Comments on Profile Post by Gareth Davies

Hopefully FX-322, PIPE-505 or OTO-413 will help us. PIPE-505 Phase 1 results should be coming out soon.

Hi Gareth any improvement in the sound levels of your T?

Perhaps some minor improvement? Very much a waiting game.

Suppose minor improvements are better than none. How long have u had T for now?

Very true. 13 months at this point :S Slowest year of my life.

Im 10M in i remember us getting it the same time due to the same reason. My hearing is fine and the ENT is useless as F. I have popping crackling clicking crunching and the ent said its not ETD because your eardrums move fine. He didn't even bother doing an endoscopy or a ear pressure test he kindly wasted my time and the NHS money on another hearing test as i already had one in october which came out fine.

I'm going to ask for another referral to another hospital.I also can feel something iin my inner ear and it sometimes feels sore. The ENT was very dismissive of my symptoms What test did your ENT do?

Yeah, I wouldn’t waste your time with the NHS. You wait for months for a 5 minute phone call - never even met my NHS ENT. Go private if possible. My private ENT did a ear pressure test last year - confirmed the pressure was off, etc.
(My NHS ENT even told me ETD does not cause tinnitus! My private ENT confirmed it does.)

Yep - I regularly feel soreness and movement in my affected ear - like a living piece of clay. I’m convinced it’s just stubbornly inflammed tissue - it’s just difficult to “get at” and treat due to the skull being in the way.
Darn skull :S

Oh, and I can sleep now. Which…which I’m very, very, very, very, very, very, very, very, very, very, very, very, very, very, very grateful for.

OMG my ENT said that ETD doesn't cause T either. Funny thing is he was from a private hospital. He was dismissive of my symptoms. Were your eardrums fine or sore mine were healthy and said that u cant have ETD because your eardrums are healthy. Im just going to get another another referal. Did you request these test? I

I also can feel something stuck in my inner ear. All i need is an ear pressure test and an endoscopy. That will give me a peace of mind but the ENT said something like we don't have the facilities for that or something yet they were a privavte hospital

if you dont mind me asking how much did you pay for it i dont want to pay for it and them just waste my time and not do the relevant test

My eardrums were healthy. You can have ETD with healthy eardrums - mine are fine for example. The test was offered first thing with my private ETD - didn’t have to ask. Definitely look for a different private hospital in that case! It was around £100-200 I believe for the test and initial appointment.

thats acc not to bad might consider it