Comments on Profile Post by ErikaS

  1. Sammy0225
    Sammy0225
    Ugh my head is a electric sand storm right now ;(
    May 25, 2023
  2. ErikaS
    ErikaS
    F^ck this electric shit! Can you modulate any of your sounds with jaw, head, or neck movements @Sammy0225 ? My ultra high electrical sound (in my hearing loss range) gets louder when I clench jaw and shifts from ear to ear when I protrude my jaw so I need DS device NOW. Like can we get some compassionate care use here?! I will pay that extra $$$
    May 25, 2023
    Sammy0225 likes this.
  3. Sammy0225
    Sammy0225
    Yea I have some type of control of it when I turn my head sideways I can hear it change to a higher electric pitch or if I protrude my jaw forward I can hear it fluctuating. Susan shore needs To hurry her old ass, up and get this shit going already. Cause I’m fed the fuck up already. @ErikaS
    May 25, 2023
  4. Ngo13
    Ngo13
    Not that I've noticed, although my TTTS has seemed to be acting up lately and I'm at the same timeframe you mentioned.
    May 25, 2023
  5. ErikaS
    ErikaS
    @Sammy0225 I just wish there was a safe medication that could decrease/lower/eradicate reactivity but also not screw with the rest of the brain. :( Do you also feel like if you didn't have reactivity or if your T didn't respond/change/spike to noise you'd be able to function quite well?
    May 25, 2023
    ZFire and Sammy0225 like this.
  6. Sammy0225
    Sammy0225
    If I didn’t have reactivity my quality of life would be 110% better. Yes I would still have to deal with loud tinnitus but knowing that it wouldn’t react to white noise or music would make my life so much easier. The reactivity is such an asshole. If I put on my muffs I can literally hear the changes of the reactivity if I turn on the tap water. @ErikaS so horrible
    May 25, 2023
    ZFire likes this.
  7. ErikaS
    ErikaS
    @Ngo13 Anything that is inflammatory with my body seems to also play off of hormones. When I had distorted taste and smell after covid, it was always worse 5 days or so leading up to my cycle. I am seeing a hormone specialist in a 2 weeks due to low progesterone and just wanting hormones to be running optimally.
    May 25, 2023
    Ngo13, ZFire and Sammy0225 like this.
  8. ZFire
    ZFire
    @Sammy0225 , same thing with the ear muffs and tap water, they don’t do squat to prevent the reactivity.
    May 27, 2023
    Sammy0225, Damocles and ErikaS like this.
  9. ErikaS
    ErikaS
    @Sammy0225 @ZFire this is why I was never a big ear plug or muffs person after the first 3 months, spiked/reacted in some way right through them all the time and T would be louder with them in/on.
    May 27, 2023
    ZFire and Sammy0225 like this.