Gareth Davies
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Gareth Davies

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Is there any consensus on which is the safest vaccine for T sufferers? I’m hearing bad things about Pfizer. Apr 19, 2021 at 2:35 PM

    1. Gareth Davies
      Gareth Davies
      Is there any consensus on which is the safest vaccine for T sufferers? I’m hearing bad things about Pfizer.
      1. Diesel
        Diesel
        No problems with 1st dose of Pfizer
        Apr 19, 2021 at 4:11 PM
        Gareth Davies and Steph1710 like this.
    2. Gareth Davies
      Gareth Davies
      Going to ask my ENT if they can arrange a micro camera into my E-tube, and record the results - maybe get some answers on the tissue lining.
      1. martinberryhorse and Steph1710 like this.
      2. martinberryhorse
        martinberryhorse
        I did this but without a camera, you have a good idea. Just make sure the doctor is all in and understands what you want. Mine half assed it, I was in a lot of pain which he decided was reason to abort the procedure and he just went half way down for a second, came back out and said he didn't see anything which I don't think was very accurate.
        Apr 11, 2021
        Gareth Davies likes this.
      3. Gareth Davies
        Gareth Davies
        Thanks for the advice!
        Apr 11, 2021
        martinberryhorse likes this.
    3. Gareth Davies
      Gareth Davies
      Had my MRI - I think the machine was a later model, so it wasn't as loud as I dreaded. (No spike from the procedure. Wore ear defenders.)
      1. View previous comments...
      2. Forever hopeful
        Forever hopeful
        I’m having mine in an open bore MRI machine which means I won’t be in the tube. Looks more like a doughnut. It’s supposed to be a lot quieter. Do you mind if I ask was yours of your head?
        Apr 6, 2021
      3. Gareth Davies
        Gareth Davies
        Interesting; never heard of that type of MRI machine before. Yep - just my head.
        Apr 6, 2021
      4. Forever hopeful
        Forever hopeful
        That is awesome and it only took a few minutes. I’ve only had them of my lower extremities and they’ve always taken so much longer.
        Apr 7, 2021
        Gareth Davies likes this.
    4. Gareth Davies
      Gareth Davies
      Surprise MRI appointment letter, the day after my birthday!? :o
      1. Steph1710 likes this.
    5. Gareth Davies
      Gareth Davies
      Ah, Alister, why must you wiggle and hurt me so :( I thought we were coming around. Becoming friends even. Well, more cider for me, I guess.
    6. Gareth Davies
      Gareth Davies
      I’ve invested in a re-useable gel pack and am going to be doing a bit of heat / ice therapy from now on. Strapping it on is a bit fiddly :S
      1. Bill Bauer and Steph1710 like this.
    7. Gareth Davies
      Gareth Davies
      I’m thinking of giving the living dough octopus in my ear a name. I’m thinking Greg... Any other suggestions?
      1. View previous comments...
      2. Charburchar
        Charburchar
        Old Greg +1
        Mar 18, 2021
        Gareth Davies and Steph1710 like this.
      3. Bill Bauer
        Bill Bauer
        Alister
        Mar 19, 2021
        kuromi, Gareth Davies and Steph1710 like this.
      4. Gareth Davies
        Gareth Davies
        I like the suggestion haha
        Mar 19, 2021
    8. shasta0863
      shasta0863
      Did the balloon solve the low frequency vibrating hum/ spasm you talked about? I think I have something similar.
      1. Gareth Davies
        Gareth Davies
        There's still movement in my E tube - i.e. tissue randomly sliding around, spasms, etc - BUT it's a lot less aggressive than before the operation. It kind of feels like my head is full of marshmallows. (Now I hope natural healing will solve the rest of the problem.)
        Feb 28, 2021
    9. Gareth Davies
      Gareth Davies
      Every day I am grateful that lofi music exists. It’s not silence, but combined with masking, it’s the bronze medal to it. It’s something.
