Forever hopeful
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Forever hopeful

Member, Female, from USA

Hearing test today! Wish me luck please. Nov 20, 2023

Forever hopeful was last seen:
Feb 27, 2024 at 7:40 PM
    1. SharonBell
      SharonBell
      Forever hopeful how are you doing? Has your T gotten better? I saw a post you said your husband has T also, how bad is his T? Havnt seen you on here just wanted to check on you.
    2. SharonBell
      SharonBell
      My ears do feel fuller, I’m suppose to take it everyday. My audiologist looked in her book and Trazadone was less than 1% side effect for tinnitus.
      1. View previous comments...
      2. Forever hopeful
        Forever hopeful
        @SharonBell And he thinks that there’s still a very good chance it’s related to my TMJ. My TMJ related headaches have gotten appreciably worse in the last few weeks along with my tinnitus. I’m getting fitted for a mouthguard. Going back to PT for my jaws. But I’m really terrified this is a permanent worsening and I have no idea how I’m going to live with this.
        Nov 22, 2023
        Strawberryblonde likes this.
      3. SharonBell
        SharonBell
        Yeah a lot of people put different comments on here about medicine and how it affects them. Do you take Trazadone every day?
        Nov 22, 2023
      4. Forever hopeful
        Forever hopeful
        Nov 23, 2023
    3. SharonBell
      SharonBell
      Do you still take trazodone? My doctor prescribed it for anxiety. I just started taking it again and I’m just scared it’s going to make my tinnitus worse. I have seen so many people say different things about it not so good. It has been helping me sleep better, I havnt noticed yet if my tinnitus feels louder.
    4. Forever hopeful
      Forever hopeful
      Hearing test today! Wish me luck please.
      1. Robster, Joe Cuber and DeanD like this.
      2. View previous comments...
      3. Forever hopeful
        Forever hopeful
        @MindOverMatter, went fine but they don’t do extended because there are no benchmarks for higher frequencies not part of the normal soundscape. In other words they don’t expect us to hear dog whistles. Now I have hope the TMJ treatment works.
        Nov 20, 2023
      4. MindOverMatter
        MindOverMatter
        Good luck with TMJ treatment @Forever hopeful . Ive been there myself, many times. My TMJ issues has gotten a lot better after extensive treatment, home exercises and bite guard made by a specialist dentist.
        Nov 21, 2023
      5. Forever hopeful
        Forever hopeful
        Nov 21, 2023
    5. Forever hopeful
      Forever hopeful
      Went to dinner for my husband’s birthday. Used the heavy duty ear plugs. Listened to my ears scream all night. Even the drinks didn’t help.
      1. DeanD likes this.
      2. View previous comments...
      3. DeanD
        DeanD
        I do sometimes wonder if the occlusion effect we experience does more harm to our ears and tinnitus than the surrounding noise we are trying to protect from. I wear ear protection of some form outdoors due to my reactivity, but the occlusion effect can be very loud and intense, especially when talking and eating.
        Nov 19, 2023
        aab and Forever hopeful like this.
      4. Forever hopeful
        Forever hopeful
        @MindOverMatter Agreed but every place is loud now. And I find myself angry when others come in to dine and ruin my quiet.
        Nov 19, 2023
        NTV likes this.
      5. Forever hopeful
        Forever hopeful
        @DeanD. Hope not. I try really hard not to eat crunchy things. Last night the sound of my voice wasn’t very loud because the ambient noise was loud enough. I noticed the occlusion effect of my own voice mostly it’s quiet around me. Which is almost never the case in a restaurant.
        Nov 19, 2023
    6. Forever hopeful
      Forever hopeful
      Anyone get intermittent roaring in head when congested? This happens to me when I get a bad head cold. Don’t have it otherwise.
    7. SharonBell
      SharonBell
      Forever hopeful I put my comment on there from the question you asked.
      1. View previous comments...
      2. Forever hopeful
        Forever hopeful
        @SharonBell Looked online to see if congestion can cause head noise. And it all pointed me towards tinnitus. Whaaat? It’s not like I have it normally. Tuesday tried to take a nap and my head started making the noise and nose itched. This am I woke up and I turned over and it started making that noise so got up b/c it was irritating. The minute I got up it stopped. 10 hrs later I have a full blown head cold.
