Recent content by AmePerdue

Some good news for me - about 6 months ago, I was diagnosed with intracranial hypotension due to a CSF leak (CSF venous fistula). I got treated in the hospital 2 weeks ago, got that vein embolized with medical glue, and the pressure around my brain went back to normal, with a bit of rebound...

I agree that a potential 6 dB reduction provides hope. But in my book, it will be "proven to work" only when I see the cascade of enthusiastic user reviews on Tinnitus Talk joyfully announcing that their tinnitus was halved and it doesn't bother them anymore.

Interesting. Napping is a common insta-trigger for me so I can relate to that too.

It's still just speculation on my part but this is something I've observed in these past 2 years with tinnitus and I'm seriously starting to sense a pattern. So for context, my tinnitus is extremely variable in volume. It can go from near silence to extremely loud and intrusive in a matter of a...

Are some tones more maskable than others? How do they account for day-to-day fluctuations or natural spikes that can be weeks or even months long?

I'm not implying that the more we wait, the more Auricle will be a silver bullet. It may very well turn out to be a disappointment and it will certainly not work on everyone. But it's been the only truly promising tinnitus-specific treatment in the pipeline since my onset and the only one giving...

I personally don't mind them taking their sweet time. My worst fear is not waiting 3-5 more years for the device. It's trying it and being disappointed and falling into hopelessness and despair again. Despite being on the brink of suicide 2 years ago when my tinnitus started and I discovered...

Reading your post made me concerned about that and I want the answer too, but I see no indication that she dodged the question. The problem with the highlighted part is that it is not a question but a statement. Not only that but one in a long list of statements ending in a non-specific...

I've had tinnitus for 2 years, it's 2 years too long and yet recent enough that I can remember just relaxing in the countryside at night in winter with zero external noise and hearing that faint hissing, thinking "huh, interesting, silence isn't really silence". It wasn't tinnitus because I...

I don't mind flying to the USA to buy the device either but I'm concerned multiple trips per year might be needed for follow-ups and adjusting the settings and that kind of stuff.

All I want is to reduce my tinnitus loudness, I did my own habituation. So far only Auricle is promising in that aspect. Lenire isn't meant to reduce loudness, neither is TRT.

Just so you know, your story is very close to mine as to the insomnia, got prescribed Zopiclone and Benzos (Oxazepam) after a string of nights with zero sleep. Oddly enough, I did not have any problems sleeping for the first couple weeks as I thought my tinnitus was going to go away. It was the...

Hi Mangels, I gave up on it after my last update due to lack of noticeable effect. The capsules are still sitting in my drawer.

@marcjrf, I got one box at the pharmacy in terminal 4 of Madrid Barajas airport. You can email them beforehand, in my experience they answer pretty quickly. I emailed them in Spanish.

Update: After a 1 week pause, I've been taking Sulodexide again for the last 3 days. Tinnitus has been high the whole time regardless. I'm starting to think the respite I had during my first week with Sulodexide may have been a coincidence. (Part of my normal tinnitus cycle.) I'll try to double...