SarahMLFlemmer

That flashback is my whole existence. My every waking moment. I take loooong showers and make myself very busy to cope.

eustachian tube dysfunction @SarahMLFlemmer

@Strawberryblonde what is TTTS?

https://www.healthyhearing.com.au/tonic-tensor-tympani-syndrome

@SarahMLFlemmer

@Ryan Scott Yes, I am doing well! =D

But now my right ear feels clogged and like a airplane engine??? =/

How are you?!

@SarahMLFlemmer Pretty much the same as everyday just dealing with tinnitus lol. Good to hear you are doing okay.

@Ryan Scott I developed tinnitus 11/20/22 and then had a 3 month mental breakdown and even some days having suicidal thoughts. My mental health was VERY BAD. Just about this last month I have been coping A LOT better. I still have days where I cry and get overwhelmed but I think I've finally made it to "stage 2 habituation."

@ZFire I've tried that. It seems to be doing better SO FAR today. We'll see how the rest of the day goes.

@ZFire well, that didn't last look. My tinnitus is quieter than onset and a different tone but this pressure is weird! I can't pop my R ear when I plug my nose and blow through my cheeks, only my L ear.

@SarahMLFlemmer , you might want to give bioflavonoids a try as well. Some people here have reported relief from taking them.

But ultimately what @makeyourownluck (hi) has said. She’s an expert on this.

@Jsm_Joestar I haven't. I don't think it's an infection. I'm thinking it's pressure, not fluid. Sounds like an airplane engine??!!

@SarahMLFlemmer ah thought it could be that because you said it feels like there is water in your ear

@Jsm_Joestar it's so hard to explain how it feels. =S

Whenever I have a loud exposure my tinnitus gets louder, my ear pain increases and sometimes the ear feels full or dull like mild hearing loss. Then I go back to baseline. Used to take days, now it takes hours.

Ultimately you need to listen to your body and if you think its a code red situation then by all means go seek medical advice. If you have a major exposure (gun discharge, loud close fireworks, etc) and then experience hearing loss then definitely go see a doctor quickly because early intervention matters.

@GeorgeLG I don't know if it's a "code red" or if it's "normal" with tinnitus. ={ I don't think I was exposed to anything too loud, maybe a vacuum or blow dryer. If it is hearing loss, it's mild. And my right side of my head feels strange, kinda shaky inside, maybe pressure? It's hard to explain. I probably should make an emergency ENT appointment just to be safe rather than sorry, huh?

@Lurius This is new to me!

@SarahMLFlemmer. Have you tried hearing aids yet??

@Anthony2019, not yet...

The first time I got it was in spring of 2016, but it was quickly resolved after a chiropractor did some "moves". The 2nd time, which is what I'm still suffering from, was in August 2018, when I did a valsalva maneuver after having had a common cough for about a week. I believe the maneuver was the trigger, but what is maintaining it is probably a nasty concoction of anxiety PTSD, loneliness, some hearing loss etc.

@Isaac Ramsay ...it's insane!

@Lurius That's crazy!

@Anthony2019 I agree!

We should have a tinnitus island in the Caribbean.

@just1morething We should!

One time I had a pumpkin spice latte and had the worse spike 4 hours later. Haven't been brave enough to try caffeine since lol. I use to love a cup of coffee and doing some math too.

Yes along with salt and sugar but its temporary

Everything aggravates tinnitus.

What are you studying?

@Ryan Scott Currently in the book of Hebrews on Monday nights and I am involved in a "Biblical Mental Health" class Wednesday nights at our church. I'm also going through the book of John. =)

@SamRosemary I'm trying to "habituate" without anything, but I'm sure when I get desperate enough, I'll start calling around. I should probably start looking around now though at least so I'll know where to go.

I wonder if me trying to "do it all by myself" is just me being stubborn...

It's not being defeatist having a try of hearing aids nor is it being stubborn not too :) if it helps it helps and if it's helps you habituate faster then it's all good :) @SarahMLFlemmer

@SarahMLFlemmer. Don't try to do it yourself. See if it helps you. It's worth trying.

@sakrt Wouldn't just listening to T everyday help with habituation over trying to cover up the sound with hearing aids? What kind of doc do I see to test drive them?

Not me @SarahMLFlemmer which is torture, hearing it 24/7, w/ combo of H & noxacusis from CI. It doesn't need to be hearing-aids, but any soft "safe" sounds helps distract to a certain degree. From my exp. ENT Drs. don't discuss devices, which is weird, but defer you over to audiology. If you're lucky, like @Michael Leigh had, is to find a patient experienced T/H audiologist. I have not come across one yet myself.

@sakrt okay, so look for an "good" audiologist that knows a thing or two about tinnitus.

@Anthony2019 Thanks for the heads up!!

@Anthony2019 Why two?

I feel like I hear more than most people now. =P I probably should try them though.

@Anthony2019 even if I don't have hearing loss? At least nothing significant...?

@just1morething Yeah, I've seen the M. Device has been talked about for YEARS on this forum. Come spring 2024 if it's really released then, I'm sure we'll have to wait some time after that too.

@SarahMLFlemmer, I think Lenire has been FDA approved but it seems it has mixed reviews for helping tinnitus.

@just1morething Apparently the Lenire device will be in the US next month.

@SarahMLFlemmer i just said this exact same thing ^ to my mom and sister over the weekend. I know I am not bipolar, but man does this make me feel bipolar and it is exhausting in all aspects.

@SarahMLFlemmer I'd say the Shore Device looks promising withing the next couple years and kv7 openers within the next 4 years if all goes well.

@ErikaS I'm so sorry.

@BrysonKingMe Yeah, I had a 3 month mental breakdown over it. I'm 4 months in, still struggling but much better than I was.

@Lurius I bet you're right!

@Ryan Scott Oh man! Mine was caused by medication and I'm about 4 months in. It's somewhat better than onset but I can't tell if it's really better or that my attitude is better.

I get the exact same thing with pain behind one of my ears randomly, and I had no idea if it was connected to T or not.

Might be a tension headache or related. You might want to try increasing relaxation methods. Yoga, meditation, mindfullness, light exercise, calming herbs or supplements, magnesium, etc

I get a dull ache and sharp pain on one side of my face and behind my ear, something nerve related I think. It's all connected one way or another.

It likes to show off all its tunes like its conducting an opera!

@Strawberryblonde Apparently. =/

Yeah, but do my wild deer go to deer heaven?

@just1morething I like to think so!

@Strawberryblonde and now numbness/pins and needles.

You could be subconsciously clenching your jaw muscles surrounding your neck area and not realising it? The stress of the T flaring up could be a contributor? Also do you suffer with any sinus issues?.

Have you been checked out for these issues? @SarahMLFlemmer

@Strawberryblonde I don't think I have sinus issues...

Definitely hardest thing I’ve ever been through in my life.

It's one of the worst things to have especially as the help is so limited besides pills masking and habituation.

@Strawberryblonde @SamRosemary Keep hanging on new friends!

I can do all things through Christ who strengthens me. Philippians 4:13 <3

@ErikaS AMEN! That verse that you just quoted, John 16:33, and Romans 8:28-29 have really helped me to see things a differently with my new health ailment. <3

@BrOKeN_1 I just took a look through clinical trials for T and that popped up on the website. See my last post.

Virtual insanity

https://www.youtube.com/watch?v=2WBdAsE2Lnc