        Nov 16, 2023
      3. Forever hopeful
        Forever hopeful
        @SharonBell It never used to bother me because I always assumed was related to my head cold because it was the only time it ever happened to me. I wonder if I’m just freaking out about it because I’m in a spike and I’m just freaking out about everything right now.
        Nov 16, 2023
      4. SharonBell
        SharonBell
        I think mine is from my extended high frequency hearing loss. I know the brain causes my noise because I have hair cell damage and then the brain is coming up with sound to take the place. Mine is all the time.
        Nov 16, 2023
    8. SharonBell
      SharonBell
      A lot of people think they have hair cell damage, but until they get an OAE or get tested at a tinnitus clinic. I can say that I think normally if it’s noise induced it’s normally constant, very loud. I know I read yesterday that normally your tinnitus is going to be as loud as what your test said, like mine was extended high frequency and that’s how mine is.
    9. SharonBell
      SharonBell
      ENT standard frequency test was ok. I had a high frequency test at tinnitus clinic and it was very bad. Right ear-110db@10k,90db@12.5, 60db@16k. Left ear was 20db@10k,20db@12.5k,40db@16k. Mine is so bad I believe that is whyIT IS 24/7 in my ears and head buzzing-static. So right was sever profound extended high frequency and left was mild. Hair cell damage again I believe made mine louder.
    10. Forever hopeful
      Forever hopeful
      Oh My. This is a frequency unknown to me. A tea kettle is lower I think. Who has this and has improved?
    11. Forever hopeful
      Forever hopeful
      Pure tone ring in the L ear is back. Had it x 1 month pst spring. Had it x 5 months in 2021 following HL. HL resolved as did T.
      1. Robster
        Robster
        Pure tone is the worst. I get it very rarely thankfully, but when I do get it, it's tough to deal with. Wishing you a speedy recovery.
        Nov 13, 2023
        Forever hopeful likes this.
    12. Forever hopeful
      Forever hopeful
      Ugh this spike. Not helping that my mom was placed in hospice. Dad died then past March. Too much. Wish T would settle.
      1. Ryan Scott likes this.
      2. BrOKeN_1
        BrOKeN_1
        Sorry to hear about your Mom. Stress can really negatively effect this condition. Praying for you and your family today.
        Nov 9, 2023
        Forever hopeful likes this.
      3. Ryan Scott
        Ryan Scott
        Nov 9, 2023
        Forever hopeful likes this.
      4. Forever hopeful
        Forever hopeful
        @BrOKeN_1 @Ryan Scott Thank you both. Worst year of my life on top of other medical issues and this awful condition.
        Nov 11, 2023
    13. Forever hopeful
      Forever hopeful
      Massive spike. Been doing well. Went to restaurant on birthday with ear protection. Now reactive even higher pitched T.
      1. aab likes this.
      2. View previous comments...
      3. Forever hopeful
        Forever hopeful
        Agreed. So unfair. And I take care of my hearing.
        Nov 4, 2023
      4. Robster
        Robster
        Going through (what I hope is) a high pitched spike of my own. When the pitch gets even higher it always worries me more, as my spikes are usually volume related.

        Hope your spike subsides soon. Crazy that in the year 2023 this is still a thing.
        Nov 7, 2023
        Forever hopeful likes this.
      5. Forever hopeful
        Forever hopeful
        @Robster The higher pitch is the worst. Like a table saw in my ear. Probably not as loud as I experience it but so HF. Hear it over everything. Had a few good days and now back to screeching. The worst part is not being able to mask. Freq too high. Hope you get some relief.
        Nov 7, 2023
    14. SharonBell
      SharonBell
      I have trazodone for my anxiety I can take during the day or at night for sleep. The audiologist told me it isn’t ototoxic.
      1. Forever hopeful likes this.
    15. Forever hopeful
      Forever hopeful
      Been well. Went to an outdoor grad party and didn’t wear my earplugs. Now in a a spike. I was there all of 2 hrs. Such a fool.
      1. Joe Cuber and SarahMLFlemmer like this.
      2. Mo8409
        Mo8409
        It will go back down. I just got over another spike.
        Aug 19, 2023
        Forever hopeful likes this.
      3. Forever hopeful
        Forever hopeful
        Mo8409. Thanks. Sure hope so. It’s so annoying when you’ve been doing well for a while and then all of a sudden bom. Per my DecibelMeter and it was only 70 dB to 80 every now and then. It was outdoors so it’s diffused. It wasn’t even a giant party maybe 40 people. Still kicking myself. I mean I know it certainly wasn’t loud enough to damage my hearing. But I have to remind myself that noise makes tinnitus worse.