    10. Gareth Davies
      Gareth Davies
      Inside of my head feels wet. That's new.
      1. Steph1710
        Steph1710
        Ah that's so annoying. :-/ I've had this awful hair on back of tongue sensation for over two weeks. It has driven me to tears. I can't get rid of it. :( Hope apart from the 'wet feeling' that everything else is okay?
        Feb 12, 2021
        Gareth Davies and twa like this.
      2. Gareth Davies
        Gareth Davies
        It’s not terrible; it seems to come and go :o
        That’s horrible Steph - I’m sorry :( I really hope it’s a just passing thing and it will go away soon ;)
        Yes, thanks - the T does seem less “relentlessly” aggressive compared to before the operation. Sleep is easier. Just gotta keep watching and waiting.
        Feb 13, 2021
        Steph1710 likes this.
    11. Gareth Davies
      Gareth Davies
      Insides of the post-surgery ear feel weirdly, erm... cold? Not freezing but pretty darn chilly. Like someone left a fridge door open. Odd.
      1. Gareth Davies
        Gareth Davies
        Maybe I'm reading into nothing. It ~could~ be air travelling through the E tube for the first time in months..hmmm. Noooo idea :)
        Feb 11, 2021
        Bill Bauer and Steph1710 like this.
    12. Gareth Davies
      Gareth Davies
      Back from surgery. No immediate improvement but have been advised by my doctor that the majority take 1-3 months to notice the benefit.
      1. Charburchar, Ilias T and Steph1710 like this.
      2. View previous comments...
      3. Gareth Davies
        Gareth Davies
        Thanks Pray. Yes, just got to wait, wonder and hope :)
        They don’t hurt, no.
        Feb 13, 2021
        twa likes this.
      4. Jrblovsky
        Jrblovsky
        Did this help? My right ear is constantly blocked and I'm considering this procedure. I'm still convinced my low roaring is from this, not menieres
        Feb 14, 2021
      5. Gareth Davies
        Gareth Davies
        It moderately helped - my tinnitus is quieter. However, I still have ETD symptoms at this point in time. Doctor said to wait 1-3 months.
        Feb 15, 2021
        twa likes this.
    13. Gareth Davies
      Gareth Davies
      Surgery is in 8-12 hours...let’s see how this goes.
      1. Kriszti, Steph1710, Ilias T and 3 others like this.
      2. DaysToWaste
        DaysToWaste
        wish you easy recovery Gareth!
        Feb 3, 2021
        Gareth Davies likes this.
      3. Gareth Davies
        Gareth Davies
        Thank you! :)
        Feb 3, 2021
        DaysToWaste likes this.
      4. Steph1710
        Steph1710
        Oh my goodness gareth! I hope it went/has gone well!? I'll be thinking of you. <3
        Feb 4, 2021
        Gareth Davies likes this.
    14. Gareth Davies
      Gareth Davies
      If tinnitus has taught me anything, it’s how to be patient (among a few other things). Or perhaps just endurance. Sheer bloody endurance.
      1. Steph1710
        Steph1710
        Definitely endurance and resilience.
        Feb 1, 2021
    15. Gareth Davies
      Gareth Davies
      Crazy levels of movement and vibration in my head. Tinnitus is currently piercing - like ultra oscillating glass. Can’t sleep.
      1. Gareth Davies
        Gareth Davies
        It also hurts like heck. Popping my ear helps for a second. Sod this I’m watching Netflix! >:/
        Jan 30, 2021
        Steph1710 likes this.
    16. Gareth Davies
      Gareth Davies
      My head feels like a washing machine set to max spin rotation. It’s kind of fun. Kinda.
      1. Steph1710 and Bill Bauer like this.
      2. Steph1710
        Steph1710
        Enjoy it my wacky friend. ;)
        Jan 29, 2021
    17. Gareth Davies
      Gareth Davies
      I know this question has been asked a billion times, but is hearing your ear crackle (regardless of infections) when you swallow normal?
