Recent content by CaliGirl

I saw on TV Biohaven is recruiting for OCD patients. Not sure if it is the same drug.

Did your tinnitus go back down after you stopped the Nortriptyline? Did you try the Gabapentin? How often were you getting migraines?

They put me on 10 mg of Nortriptyline and tons of vitamins. Dr. Djalilian's theory is my tinnitus is related to migraine, even though I haven't had a migraine in years. No mention of Gabapentin, but maybe that will be next if the Nortriptyline doesn't work. I haven't try it yet. I actually have...

Did you follow the protocol and take the medications? Did Dr. Lin offer a different treatment? Thanks.

I saw Dr. Djalilian a couple of weeks ago. His instructions to me were vitamins and Nortriptyline.

I did ask Dr. Djalilian about his clinical trial and electrical stimulation (sorry if I didn't use the correct term). He said they are working on it. To be honest, he seemed really busy and told me to get fitted for hearing aids and take the Nortriptyline. He said that is the solution for me...

I just saw Dr. Djalilian two days ago and my experience is very similar to another member's. Basically his instruction is to take vitamins and Nortriptyline. When I inquired about sleep solutions, he told me to see a sleep specialist.

What about Dr. Shore's device? It should help you, right?

I feel exactly the same way. I fluctuate between sadness and anger. Hoping something will help us soon. Besides Dr. Shore's device (hoping it is effective), is there anything we can look forward to?

So @Nick47, XEN1101 may or may not help us? Is there anything we can look forward to in the near future?

Hi @VickiD, I have the whooshing noise in my ear too, but no headache. I have a doctor's appointment scheduled in a few weeks. Any update on your symptoms?

Beside Dr. Shore's device, is there anything we can look forward to in the next couple of years? XEN1101?