Tinnitus Talk Support Forum

TheFriendlyGhost
Hi! I'd say I'm fine mentally. No improvements in my noxacusis. Feels like I build up my tolerance by avoiding sounds and then back to square one when I hear a fairly loud noise. I have also developed a new low frequency sound. I can only hear it when wearing earmuffs, so it's not that big of a deal atm. I'm not feeling optimistic. Right now I feel like I have to rot inside for the rest of my life. How are you doing?
yeezysqueezy
@TheFriendlyGhost bummed to hear of no improvements in nox but glad you're doing okay mentally. I feel like it's pretty much the same for me. I may be getting less stabbing pain but still getting aches and burning. Idk if this is a good sign? I also have a weird new tone that sounds like a star wars light saber that comes and goes in my bad ear but at this point I really don't care what my T does if my H gets better
yeezysqueezy
@yeezysqueezy Also feeling like I have to rot inside forever too. Has your girlfriend been pretty understanding? My boyfriend is doing his best but we used to always be outside doing something active or somewhat loud (not even that loud, restaurants probably loudest thing) and me not being able to do much with him has been really hard
TheFriendlyGhost
@yeezysqueezy Glad to hear you're doing okay mentally aswell. As for you having less stabbing pain, I have no idea, but let's hope that's a good sign. For me it can vary a lot from day to day with the pain, but of course it mostly depends on how much noise I'm exposed to. I agree with you that H is much worse than T right now, although T is quite annoying.
TheFriendlyGhost
I really hope my T doesn't get much worse than it is because then I don't know what to do.

My girlfriend has been understanding, but it's clear that it's hurting the relationship.
TheFriendlyGhost
If I understand correctly, you don't live with your boyfriend? I live with my girlfriend, so at least we see each other every day, but it's only short quiet conversations and watching TV with earmuffs, which is how we spend time together right now. The uncertainty of whether it will get better and how long it will take before it gets better if it does, is troublesome.
TheFriendlyGhost
My girlfriend and family probably live in hope that CBT will help me and fully trust what the ENT says that noise is no more dangerous for me than for a normal person. I haven't ruled out CBT working, but I highly doubt it helps when you have pain in silence and pain that lasts for days after sound exposure.
TheFriendlyGhost
I think it's impossible for anyone to understand how terrible it is to live with this condition without experiencing it themselves.
yeezysqueezy
I'm glad your girlfriend has been understanding. And yeah that's correct. I don't think I could handle living at the apartment in the city long term. I go there to visit once a week or so for a couple days but it's quite close to a train which reaches 50 ish db in the apartment every 5 minutes so im always plugging and needing to sleep with heavier ear protection than at my family's place
yeezysqueezy
I agree. I wish CBT would work but I just don't understand how it could fix our current condition. I could see mayyyybe down the line after a lot of quiet and rest. But I feel like right now we need quiet. And also agree it's impossible for anyone to understand this until they have it :(