Comments on Profile Post by Drone Draper

  1. Agrajag364
    Agrajag364
    Yuuup
    Apr 9, 2019
    Holly1987 and Drone Draper like this.
  2. Strife_84
    Strife_84
    Yep. It's funny how in my.dreams I don't hear T. They say humans hear in dreams too, but at morning my head was almost silent before fully awakened...
    Apr 9, 2019
    Drone Draper likes this.
  3. Drone Draper
    Drone Draper
    I actually had various nightmares the first week of T about getting T in various methods. I heard my T in the dreams then. I don't hear it in my dreams anymore, but I do get kept up by the T.
    Apr 9, 2019
    Strife_84 likes this.
  4. Drone Draper
    Drone Draper
    @Agrajag364 - It's so aggravating, because on a day like today, being told it's just something I have to deal with would be ... not EASY, but I could see how I could get to that one day. I don't know what the future brings, but my T changes so much, I wouldn't be surprised if I get loud T by this afternoon.
    Apr 9, 2019
  5. Agrajag364
    Agrajag364
    Apr 9, 2019
  6. Strife_84
    Strife_84
    @Drone Draper I had one of my most beautiful dreams few days after getting T. Ironic. But I saw nightmares about doctors though few days ago. This is stressful.
    Apr 9, 2019
    Drone Draper and Agrajag364 like this.
  7. Autumnly
    Autumnly
    Thank you!
    Apr 9, 2019
    Holly1987 and Drone Draper like this.
  8. OnceUponaTime
    OnceUponaTime
    Glad you are having a nice quiet day.
    Apr 9, 2019
  9. Drone Draper
    Drone Draper
    Thank you.
    Apr 9, 2019
    OnceUponaTime likes this.
  10. Striveon
    Striveon
    Agreed....
    Apr 9, 2019
    Drone Draper likes this.
  11. Drone Draper
    Drone Draper
    @Agrajag364 - That is irresponsible of them! It will belittle sufferers in the eyes of others and is also completely illogical. 70db ringing at 10kHz vs. 30db fuzz at 500hz. Which do you think is going to be less intrusive? Which will cause a person to completely change their lives? I can't stand these people.
    Apr 9, 2019
    Strife_84, TheDanishGirl and Autumnly like this.
  12. Autumnly
    Autumnly
    The BTA said the same thing until @david c reached out to them and asked them to change it. Let's all write an email to ActionOnHearingLoss and ask them to change it! Or tweet at them. Edit: A kind email! A rude one would just hurt our community.
    Apr 9, 2019
  13. TheDanishGirl
    TheDanishGirl
    Exactly! I would like to ask belivers of this theory if they have found it is just as easy concentrating/falling asleep to a loud on-going alarm, as oppose to a light buzzing from a quiet fan. I think they would agree that the latter is easier......if not, they are liars.
    Apr 9, 2019
    Drone Draper, Agrajag364 and Autumnly like this.
  14. TheDanishGirl
    TheDanishGirl
    And I don't even have severe T but I'm not stupid and can easily tell that severe loud T is much more distressing and debilitating then low T. of course it is!
    Apr 9, 2019
    Drone Draper and Autumnly like this.
  15. Agrajag364
    Agrajag364
    Great idea @Autumnly!

    My t is quiet right now and it’s awwwwesome. Loud Is a different kettle of suffering fish
    Apr 9, 2019
    TheDanishGirl likes this.
  16. Drone Draper
    Drone Draper
    @Autumnly - I was sure I read it on the BTA website a few months ago! Couldn't find it just now. I'm happy they changed it, because it's illogical nonsense. Please send an e-mail @david c .

    I hope we one day can actually measure subjective tinnitus, so the people who treat sufferers can actually understand how severe it is.
    Apr 9, 2019
    Autumnly and TheDanishGirl like this.
  17. Autumnly
    Autumnly
    Emails don't seem necessary anymore, they saw it on twitter! Sorry for derailing this thread. Really happy to hear @Drone Draper is experiencing mild tinnitus, hope you'll have more and more moments like this!
    Apr 9, 2019
    Drone Draper likes this.
  18. Drone Draper
    Drone Draper
    It's not derailing. It's evolving ;) I think it's very important to end this myth that "it's all about your attitude" and a day like today truly shows me how this is oversimplified at best and damaging at worst.
    Apr 9, 2019
    Strife_84 and Autumnly like this.
  19. Drone Draper
    Drone Draper
    I've not changed that many things in the last few weeks, but the T has improved overall - some bad, some good days, but the trend has been good. Subsequently, I'm more relaxed and more at ease. Would I have been able to say that if I had the same noises as at the beginning? Absolutely not!
    Apr 9, 2019
  20. Drone Draper
    Drone Draper
    Conversely, if it starts to get worse, I don't think I could continue staying positive.
    Apr 9, 2019
  21. GSC
    GSC
    Good job on twittering them @Autumnly I've been trying to do that too, but have been busy, so I haven't been much on twitter lately since the voting ended.
    Apr 9, 2019
    Drone Draper likes this.
  22. GSC
    GSC
    ALSO, DRONE, YES, FADE MORE, GET RID OF THAT T!!
    Apr 9, 2019
    Drone Draper likes this.
  23. Drone Draper
    Drone Draper
    Apr 9, 2019
  24. GSC
    GSC
    Oh, me too. In Jason C we cherish. Amen.
    Apr 9, 2019
    Drone Draper likes this.
  25. Autumnly
    Autumnly
    They said they removed that line!
    Apr 9, 2019
    Drone Draper and GSC like this.
  26. Drone Draper
    Drone Draper
    Nice! I can't see the line on the page now! Good job.
    Apr 9, 2019
  27. Agrajag364
    Agrajag364
    Apr 9, 2019
    Autumnly likes this.
  28. Agrajag364
    Agrajag364
    You should post a new thread with your achievement.
    Apr 9, 2019
    Deamon22 and Drone Draper like this.
  29. Agrajag364
    Agrajag364
    @Drone Draper I think they use MML i.e. minimum masking level to measure subjective tinnitus, it does count as a formal outcome measure. I find this useful in comparing T with those I know who have it IRL
    Apr 9, 2019
    Drone Draper likes this.
  30. Holly1987
    Apr 10, 2019
    Drone Draper likes this.