :) TMJ is the abbreviation of the joint, temporomandibular joint, it is comprised of many parts, that connects the mandible to the maxilla. The D in TMD stands for disorder/dysfunction of the TMJ when either the muscles or joint (or both) are not functioning properly.

I'm so sorry :( Keep holding on.

❤️

You guys are so sweet ❤️❤️

It's going with ups and downs on the moment. I am in a lot of pain but luckily I am getting treatment for my neck. T is still here but some moments I can forget about it. That's why I am also less here to like not focus on it.

How are you ?

@xLuchiaaa - great to hear about T improvement. That’s great news!! I can feel myself doing a very little better emotionally it’s just that T and H always keep progressing. It keeps resetting the clock to habituating. Who knows. Maybe in another year.

I am starting by a Osteopath for it. I was by a jaw physiotherapist but she even couldn't massage my neck because it was too painful. This week I had a first appointment by a osteopath for examinations and my first neck nerve is out of place, Tomorrow I have my first treatment for it. T is still here but some moments I can forget about it.

A late congratulations! How was it ? ❤️ I hope you still could had a nice birthday @TheCapybara

@xLuchiaaa I hope the treatment goes well Luchia! Definitely familiar with jaw and neck pains, I hope you can get the needed help for it. Birthday was okay! I got to grill, and I didn't really mind the noise too much.

Do you normally suffer with panic or anxiety? That sounds like derealization. Read up on it a little bit to understand what it is and why. It can help you deal.

I feel the same way.

Did it take long to become better ?

I think I can notice some difference first it was worser but still the feeling like I have cotton buds in my ears, Outside is the worst

It didn't take very long for me, the fullness resolved after 2 weeks. But I've seen other people who said it took them 6-12 months for it to go away. Some people even said it took them over a year.

So while it can take a while, fullness does eventually get better for most people. It's just slower for some people than others. I'm hoping it will get better for you too.

The audiologist said also to me that if their was damage it would show up also on the test they did. I am trying to keep that in mind because sometimes it's making me very anxious

ENTS are useless at treating TMD. Any ear issues (from TMD) are only a symptom of a bigger problem, which they are not specialized to treat.

There's also anti-anxiety meds that some people take, such as benzos (best taken sparingly or avoided) or Buspirone (can cause tinnitus), Pregabalin/Lyrica, and Gabapentin. I've used Hydroxyzine, but it's an antihistimime that's more like a sleeping pill and hasn't worked that well for me.

@kingsfan I hope that works for you man. Unfortunately nothing cures the ringing which is the real culprit. But if you can at least suppress the desire to abandon hope then it's possible to manage this condition to a degree. As long as the ringing persists it will always take work and a strong will to survive.

I am so sorry you are having to deal with this. I tried Mirt. It helped. T was always there even when I felt better. At first it reduced my T a little. Then it went back to normal volume. Everyone is different. It could help you. You are the only one that can decide. I wish everyone better days.

People generally say that stress and anxiety can affect TTTS. After months of this, I can't say it happens any more frequently to me when I'm feeling stress and anxiety. It became as issue for me only after my tinnitus level increased suddenly 20 months ago.

I suspect cause for me was noise trauma while already having moderate hearing loss and tinnitus before that led to the louder tinnitus, mild to moderate hyperacusis, and occasional TTTS symptoms (left ear fluttering due to external sounds, right ear spontaneously thumps not triggered by external sounds).

They say stress can be a cause. I was dealing with a period of stress which led me to an anti-anxiety medication and then my problems started. So sorry you had to deal with someone stalking you.

How did it go ? @Marina Moon

@xLuchiaaa The process was fine. My T is still the same. I wasn't in pain while I was in the machine, despite the headphones pressing on both sides of my ears, it didn't hurt. Nor did i feel claustrophobic. I'm in pain now, but it's just my usual pain.

When are you getting your results of your scan ?

Yes, 13/16 symptoms.

You have also those diziness? I find it so worse, I saw that also T can be a symptom of low ferrintin, I hope you will feel soon better with the supplements❤️ I have the supplement now also but every met/supplement I think will it not give problems @SarahMLFlemmer

I had to dizziness, but not too much anymore. I am taking 125mg of iron a day. I hope it helps us too!

If you figure out a solution, let me know...

I know it sounds annoying but CBT can help you learn this!

It can be difficult to do in the early days, but as time goes on, you may start to forget about it more and more.

That’s some good news!!! See always room for improvement.

It's only the fear of sound but like painful not that much. I can finally do my washing machine on lol, I have one with every button a high sounds and first I did it with tears now I just can do it normal

Yay!!

Fighting this invisible ailment with you.

May you put all of your hope and trust in God, despite the circumstances. ❤️

I know it's so hard. Can you find a support group? I found some on the American Tinnitus Association website.

I am also on the moment finding my way through religion, I have not that much family around me who are religious but I was always intressed and always believed but now trying finding a way

@xLuchiaaa Jesus tells us in God's Word (the Bible) that He is the way, the truth, and the life and that no one can come to God but through Him.

Jesus is it! He died for our sin so we could be reconciled with our holy Creator!

If you don't own a Bible, you can download one on to your phone using the "UVerse" Bible app. ❤️

Did you also saw things at your jaw yourself ? My physiotherapist saw that my right side is a little bit thicker then the other side and that it's misaligned. I also have now weird headaches like someone is pressing on my head from above my head and like next to my ears and the edges of where my hair start did you also had that ?? @Marina Moon

@xLuchiaaa I haven't had a doctor assess the muscles of my face yet to determine if one side is thicker than the other, but I know that I had clicking in my left tmj and my left side of my face hurts more, despite experiencing pain bilaterally. I have weird heachaches too, like a pressure all around my head, it's not constant though.

Do you have pain while eating? Usually I can eat without my face hurting and wierdly the pain stops as I chew, but If i eat harder things like jelly beans, or try to open wide, then i get a sharp pinch in my jaw.