orenge01's latest activity

  • orenge01
    When tinnitus becomes severe, it can be a very cruel and demanding condition that few people, even those who "have tinnitus," can understand...
  • orenge01
    I have been suffering from extremely debilitating tinnitus for six years, following a music festival where I was wearing custom-made hearing...
  • orenge01
    People who assault others with sound, or otherwise should go to jail. It’s insane that we allow people to go around doing that. So sorry that...
  • orenge01
    Hey, I know exactly how you feel. The spike is terrifying, especially when it stays loud and unmaskable for days. I can only hope it will subside...
  • orenge01
    It’s been over three weeks now, and the spike still hasn’t subsided from the vacuuming incident. I can’t believe this happened while I was wearing...
  • orenge01
    orenge01 reacted to BrOKeN_1's status with
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    This condition is endlessly frustrating. Had the quietest day in almost 5 years yesterday for no apparent reason. Made me hopeful. Then today...
  • orenge01
    orenge01 reacted to BrOKeN_1's status with
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    Having a savagely loud t spike today. GOOD GRIEF!!
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    orenge01 reacted to kingsfan's comment on BrOKeN_1's profile post with
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    It's such a bully
  • orenge01
    orenge01 commented on BrOKeN_1's profile post.
    Hey, at least you had a good day I guess. :/ This condition is so damn relentless, I'm going through a spike currently that doesnt want to fade...
  • orenge01
    I heard about Quviviq a long time ago. It is finally available in France. I was thinking about giving it a try. I'm sorry it did not work as...
  • orenge01
    Man, that sucks. I’m also going through a severe spike right now. I wonder if it’s the cumulative effect of those dental drilling sessions. I...
  • orenge01
    orenge01 reacted to Sodlin's comment on Sodlin's profile post with
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    Did exactly the same numerous times. I remeber i had to take a "phone call" over a television that had like 80% volume and it was screaching from...
  • orenge01
    orenge01 reacted to Sodlin's comment on Sodlin's profile post with
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    Remeber its the anxiety that makes u not able to sleep not the tinnitus. alot of people got TT over 80 DB constant in their ears and sleep like...
  • orenge01
    orenge01 commented on Sodlin's profile post.
    Yeah exactly, I think I've realized this too. The more I'm scared of the sound the more likely I will spike. There seems to be some correlation there.
  • orenge01
    orenge01 commented on Sodlin's profile post.
    @Sodlin Yes you are so right, thank you for reminding me. It's also anxiety that starts the downwards spiral, thinking of the cumulative damage...
  • orenge01
    orenge01 commented on DorianP's profile post.
    @DorianP No humming, no rumble, just this loud hissing, like a dying lamp :/
  • orenge01
    I’m sorry this happened to you, man. Spikes suck, but they usually get better within a few weeks. Personally, I’m going through a spike right now...
  • orenge01
    orenge01 commented on Sodlin's profile post.
    Reading this, I think we might have a very similar spike in terms of characteristics, this gives me some more hope that this will in fact subside...
  • orenge01
    orenge01 commented on Sodlin's profile post.
    Couldn't've said it better myself. 1 step forward and 2 steps backwards is exactly what it feels like :/
  • orenge01
    orenge01 commented on Sodlin's profile post.
    90-95db personally already sends me into panic mode especially if its sudden. I realize I'm definitely not over T in anyway that I've previously...
  • orenge01
    orenge01 reacted to Sodlin's comment on Sodlin's profile post with
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    Normally i can handle "medium high" sounds and brush them of or forget about them in like 1-2 hours but this sound instantly sent me into panic...
  • orenge01
    orenge01 reacted to MindOverMatter's comment on Sodlin's profile post with
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    I think you are doing yourself a big favour, not in a positive way, to assume instant spikes and thinking "worst case" with every incident. Its...
  • orenge01
    orenge01 commented on Sodlin's profile post.
    We seem to be quite similar in the fact that I also didn't use this site at all because I was generally doing fine, but now with this mega spike...
  • orenge01
    orenge01 reacted to Sodlin's comment on Sodlin's profile post with
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    Thanks for the uplifting spirit. Been 3 days now and its still roaring in one of the ear :/ I seem to never manage to "keep calm" during these...
  • orenge01
    orenge01 reacted to MindOverMatter's comment on Sodlin's profile post with
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    This the nature of tinnitus @Sodlin Ups and downs. Dont let the downs get to you too much (easier said than done, I know), and they will usually...
  • orenge01
    orenge01 commented on orenge01's profile post.
    @Scruffiey Well I can say you were right. I was not smart to be reckless like this. And of course I don't want it to get worse, navigating through...
  • orenge01
    Yes, I definitely agree with this. I’m currently going through a spike because of a brief situation where I didn’t use hearing protection. The...
  • orenge01
    This will pass. If you try to leave it alone and treat it for what it is, a temporary spike, the sooner it will fade and return to baseline. The...
  • orenge01
    My tinnitus is usually mild and slightly reactive, but I’m currently experiencing a two-week spike after vacuuming the house while wearing...
  • orenge01
    orenge01 reacted to Richard zurowski's post in the thread Instant Spike with
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    I agree with your comments. Anything a bump. A knock. Anything loud. Always seem to start a spike. And it takes days or even weeks to subside...
  • orenge01
    orenge01 commented on Sodlin's profile post.
    Yeah. But I think it was a bit worse this time, I was right next to a loud sound source probably closer to 90db for like at least 30-45 seconds...
  • orenge01
    orenge01 reacted to Sodlin's comment on Sodlin's profile post with
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    Yes my wardrobe incident made a huge setback but now im on track again. I think 99.5% of my setbacks probably are just temporary and i think the...
  • orenge01
    orenge01 commented on DorianP's profile post.
    I can relate. This spike I'm going through is very persistent and wakes me up at night :/
  • orenge01
    orenge01 reacted to DorianP's status with
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    I haven't been able to sleep well these past few days. I'm too anxious because the low humming/rumbling in my left ear is just too loud. It's by...
  • orenge01
    Yeah, it can unfortunately be hard to tell when you need protection. But if your first reaction is that the noise makes you uncomfortable, that’s...
  • orenge01
    orenge01 reacted to Sodlin's status with
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    Starting to forget my tinnitus a little bit more again. Still think it spiked thru the wardrobe incident but somehow i dont "care as much" when...
  • orenge01
    orenge01 commented on Sodlin's profile post.
    That's good. I was feeling good too, but then I encountered a setback again. And it feels like I'm at square one. But I know this happens...
  • orenge01
    Yeah, emphasis on protection. When it feels loud, that’s usually when it’s most needed. I’ve had this for more than three years now and recently...
  • orenge01
    I got mine from a concert. It fluctuated a lot, and it took almost a year before I started having more good days than bad ones. Next month will be...
  • orenge01
    orenge01 updated their status.
    I think I'm going through a nasty setback right now, I guess for being kinda reckless. Dunno if its from noise exposure or something else, but T...
  • orenge01
    orenge01 reacted to Varda's comment on samatx's profile post with
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    I don't really like to get into the differences about "physiological" or "psychological" pain. Its all nervous system cells. Doesn't matter if...
  • orenge01
    orenge01 commented on adpolandam's profile post.
    Not good. I'm going through a setback again unfortunately. I'm so tired of this shit. :grumpy:
  • orenge01
    orenge01 updated their status.
    I now have fullness in both ears, dunno whats happening but it feels like I have earplugs in even if I dont have them in, it's some weird...