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Recent content by lolkas

  1. lolkas

    Poll: Would You Trade Your Tinnitus for a 5-Year Prison Sentence?

    This question may sound silly, but it brings up an interesting idea. What if there were a combination of questions one could answer that would demonstrate to the world how impactful this condition is? I think the Tinnitus Quest team would also like to see such a “live” questionnaire being...
  2. lolkas

    Introducing Tinnitus Quest

    Tinnitus Quest is a great initiative. Currently, there is practically ZERO representation of the hearing loss/tinnitus population (ATA is a joke, in my view), and if Tinnitus Quest could reach out to the world, that would be fantastic! I think there is also a lack of communication between...
  3. lolkas

    Rinri Therapeutics

    I don’t think that their procedure is more complicated than a cochlear implant surgery, which is pretty much outpatient. They want to be able to accurately deliver the drug via the round window, therefore I think they will cut behind the ear and to it like that, or perhaps they will make a...
  4. lolkas

    Reformulated Retigabine (Trobalt): BHV-7000, a Kv7.2 Modulator by Biohaven (Pfizer)

    How common would it be for someone to have damaged potassium channels? I would imagine that is something like stroke or genetic mutations? I mean if someone would have their potassium channels damaged, then Trobalt would not work for epilepsy either. I don’t think that an acoustic trauma can...
  5. lolkas

    Evidence of Cochlear Neural Degeneration in Normal-Hearing Subjects with Tinnitus

    Okay, so here is my problem with it: what does “nerve loss” mean? Like you have totally fine outer hair cell & inner hair cell situation in cochlea, and all of a sudden the nerve bundle between the cochlea and the brain gets damaged? Is this what they mean? I find this extremely unlikely to be a...
  6. lolkas

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    Can you or @ErikaS share a link for the trial's contact information, please? I cannot find it on the web. Ty!
  7. lolkas

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    I live in NYC. Could I try to enroll in the trial?
  8. lolkas

    New University of Michigan Tinnitus Discovery — Signal Timing

    The device needs to be used constantly, until something can regenerate the hearing damage somehow. I see what you are saying though.
  9. lolkas

    Reformulated Retigabine (Trobalt): BHV-7000, a Kv7.2 Modulator by Biohaven (Pfizer)

    If I am reading it right, the majority saw improvements, very little worsening overall and we don’t really know what these worsening are from anyways (could be something else). Trying to correlate epilepsy with tinnitus, and if the drug takes about equal time to work on both epilepsy and...
  10. lolkas

    Reformulated Retigabine (Trobalt): BHV-7000, a Kv7.2 Modulator by Biohaven (Pfizer)

    This definitely sucks but I was sure of them denying the request (unfortunately). They are definitely not planning on trialing this on anything BUT what they know this will work on. Even if they have people with tinnitus in the trial being treated for epilepsy and they report positive effect on...
  11. lolkas

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    It would be nice to also know how much of a reduction (subjective of course) he got? I read that people's tinnitus got eliminated while on Trobalt.
  12. lolkas

    New University of Michigan Tinnitus Discovery — Signal Timing

    My understanding is that you won’t see/can’t search submissions, but only approvals? Basically I thought stuff gets listed after approval.
  13. lolkas

    New University of Michigan Tinnitus Discovery — Signal Timing

    We have had comments here from folks whom are involved with FDA/pharma in their professional lives and the 6 month time frame for this device to be potentially approved is very much realistic. ENT/audiology training is most likely going to be online which will help to expedite the process...
  14. lolkas

    Auditory Cortex Neuroplasticity and Aging

    Lenire is pretty much hot garbage. Neuroplasticity is something that humans lose with time but slightly, otherwise you would never be able to learn anything new at an older age which isn’t true. And, if Dr. Susan Shore is correct about us basically having misfiring neurons - all we need to do...
  15. lolkas

    Low-Level Laser Therapy (LLLT) for Tinnitus — Experiences (Dr. Wilden, etc.)

    Are you sure that the LEDs in these are strong enough?