Comments on Profile Post by Forever hopeful

Tinnitus and hyperacusis are a heavy burden on us 24/7. It can be hard for close ones to always be supportive towards us because of their own hardships / not understanding our suffering. I know people around me will get tired if I always complain to them.

Big hug for you. This condition stinks. I’ve just had a flu and my ears are a mess. People don’t understand.

I feel you. None of our closest ones get how debillitating it is. If they had only spent an hour in our shoes..

@Gabriel5050. I’ve had a tough year. I’ve had a lot of medical issues and so it’s been sort of issue after issue on which I’ve been perseverative. So I get he’s fatigued. I take any of those issues over this.

I think you hit the nail on the head @Forever hopeful. I’ve had a similar year, just one thing after another.

We are the ones going through it, but the people close to us are impacted heavily and often feel powerless to help. We have to cut them some slack as well. Empathy goes both ways.

Are you seeing any signs of improvement? You are on steroids just now?

@makeyourownluck I have not really noticed any improvement. It’ll be two weeks tomorrow since my T increased. I will also be finishing my high-dose steroids on Saturday. What strikes me is just how high frequency it is.

Some people report louder tinnitus when on steroids. Maybe things will calm down after they leave your system. I have my fingers crossed for you.

@makeyourownluck. Well, I’ve never had that problem before. But it could also be that steroids leads to increased anxiety and higher anxiety makes you more vigilant about listening for the noise. So maybe once they clear maybe the noise will reduce somewhat.