Gareth Davies

No problems with 1st dose of Pfizer

I did this but without a camera, you have a good idea. Just make sure the doctor is all in and understands what you want. Mine half assed it, I was in a lot of pain which he decided was reason to abort the procedure and he just went half way down for a second, came back out and said he didn't see anything which I don't think was very accurate.

Thanks for the advice!

I’m having mine in an open bore MRI machine which means I won’t be in the tube. Looks more like a doughnut. It’s supposed to be a lot quieter. Do you mind if I ask was yours of your head?

Interesting; never heard of that type of MRI machine before. Yep - just my head.

That is awesome and it only took a few minutes. I’ve only had them of my lower extremities and they’ve always taken so much longer.

Old Greg +1

Alister

I like the suggestion haha

There's still movement in my E tube - i.e. tissue randomly sliding around, spasms, etc - BUT it's a lot less aggressive than before the operation. It kind of feels like my head is full of marshmallows. (Now I hope natural healing will solve the rest of the problem.)

Ah that's so annoying. :-/ I've had this awful hair on back of tongue sensation for over two weeks. It has driven me to tears. I can't get rid of it. :( Hope apart from the 'wet feeling' that everything else is okay?

It’s not terrible; it seems to come and go :o
That’s horrible Steph - I’m sorry :( I really hope it’s a just passing thing and it will go away soon ;)
Yes, thanks - the T does seem less “relentlessly” aggressive compared to before the operation. Sleep is easier. Just gotta keep watching and waiting.

Maybe I'm reading into nothing. It ~could~ be air travelling through the E tube for the first time in months..hmmm. Noooo idea :)

Thanks Pray. Yes, just got to wait, wonder and hope :)
They don’t hurt, no.

Did this help? My right ear is constantly blocked and I'm considering this procedure. I'm still convinced my low roaring is from this, not menieres

It moderately helped - my tinnitus is quieter. However, I still have ETD symptoms at this point in time. Doctor said to wait 1-3 months.

wish you easy recovery Gareth!

Thank you! :)

Oh my goodness gareth! I hope it went/has gone well!? I'll be thinking of you. <3

Definitely endurance and resilience.

It also hurts like heck. Popping my ear helps for a second. Sod this I’m watching Netflix! >:/

Enjoy it my wacky friend. ;)

I'm almost certain it is because this has always been something I've experienced. If I'm not mistaken, this is just normal behavior of your eustachian tube. It's very likely something that you just never noticed before now because you had no need to concern yourself over your ears.

Then again, I might be misunderstanding what you mean by "crackle". It's hard to really relay what exactly entails a sound with words.

It’s like someone briefly rolling up bubble wrap or squashing Rice-Krispies. I’ve done some more reading, and it does seem to be a normal thing.

Perspective is always a useful commodity. Thank you Steph. That is terrible news regarding your delay; I’m sorry :(

Thanks Gareth. I just hate the way covid has slowed everything down. I'm hoping it's done this year.

sorry to hear that. I was just coming on here to ask u how it is going!

Hi Charbee; not yet.
However, it is close now - less than a week in fact.
I'm pretty nervous, but looking forward to the day with a hopeful mind.
(I'll be posting the result once I've recovered from the operation.)

Ugh - another night of head vibrations - it’s like there is endless mini-quake going on in my ear.

I get these symptoms as well. Although I have experience patulous ET before and never wanna deal with that so I’d be worried about balloon inflation

Yeah, I think patulous ET is a bit my rarer than normal ET? Patulous ET causes whooshing or rumbling from what I’ve read, because the tube is in a open locked position? The procedure is pretty safe from what I’ve been told. Again, no cutting, stitching or burning. It’s over in 15-20 minutes.

Same. Leave it alone. If you're like me, the clogged feeling is from hearing damage. Messing with it just aggravates the nerves. Let it be and it will improve with time. I'm a year and a half in.

Yeah, I'm not going to try again. The only reason I did it last night was that I felt a new burning sensation in my ear, pain and tissue sliding around / squeezing and contracting - thought I'd try my luck.
Didn't pan out :/

Learn from your mistakes, listen to the signals given to you by your own body and act accordingly.

Genetic engineering won't become widely available in the future.

Within 20 years we might no longer be able to enjoy indoor plumbing.

We’ll just have to see ;)

And if I wiggle my mouth around I feel a “glob” of something inside, in that area. Can only assume it’s squished up tissue. Hurts as usual, etc.

Oh yay! Absolutely best of luck Gareth! I hope it helps.

@Gareth Davies thank you. yeah loudness isn't an issue anymore. I don't hear it driving or in the house with low ambient noise around. I don't hear it outside. I'm experiencing almost complete silence. In the last few days, most tones have actually vanished. I have one annoying morsecode sound left. But even that is fading. I haven't done anything specific - just protected my ears. How's yours these days?

Jealous ;) But that’s good news then! The same as it was in September really. I can’t hear it that’s much outside or if I move quickly. But staying still indoors? I put an electrical masking noise on (which luckily masks 100%). I don’t seem to get spikes - though I don’t feel tempted to test that theory anytime soon haha.

I don’t think it’s going to progress or improve any further until the ETD is resolved (it’s like a cereal commercial in there).
Luckily I’ve got a double ENT appointment this week - public and private.
If they re-confirm evidence of inflammation and the dilation surgery is green-lit, there might be changes in the future.
Again, just got to stay hopeful...

Maybe. You could go on top of the pops?

At long last, all of my dreams are coming true!