      1. View previous comments...
      2. Drachen
        Drachen
        I'm almost certain it is because this has always been something I've experienced. If I'm not mistaken, this is just normal behavior of your eustachian tube. It's very likely something that you just never noticed before now because you had no need to concern yourself over your ears.
        Jan 19, 2021
        Gareth Davies likes this.
      3. Drachen
        Drachen
        Then again, I might be misunderstanding what you mean by "crackle". It's hard to really relay what exactly entails a sound with words.
        Jan 19, 2021
      4. Gareth Davies
        Gareth Davies
        It’s like someone briefly rolling up bubble wrap or squashing Rice-Krispies. I’ve done some more reading, and it does seem to be a normal thing.
        Jan 19, 2021
        Drachen likes this.
    18. Gareth Davies
      Gareth Davies
      The spasms make it feel like someone is always dancing on my head.
    19. Gareth Davies
      Gareth Davies
      Operation was tomorrow - less than 24 hours. Now it’s been delayed by another three weeks...great.
      1. aot likes this.
      2. View previous comments...
      3. Gareth Davies
        Gareth Davies
        Perspective is always a useful commodity. Thank you Steph. That is terrible news regarding your delay; I’m sorry :(
        Jan 13, 2021
        Bill Bauer likes this.
      4. Steph1710
        Steph1710
        Thanks Gareth. I just hate the way covid has slowed everything down. I'm hoping it's done this year.
        Jan 13, 2021
      5. PrayForMe
        PrayForMe
        sorry to hear that. I was just coming on here to ask u how it is going!
        Jan 18, 2021
        Gareth Davies likes this.
    20. Charbee
      Charbee
      Hi Gareth, did you have the balloon inflation done? Hope you are keeping well.
      1. Selah1281 likes this.
      2. Gareth Davies
        Gareth Davies
        Hi Charbee; not yet.
        However, it is close now - less than a week in fact.
        I'm pretty nervous, but looking forward to the day with a hopeful mind.
        (I'll be posting the result once I've recovered from the operation.)
        Jan 9, 2021
        Steph1710 likes this.
    21. Gareth Davies
      Gareth Davies
      Here’s hoping to a better year.
    22. Gareth Davies
      Gareth Davies
      In-ear vibrations, random tissue movement and spasms have become semi constant now. Static T unaffected.
      1. View previous comments...
      2. Gareth Davies
        Gareth Davies
        Ugh - another night of head vibrations - it’s like there is endless mini-quake going on in my ear.
        Dec 23, 2020
      3. LukeYoung
        LukeYoung
        I get these symptoms as well. Although I have experience patulous ET before and never wanna deal with that so I’d be worried about balloon inflation
        Dec 23, 2020
      4. Gareth Davies
        Gareth Davies
        Yeah, I think patulous ET is a bit my rarer than normal ET? Patulous ET causes whooshing or rumbling from what I’ve read, because the tube is in a open locked position? The procedure is pretty safe from what I’ve been told. Again, no cutting, stitching or burning. It’s over in 15-20 minutes.
        Dec 23, 2020
    23. Gareth Davies
      Gareth Davies
      Every time I try ETD unblocking exercises, I wake up the next day with an even more blocked ear and horrible tinnitus. Go figure.
      1. aot likes this.
      2. Rb86
        Rb86
        Same. Leave it alone. If you're like me, the clogged feeling is from hearing damage. Messing with it just aggravates the nerves. Let it be and it will improve with time. I'm a year and a half in.
        Nov 30, 2020
        aot and Steph1710 like this.
      3. Gareth Davies
        Gareth Davies
        Yeah, I'm not going to try again. The only reason I did it last night was that I felt a new burning sensation in my ear, pain and tissue sliding around / squeezing and contracting - thought I'd try my luck.
