SarahMLFlemmer

Not so good day. Thank you for checking in. ❤️ There will be better days for us, I promise. Gotta work hard for them, but better.

Awful day didn’t sleep good last night either. Glad you are home ok. I sure hope you are right about better days. Oh is your anxiety bad? I was wondering if you take anxiety medicine?

@SharonBell my anxiety was really bad, it's better now. I take medication for sleep only, yes (Amitriptyline 25mg). I take lowest dose Xanax for really bad days where I need to rest, but only occasionally.

Hang In There. I know it's tough. I know it's miserable. You are stronger then you know.

Hang in there Sarah. Things can and will turn around for you again. Breaking down is natural when the reality of this condition becomes too much. Healing thoughts your way! <3

Sorry Sarah. It really really sucks. Hope you feel better soon. The other night I was literally pacing around at 1 am wondering what the hell im going to do. I know how you feel. Covid definitely spiked me good.

❤️❤️❤️

❤️❤️❤️

Me to Sarah

Yeah got to be strong. I try to everyday and it’s hard.

Sarah I haven’t worked in months ever since this Tinnitus started. It seems like loud noises make it worse. I was looking at CBT stuff last night with Dr. Hubbard. How can someone habituate when it’s so loud and never stops is 24/7. Homeschooling must be hard especially when you don’t sleep. I didn’t sleep good either. I go to bed with ears and head buzzing-static and get up the same way every day.

Sarah have you heard that your tinnitus is normally as loud as it was diagnosed. Something like that. I read that somewhere last night. So mine is extended high frequency.

Sorry Sarah ❤️ Remember you have been able to get through 100 percent of your worst days so far. Thinking of you

My heart sits side by side with yours today. We are feeling the same :(

@MaxRabbit it is not easily masked, only the shower helps, but even then I can hear it. My brain is starting to forget about it more, but not today.

My T is usually the same every day 24/7 unless I’m around noise or eat something I shouldn’t. Do y’all have to watch what you eat and drink and have a set bedtime and listen to sound machines at night.I can’t be around anything real loud because of my hair cell damage. I couldn’t even go to the haunted forest this year with my husband and daughter because of the chainsaw.

My noise can get louder if I don't use protection and am around loud noise for a long period of time. I don't watch what I eat and drink, no. T sucks no matter what I do, so I don't monitor it in that way. I do have to use sound throughout the day or my head starts to hurt. I have to use low sound though or my T competes.

Sarah that is very loud.

4Grace do you feel it in your head or just your ears?

@SharonBell - the physical vibration is only on the right side of my head. Sound is so strong I feel it in my ears too. Like much tighter vibrations in ears but more burning. Sometimes, not always, my entire head is full of sound. Full. With both ears and all of this. I cannot at take listening to that YouTube video not even at lowest level. I would say I have 4, 7 and 9. If I remember correctly. Can’t listen again.

100 percent

Do you really know what I mean by your head buzzing? Does it do that to you also?

@SharonBell I can find the sound closest to mine to send to you. The sound sometimes makes my head shake inside.

Bed time for 5 months was hell. No more then an hour if that for 5 months. No meds worked for me. Sleep came back to me with a few weeks mirt then came off. Sleep stayed. It’s the only thing I got going. Only problem is when I wake up can’t wait to go back into bed. Even if I stay on my phone. So sad. :(

@4Grace I still can't get off medication for sleep and I want to so bad. Sometimes I even have to pop 2 pills. I'm glad you're able to at least fall asleep! I wake up often too. Sorry.

@SarahMLFlemmer - I understand. I actually wish I could take a Med. I need one for the pain and sound. Also to deal with the impact on my life. I know I think about taking something everyday. I know everyone hates takings meds. So sorry too. So sorry.

Small steps ❤️ better than standing still

Hello. Read your posts. So happy you have a lowered volume/or perception. I habituated to all my crazy high ring tones at about 6 months. Unfortunately, I worsened after. Best I can say is sleep!, mental health, support - and protecting as needed- will save you from getting worse.

@MaxRabbit I guess it's still pretty loud and gives me a headache a lot of days, I still want it gone, but am coping better each week. Some days, not so much, but a lot better than I once was!

Ahh that's very nice to hear. Encouraging for me too (sometimes I'm worried about the severe acoustic t). Maybe there will be ups and down days... at least as the overall trend (weeks or even months) is going to improvement, more harmony that's good. Nice! Have a good day :)

Great to hear @SarahMLFlemmer may it continue!!!

That is clear progress @SarahMLFlemmer

Yeah! ❤️

You think diet is helping?!

Don't know about Serc, but I started with LDN a few days back & I feel as though it may be making my T a little quieter, at least for some time. So may be worth a shot, esp since it's pretty low risk from what I've read.

It can also help with mood. I just don't know how it'd interact with the Ami... I have a feeling it's not advised.

@SarahMLFlemmer - your faith in God will sustain you. It is real and it is truly beautiful to see. You can tell that everyone on TT can see it. You are active with your kids even though you suffer at times. Thats is truly inspirational. That is not easy. Wow! I wish I had just a bit of that in me. No need to respond to this. Had to say it. Keep going, keep being you.

i understand the feeling and have been there too...but don't give up! Things will get better!

You have to stay because you're my T bestie. ❤️

Are you still taking accutane? @SarahMFlemmer I don't know how long it takes for body to remove this drug? If it's been a while, the migraines may be from something else? (with T makes it altogether worse). : ( *hugs*

@sakrt I stopped Accutane on 10/24/2022, I started having migraines 3 weeks after my last dose and then T started 11/20/2022. I've had migraines and T ever since.

@SarahMLFlemmer Gosh that's just awful. Have you had any easing of symptoms at all since then? Are the changes of recovering from T caused by meds versus sound trauma the same?

It drives me crazy too. I'm learning how to deal with it. It isn't easy, but it's getting a little easier at 11 months in.

How interesting. I have T from medicine and it's louder on my left.

mine is med induced and louder in one ear. they don't know what they're talking about as usual hahah

I had a regular audiogram but plan to have an extended soon. Audiogram showed normal. Maybe having an extended one will tell me more. Can you tell that you lost hearing?

Gosh, my baseline tinnitus is always quite consistent. Maybe fleeting is a good sign that it's on it's way out?.... I'm not doctor though, not that they have much of a clue either sometimes haha

@GG_Ear I keep hoping it'll fleet away then when it comes back down, switch it all off. But it doesn't. =(

@SarahMLFlemmer - I have yet to find anything that is good for T :-/

Vertigo is common with Meniere's as is Tinnitus, that's likely why you came across it.

@Tryn2BHopeful I did have vertigo but not anymore.

I understand your pain. I authentically care for your well being. I want to communicate all words of encouragement. Please stay strong. It’s heart breaking to hear this. It really is.. you are an incredible human being.

@4Grace took a nice long bath with lavender and epsom salt. It's the only thing that helps calm me besides Xanax, and I really don't want to depend on meds, especially now since my T was med induced.

@4Grace thank you for your kind words.