        Aug 20, 2023
      4. 4Grace
        4Grace
        Hello - I would say far from being a fool. Happy you did not miss out. The anxiety from missing out may have been worse for your T. With that sound level spike should be temporary.
        Aug 30, 2023
    16. Nick23
      Nick23
      I saw that you took Prednisone and it seemed to help the hearing loss. Did the hearing loss worsen after it got better like the tinnitus did, or was it just the tinnitus that came back? I did 7 days of Prednisone and it seemed to have helped but a few weeks later (currently now) my improvements seemed to have regressed :(
      1. View previous comments...
      2. Forever hopeful
        Forever hopeful
        @Nick23 Sorry. I’ve literally been off ofTT for a few months. I guess you can tell the pattern of T spikes by the frequency of my posts.

        As for the prednisone, sometimes if have a really spike. I always do about 21 days. The first 2 weeks at a higher dose 60/ 50/ 40 mg.
        Nov 4, 2023
      3. Forever hopeful
        Forever hopeful
        @Nick23 I usually use it if I suspect inflammation. Because that’s really the only point of taking it. I’ve had hearing loss in the past and it’s really helped. Right now I’m on it because I’ve been sick and I have a massive massive spike going on right now with reactive T. I think the worst spike I’ve ever had.
        Nov 4, 2023
      4. Forever hopeful
        Forever hopeful
        @Nick23 started couple hours after I was out to dinner for my birthday a week and a half ago. Very loud restaurant but I used what I thought was pretty ample protection. But I also came off the heels of being sick for 3weeks. It’s so hard to know what causes a spike. And now evidently reactive T is a form of hyperacusis. My Audiologist said it could be that I’m overprotecting. All I know is I want it to end.
        Nov 4, 2023
    17. Strawberryblonde
      Strawberryblonde
      how is your spike now? i hope it settled for you? :)
      1. View previous comments...
      2. Strawberryblonde
        Strawberryblonde
        Should of listened to my instinct and left. Part of me was worried people will be sick of me moaning about sound and my ears so I stupidly stayed. My bf and mum both have T and they were not affected at all by the noise no spike or nothing. Just me as per usual. Euuggh feel so stupid. @Forever hopeful
        Nov 23, 2023
      3. Strawberryblonde
        Strawberryblonde
        Aslo managed to catch a cold which caused me to cough so bad my head felt like it was going to explode and also TMJ has flared up. So many causes that it's hard to pinpoint one. Knowing my luck it'll be the fair. I'm so careful around sound too and have been for 18 months. I hope despite everything you've had going on you are fairing well @Forever hopeful
        Nov 23, 2023
        Forever hopeful likes this.
      4. Forever hopeful
        Forever hopeful
        @Strawberryblonde, After a brutal month long spike it is finally calming down. Not at baseline bit much better. Dealing with mom in hospice was too much. Had to step back and start taking care of myself.
        Nov 27, 2023
        aab and Strawberryblonde like this.
    18. Forever hopeful
      Forever hopeful
      Well big spike in high frequency T. Hope it’s related to the stress of two recent losses and complete lack of sleep.
    19. Forever hopeful
      Forever hopeful
      Major spike in high frequency tinnitus. Hope it is related to stress of the loss of my father and then a very good friend and lack of sleep.
    20. Forever hopeful
      Forever hopeful
      Well I joined the multitone club. In addition to my HF T, my mid tone ring in the L ear has now returned. Its been gone x2 years
      1. Strawberryblonde likes this.
      2. SarahMLFlemmer
        Apr 18, 2023
        Strawberryblonde likes this.
    21. Forever hopeful
      Forever hopeful
      Thank you all for the kind messages of condolences.
      1. Sammy0225, Jupiterman, Lurius and 7 others like this.
    22. Eleanor89
      Eleanor89
    23. Forever hopeful
      Forever hopeful
      My dad died this morning. My obligatory tinnitus has responded by screaming.
      1. Daniel Lion, Ngo13, sakrt and 4 others like this.
      2. View previous comments...
      3. Anthony2019
        Anthony2019
        Mar 31, 2023
        Daniel Lion and Forever hopeful like this.
      4. Kriszti
        Kriszti
        Sorry for your loss, may he rest in peace.
