SarahMLFlemmer

@ErikaS I did not have any hearing loss detected on the audiogram but IDK if she checked for high frequency loss or not or if that's apart of the test already.

@SarahMLFlemmer They didn’t work for me, but I’ve heard of many they do work for and I can understand how they could help others. I wish they did help me. Maybe I didn’t use them enough or wasn’t ready, I dunno. Maybe I’m too reactive. I have no hearing loss too, but have heard they can help people without hearing loss. Worth a shot for everyone.

@SamRosemary How did you develope T and how long have you had it?

Also, I don't know who I would see to even try out hearing aids, maybe just my regular ENT or do I have to find someone who specializes in tinnitus?

@Ryan Scott

Yes, certain sounds, including those from the right kind of hearing-aids can sometimes help mask some types of nonreactive T, which in turn encourages the habituation process. Seems it's helping you @Anthony2019 ?

@sakrt Wouldn't just listening to T everyday help with habituation over trying to cover up the sound with hearing aids? What kind of doc do I see to test drive them?

@Anthony2019 Thanks for the heads up!!

@Anthony2019 Why two?

I feel like I hear more than most people now. =P I probably should try them though.

@Anthony2019 even if I don't have hearing loss? At least nothing significant...?

The Michigan device could take forever before it’s available to us, that’s the problem.

@just1morething Yeah, I've seen the M. Device has been talked about for YEARS on this forum. Come spring 2024 if it's really released then, I'm sure we'll have to wait some time after that too.

@SarahMLFlemmer, I think Lenire has been FDA approved but it seems it has mixed reviews for helping tinnitus.

@SarahMLFlemmer i just said this exact same thing ^ to my mom and sister over the weekend. I know I am not bipolar, but man does this make me feel bipolar and it is exhausting in all aspects.

@SarahMLFlemmer I'd say the Shore Device looks promising withing the next couple years and kv7 openers within the next 4 years if all goes well.

@ErikaS I'm so sorry.

@BrysonKingMe Yeah, I had a 3 month mental breakdown over it. I'm 4 months in, still struggling but much better than I was.

@Lurius I bet you're right!

@Ryan Scott Oh man! Mine was caused by medication and I'm about 4 months in. It's somewhat better than onset but I can't tell if it's really better or that my attitude is better.

I get the exact same thing with pain behind one of my ears randomly, and I had no idea if it was connected to T or not.

Might be a tension headache or related. You might want to try increasing relaxation methods. Yoga, meditation, mindfullness, light exercise, calming herbs or supplements, magnesium, etc

I get a dull ache and sharp pain on one side of my face and behind my ear, something nerve related I think. It's all connected one way or another.

It likes to show off all its tunes like its conducting an opera!

@Strawberryblonde Apparently. =/

Yeah, but do my wild deer go to deer heaven?

@just1morething I like to think so!

@Strawberryblonde and now numbness/pins and needles.

You could be subconsciously clenching your jaw muscles surrounding your neck area and not realising it? The stress of the T flaring up could be a contributor? Also do you suffer with any sinus issues?.

Have you been checked out for these issues? @SarahMLFlemmer

@Strawberryblonde I don't think I have sinus issues...

Definitely hardest thing I’ve ever been through in my life.

It's one of the worst things to have especially as the help is so limited besides pills masking and habituation.

@Strawberryblonde @SamRosemary Keep hanging on new friends!

I can do all things through Christ who strengthens me. Philippians 4:13 <3

@ErikaS AMEN! That verse that you just quoted, John 16:33, and Romans 8:28-29 have really helped me to see things a differently with my new health ailment. <3

@BrOKeN_1 I just took a look through clinical trials for T and that popped up on the website. See my last post.

Virtual insanity

https://www.youtube.com/watch?v=2WBdAsE2Lnc

@SarahMLFlemmer I always try to keep perspective and be “thankful” as it could always be worse. For example, just getting home from grocery store. Did it aggravate my T? Yep. But it will calm down/reset eventually. Many with worse T or another chronic condition wish they could go to grocery store but cannot.

@Strawberryblonde We are working on doing some mass balances to see if we can run our units at a lower rate efficiently.

@Ryan Scott I don't know what that means exactly, but SWEET!!

20th of June, @ErikaS

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I agree with @Strawberryblonde, do you think you're subconsciously clenching your jaw muscles?

Don’t let this site scare you into thinking you has noxacusis or whatever. I used to be scared of every little ear pain thinking it was getting worse. It never did

@Marshall @Joe Cuber @Strawberryblonde I don't think I have H at all. I got tinnitus from a withdrawl from Accutane. I also experience pressure headaches and migraines along with facial and neck pain so I think it's all connected somehow. :( Accutane messed me up something serious. My whole face and head hurts about 5-6 days a week now.

It was good :) managed to go to a brewery/pub and didn't need my plugs as things didn't seem loud :)

How had your weekend been? @SarahMLFlemmer

@Joe Cuber I think the same, actually! When I have things to keep me preoccupied, it helps but when I don't I still struggle to relax.

@Strawberryblonde Good to hear it!

They will come in waves. Good and bad days. Focus on the good days you have been having a build on that :D

@tniuf I did stay very busy... But sometimes I just want to relax, you know? "/

No, I do not have noise sensitivity or H, but I have facial pain and pressure migraines often. =Z

@Strawberryblonde Thank you love!

You too :)

And the same to you :)

@Ryan Scott some it helped and others it worsened them. Not been right through the thread but it's very 50/50 when I've had a quick snoop.

I think @Ryan Scott is right. I believe Dr. Shores will be much, much more effective, or at least I hope! Wish they would fast track it to beat Lenire to be the first on the market here in this space, dare to dream :)

@SarahMLFlemmer just saw that Lenire will be available in US in April. So at least the US folk have something to consider, even if it’s not the best ;)

@Strawberryblonde https://youtu.be/CKgqC2KDo0w

https://m.facebook.com/TinnitusHub/videos/susan-shore-on-bimodal-stimulation-for-tinnitus-tri2019/523466471533938/?locale=ne_NP

@Strawberryblonde Thank you!!

Mine felt the same at times, oddly enough I started to put ice on it when it occured and it somehow brought some relief to the burning and inflamed sensation.

Does your T only stay in one ear or does it go in and out of both ears / head at all?

@ErikaS honestly, I don't even know! I think it's only my left and then sometimes I feel like I can hear it in my right! If it's in my right, it's a lower volume. Yes, it goes into my head but that seems to finally have calmed down some.

Yep, many can feel the sound(s). I feel like this is linked to very sensitive and/or partially damaged inner ear nerves. I completely envy those who just have a sound but no feeling to it.

I can feel the vibration in my right ear when I lie down but the others i don't. I think the brain is adding sensations to the noises.

Mine is unilateral, nearly 24/7 sensation, tormenting aggressive, with low-bass rumbling sound, however it's primarily pulsatile which may be the factor behind it all. I've described this to ALL my Drs. in loop-cycle :(