Recent content by FlubOtic

Did you ever find a solution, or did you eventually get used to it? I have the same thing.

Ah, I see, and you’re right. Based on how I worded it, it does sound less like a success than it actually is. My tinnitus being 30 percent louder is normal right now because I have packing in my right ear that blocks my hearing. This makes the tinnitus seem louder than it really is. The volume...

How is it not? I had surgery to treat my debilitating middle ear myoclonus, which causes objective tinnitus. My symptoms are completely resolved in the ear that was operated on. It cured me. There is a small chance that the muscles could reattach in the following weeks, which might require a...

I had my tensor tympani muscle cut a few days ago. So far so good!

Do not remove the tensor veli palatini. Use Botox instead. It would have a similar effect, but it wouldn’t be permanent. I’m not sure if removing the tensor veli palatini is even possible, but it would be a terrible idea. Swallowing would become difficult, your voice would sound awful, and your...

Dr. Manohar Bance in the UK administers Botox injections into the middle ear muscles. You would need to be evaluated first. If he believes you have middle ear myoclonus, he will proceed with the treatment. If you do not have symptoms of middle ear myoclonus, it is not worth pursuing, as this...

I'm copying most of this from my post in the MEM Facebook group for people here who might find it helpful: I had a tensor tympani tenotomy on 7/28/25 on my right ear with Dr. Robert Saadi at UAMS. I believe I'm the second person in the Facebook group to report cutting only the tensor tympani...

Wow, I came looking for updates on Susan Shore and happened to see this today. Perfect timing. I’m so excited, and thank you for setting this up. An update has definitely been due, and I’m sure this Q&A will offer a lot of clarity.

Did this improve any for you? I know you said you wouldn't update unless a miracle happens, but I'm curious if things improved at all since this post? Even just a little improvement?

Hey Joe. I was wondering how you are doing now? Any more clicking or middle ear spasms. Have you found a long term fix for your clicking?

Hey Colvis, How did your tensor tympani tenotomy go with Dr. Bance? Did it stop the sound reactive noises you had?