        Apr 5, 2023
        Forever hopeful likes this.
      5. just1morething
        just1morething
        @Forever hopeful, Losing your parents can be very tough. Sorry for the loss of your dad.
        Apr 6, 2023
        Forever hopeful likes this.
    24. SarahMLFlemmer
    25. Forever hopeful
      Forever hopeful
      Just Developed MEM. What the heck? Like I don’t have enough stress?
      1. Sammy0225 likes this.
      2. View previous comments...
      3. Strawberryblonde
        Strawberryblonde
        @Forever hopeful I'm doing good this week. Feeling the closest to my old self than I have in a long time :) is anything helping you with your MEM at the moment?
        Feb 16, 2023
      4. Forever hopeful
        Forever hopeful
        @Strawberryblonde, so happy to hear you’re doing better. Fingers crossed that it continues. My MEM isn’t too bad right now. I usually get it every 2 days. The anxiety of waiting for it to happen is worse I think than when it happens. I’ve also developed an eye twitch on that side as well. Trying to massage my jaws fir TMJ. I also take a small dose of clonazepam and I think that that helps with the MEM
        Feb 17, 2023
        Strawberryblonde and NYCGuy like this.
      5. Strawberryblonde
        Strawberryblonde
        Fingers crossed that it dissaptes to a point that its not bothering you as much @Forever hopeful
        Feb 17, 2023
    26. Forever hopeful
      Forever hopeful
      I have ringing that comes and goes in my left year. Last time was almost 2 weeks ago for a day or so. Now it is back. Anyone have that?
      1. CRGC, NYCGuy and Sammy0225 like this.
      2. Strawberryblonde
        Strawberryblonde
        What type of sound do you hear when you say ringing?
        Feb 2, 2023
        NYCGuy likes this.
    27. Forever hopeful
      Forever hopeful
      Anyone have fluctuating hearing on their audiogram? I know variation is normal but i lose hearing and gain hearing. MD doesn’t know why.
      1. tniuf, Strawberryblonde and NYCGuy like this.
    28. Forever hopeful
      Forever hopeful
      Having an SBUTT that is lasting like 30 minutes.
      1. Strawberryblonde likes this.
      2. View previous comments...
      3. Strawberryblonde
        Strawberryblonde
        I completely understand how wondering if any particular loud sounds or situations will spike us or give us a new tone or base level.
        25db plugs should be good protection for a restaurant as I use 20db ones and not had a spike yet.
        It's definitely anxiety playing a high part in my T as I assume I'll get worse with most sounds.
        Jan 22, 2023
      4. Strawberryblonde
        Strawberryblonde
        It ruins spontaneous fun or activities always wondering if its gonna be noisy when no one else would bat an eyelid.
        I went into a coffee shop today to get a bite to eat and drink to go and didn't use plugs cause it was only for 10 mins at most but with background music on kitchen noise and loud children my T feels more buzzy and head feels tight. I guess my ears still can't handle too loud of a sound.
        Jan 22, 2023
      5. Strawberryblonde
        Strawberryblonde
        Years ago something like this I wouldn't think would spike my T and it never did. Now it's a whole new ball game :( @Forever hopeful
        I hope you find some relief with all that you are going through with this invisible enemy.
        Jan 22, 2023
    29. Travis Henry
      Travis Henry
      How are you now and are you still on benzos? If so which one and what dosage?
      1. Nick47 and JPGL like this.
      2. Forever hopeful
        Forever hopeful
        @Travis Henry , i’m doing OK. Good days and bad days with the ears. I have some other medical issues that have been more pressing. Benzo dosage .5 BID.
        Dec 22, 2022
    30. Forever hopeful
      Forever hopeful
      I hate not knowing what I will wake up with or develop throughout the day The loss of predictability is awful. Can’t plan for future.
      1. JPGL, Guywithapug, Nadia231 and 5 others like this.
      2. MindOverMatter
        MindOverMatter
        Live for today - as best you can - and hope for tomorrow. This condition is unpredictable, and quite often uncontrollable, but not impossible. Keep the faith @Forever hopeful
        Dec 12, 2022
        Eleanor89, JPGL, Ngo13 and 4 others like this.
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  • About

    Gender:
    Female
    Location:
    USA
    Tinnitus Since:
    2015 resolved, 4/20 L ear, increase 2/21
    Cause of Tinnitus:
    2015,noise,2020-21 SNHL