        Didn't pan out :/
        Nov 30, 2020
      4. Bill Bauer
        Bill Bauer
        Learn from your mistakes, listen to the signals given to you by your own body and act accordingly.
        Nov 30, 2020
    24. Gareth Davies
      Gareth Davies
      When genetic engineering becomes widely available in the future, they are going to need to edit this flaw in human design out :S
      1. twa and Charburchar like this.
      2. Bill Bauer
        Bill Bauer
        Genetic engineering won't become widely available in the future.

        Within 20 years we might no longer be able to enjoy indoor plumbing.
        Nov 29, 2020
      3. Gareth Davies
        Gareth Davies
        We’ll just have to see ;)
        Nov 29, 2020
        Tanni likes this.
    25. Gareth Davies
      Gareth Davies
      I have strange sensations of movement somewhere inside and around my ear. It could be the (palatini?) muscles contracting and expanding?
      1. Gareth Davies
        Gareth Davies
        And if I wiggle my mouth around I feel a “glob” of something inside, in that area. Can only assume it’s squished up tissue. Hurts as usual, etc.
        Nov 25, 2020
    26. Gareth Davies
      Gareth Davies
      Pop, crackle, crackle, pain, crackle, POP, crackle, pain, PAIN, crackle, pop - and repeat for nearly 5 months. A bone only takes 5 weeks...
      1. twa likes this.
    27. Gareth Davies
      Gareth Davies
      The balloon dilation surgery is booked; and now I wait. Wait and see.
      1. Steph1710
        Steph1710
        Oh yay! Absolutely best of luck Gareth! I hope it helps.
        Nov 6, 2020
        twa and Gareth Davies like this.
    28. Gareth Davies
      Gareth Davies
      I’m trying to work out the frequency of my T - it’s a metallic static; but every tester I’ve tried has been for pure tone noise. Any ideas?
      1. Steph1710 likes this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        @Gareth Davies thank you. yeah loudness isn't an issue anymore. I don't hear it driving or in the house with low ambient noise around. I don't hear it outside. I'm experiencing almost complete silence. In the last few days, most tones have actually vanished. I have one annoying morsecode sound left. But even that is fading. I haven't done anything specific - just protected my ears. How's yours these days?
        Nov 3, 2020
        twa and Gareth Davies like this.
      4. Gareth Davies
        Gareth Davies
        Jealous ;) But that’s good news then! The same as it was in September really. I can’t hear it that’s much outside or if I move quickly. But staying still indoors? I put an electrical masking noise on (which luckily masks 100%). I don’t seem to get spikes - though I don’t feel tempted to test that theory anytime soon haha.
        Nov 3, 2020
      5. Gareth Davies
        Gareth Davies
        I don’t think it’s going to progress or improve any further until the ETD is resolved (it’s like a cereal commercial in there).
        Luckily I’ve got a double ENT appointment this week - public and private.
        If they re-confirm evidence of inflammation and the dilation surgery is green-lit, there might be changes in the future.
        Again, just got to stay hopeful...
        Nov 3, 2020
        twa and Steph1710 like this.
    29. Gareth Davies
      Gareth Davies
      My right ear has started popping after a hike. A lot. 117 POPs in 15 minutes! Do I get to win a Guinness World Record maybe? :o
      1. Steph1710 and Nadia231 like this.
      2. musicblue
        musicblue
        Maybe. You could go on top of the pops?
        Oct 17, 2020
        Steph1710 and Gareth Davies like this.
      3. Gareth Davies
        Gareth Davies
        At long last, all of my dreams are coming true!
        Oct 17, 2020
        Steph1710 likes this.
    30. Gareth Davies
      Gareth Davies
      ETD is determined to crush my right ear cavity into smush. It is “exquisitely” uncomfortable.
      1. Steph1710 likes this.
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  • About

    Gender:
    Male
    Tinnitus Since:
    03/07/2020
    Cause of Tinnitus:
    Middle Ear Infection & ETD