Nes's latest activity

  • Nes
    Nes replied to the thread SAGE Therapeutics — CNS Disorders.
    5 to 10 years IF things go well, of course, because it might also never happen 😉 Apparently it is. Although, given the very small number of...
  • Nes
    It depends. Usually, it does not change much. If I take a full nap cycle of about one to one and a half hours, it quiets down. If I nap for 40...
  • Nes
    I’m the exact opposite. My tinnitus is very quiet when I wake up, but it gets louder as the day goes on.
  • Nes
    Nes replied to the thread SAGE Therapeutics — CNS Disorders.
    It might mean that, although more trials will certainly be needed. Ten participants with one adverse effect is not very strong evidence. More...
  • Nes
    Nes replied to the thread SAGE Therapeutics — CNS Disorders.
    I’m looking forward to the publication, and that seems like good news!
  • Nes
    Nes reacted to Christiaan's post in the thread SAGE Therapeutics — CNS Disorders with
    Agree
    Agree
    .
    Can GABAkines Quiet the Noise? The GABAA Receptor Neurobiology and Pharmacology of Tinnitus (Witkin et al., 2022) Abstract Tinnitus is a highly...
  • Nes
    Nes commented on Nes's profile post.
    @delta784 not really, mine is more localized in my ears directly (both ear are drastically different)
  • Nes
    Nes updated their status.
    In need of a bit of advice : I'm weening off hearing protection at home, my hyperacusis is really settling down, but my tinnitus is getting worse...
  • Nes
    Nes commented on delta784's profile post.
    Hello! I think the last time I took clonazepam was when I was hospitalized in June and couldn't sleep because I had bad tachycardia. Otherwise no...
  • Nes
    Yeah, I get it. I had that a lot too. Now I’ve accepted that it’s not going away, so I might as well live my life again. It’s hard to say because...
  • Nes
    I know you’ve had this condition for a while, and that you know yourself better than anyone. But is there even the slightest chance that the...
  • Nes
    I got tinnitus about 1.5 years ago, and I started seeing the first signs of improvement after beginning Clonazepam, following 10 months of pure...
  • Nes
    Nes commented on Nes's profile post.
    Actually, my hyperacusis is almost completely gone today. It makes no sense, I'm running on 2h of sleep
  • Nes
    Nes updated their status.
    My tinnitus is often lower when I'm exhausted. That's a good news because tinnitus is exhausting lol
  • Nes
    Mine is often louder when I wake up, then it calms down within ten minutes to an hour after waking. If I wake up in the middle of the night, it...
  • Nes
    I have the same thing, and for me, I attribute it to a general lack of auditory input since I overprotect a lot. The more I panic about it, the...
  • Nes
    Nes commented on Nes's profile post.
    @Kam75 i took the opposite approach and overprotected until it went down (my H is accompanied by nerve pain and my tinnitus is reactive). Sorry...
  • Nes
    Nes updated their status.
    Also, quick update: my hyperacusis has gone down to the point I feel comfortable listening to cars passing outside again. Spikes are very...
  • Nes
    Nes updated their status.
    Today I saw a great ENT who told me that recovering from hyperacusis is like recovering from surgery. It takes time, and everyone is different. He...
  • Nes
    When I wake up, my jaw feels tight. Because of that, it was pretty easy for me to recognize that I have TMJ. In addition to that, I experience jaw...
  • Nes