ErikaS
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ErikaS

Member, Female

Just feeling lost and hopeless. Damned if you do, damned if you don’t. May have to take a break from here to clear my mind. Feb 4, 2023 at 3:08 PM

    1. NiniBee
      NiniBee
      @ErikaS I’ve been reading your posts. We are in the same boat and man, have I tried it all. I’m having success with systemic enzymes Wobenzyme, Nattokinase & Serragold. They modulate body inflammation - has brought the highest THI rating down to below a 1. I’ve been reading your threads - how is feedback going?
      1. Sammy0225 and NYCGuy like this.
      2. ErikaS
        ErikaS
        Thanks for reaching out, @NiniBee .. I see you’ve had tinnitus for a few years, how did it present then and how is it now? Do you experience reactivity? Thank you for sharing the supplements, when did you start them and how soon did you see results? They alone brought down your THI rating? Wow!
        Feb 5, 2023 at 3:17 PM
      3. ErikaS
        ErikaS
        @NiniBee I just started the tinnitus protocol with the neurofeedback last week, had one session. Before that I was doing other protocols to help assist the brain through the process and move into the T protocol. Then hubby got C so I had to cancel my 2nd appointment last week. Hoping to get back this week. No change in T at this point.
        Feb 5, 2023 at 3:18 PM
    2. ErikaS
      ErikaS
      Just feeling lost and hopeless. Damned if you do, damned if you don’t. May have to take a break from here to clear my mind.
      1. View previous comments...
      2. ErikaS
        ErikaS
        @DeanD @Sammy0225 thank you both for your input. I have not gained a new tone in a long time. Current tones like to get sassy & change themselves some, but nothing new added. I have about 3-4 constant tones & the others that used to be constant just come in and out randomly. I also seem to reset every night in sleep, no matter if I stayed home in quiet or not. So I think Im ready to try TRT and just be mindful.
        Feb 6, 2023 at 12:37 AM
      3. ErikaS
        ErikaS
        @DeanD - I know I don’t know you, but you & I came on here around the same & I very closely followed your story. Please know I am so angry for you and pray for your healing & strength to endure this. You CAN get better. This CAN improve.
        Feb 6, 2023 at 12:51 AM
      4. ErikaS
        ErikaS
        @DeanD Focus on success stories like @Marin, @Coffeebean, etc. Push docs to think outside the box, consider functional med doc. Marin communicated in closed caption remotely with her homeo. doc., When there’s a will there’s a way. I’m rooting for you!
        Feb 6, 2023 at 12:51 AM
    3. Samy
      Samy
      Hi @ErikaS ! How are you doing? Are you still doing brain retraining?
      1. NYCGuy likes this.
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      3. Strawberryblonde
        Strawberryblonde
        I've read something from one of the members on here that practices polyvagal exercises to help with tinnitus.
        You may have to look more indepth about it @Samy @ErikaS .
        Feb 4, 2023 at 6:14 PM
        NYCGuy and Samy like this.
      4. Strawberryblonde
        Strawberryblonde
        Feb 4, 2023 at 6:16 PM
        NYCGuy and Samy like this.
      5. Samy
        Samy
        Hi @Strawberryblonde ! I already follow the youtube channel she mentions in the post and I already practice these exercises :) They do nothing for my T, but they surely help with my anxiety! I like to do them before going to sleep. I think everything that helps us to calm down is beneficial
        Feb 4, 2023 at 7:15 PM
        NYCGuy and Strawberryblonde like this.
    4. ErikaS
      ErikaS
      TRT follow up today post testing. I want to believe that this could help desensitize my reactivity, but a main point holds me back..
      1. NYCGuy likes this.
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      3. Jsm_Joestar
        Jsm_Joestar
        I agree with Anthony here. From what i see you got your T not a long time ago so i would first give it some more time and try to get some natural recovery. And like you said she has yet to see a patient with the same reactivity like yours.
        Feb 4, 2023 at 9:55 AM
      4. ErikaS
        ErikaS
        @AnthonyMcDonald can you point me toward the literature about somatic crossfire and closed potassium channels ? I want to better understand this. Thank you.
        Feb 4, 2023 at 5:16 PM
        Strawberryblonde likes this.
      5. AnthonyMcDonald
    5. ErikaS
      ErikaS
      Well hubby just tested positive for C. There goes my positive mood for the day. Let’s the fucking games begin.
      1. Samy
        Samy
        Isolate yourself from him and use masks if you dont want to get Covid. Also take some vitamins for your immune system. It happened to my husband last year and everything was ok. Good luck!
        Feb 2, 2023 at 9:38 AM
        Jupiterman, NYCGuy, ErikaS and 2 others like this.
    6. ErikaS
      ErikaS
      Tinnitus is a little calmer today than past two days. Mental state & mood stark improvement. We don’t need AD’s, we need a cure/treatment!
      1. View previous comments...
      2. ErikaS
        ErikaS
        @Strawberryblonde I truly believe it’s on its way, just hope it’s sooner rather than later. *fingers crossed*
        Feb 1, 2023 at 11:06 PM
        Ken219 and Strawberryblonde like this.
      3. Nick47
        Nick47
        I watched a video in 2019 from the TRI conference where Dr Shore said she thinks lots of treatments will come to fruition in the next 10 years.
        Feb 3, 2023 at 10:44 PM
        ErikaS and Strawberryblonde like this.
      4. ErikaS
        ErikaS
        @Nick47 going to really hope for a solid two (1 tinnitus direct treatment and 1 hearing loss regeneration) in the next 3-5 :)
        Feb 4, 2023 at 4:23 AM
    7. Ringing_seal
      Ringing_seal
      Hey Erika, I read your cause of T is an ear infection. Was wondering if you ever get “nerve pains”? Like a nerve around your ear randomly causes sharp pains?
      1. Sammy0225 likes this.
      2. ErikaS
        ErikaS
        Hey @Ringing_seal , not that I can say. If I’m fighting a virus I may get a random shooting pain or itch, but outside of that not that I have noted.
        Feb 1, 2023 at 3:00 PM
        Ringing_seal likes this.
    8. ErikaS
      ErikaS
      TRT comprehensive testing today. It confirmed what I discovered and hypothesized MYSELF with zero help/care from ENT…
      1. View previous comments...
      2. Ken219
        Ken219
        ENTs must be good for something. I haven't found one.
        Jan 31, 2023 at 5:19 PM
      3. Nick47
        Nick47
        Did you get ear pain with the infection or more just a sore throat?
        Feb 1, 2023 at 4:41 PM
      4. ErikaS
        ErikaS
        @Nick47 no ear pain or sore throat. Just very full feeling in right ear. It’s a very hard pill to swallow too, as the whole situation/ear infection could have been avoided. Doc denied me antibiotic a week previously.
        Feb 3, 2023 at 10:20 PM
    9. ErikaS
      ErikaS
      Went to niece’s small bday party. I didn’t really hear T there cuz it goes to very high freq. hiss when around that kind of sound. (1/2)
      1. Sammy0225, NYCGuy and Guywithapug like this.
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      3. ErikaS
        ErikaS
        @Sammy0225 thank you, as always my friend, for the input, explanation, and recommendations. So fortunate to have found people here to help guide through this. So yes, my T can “wind up” from the simplest things like having a conversation, TV on low, concentrating hard on something, etc. Sometimes my T winds up on its own for no reason then settles again with minutes.
        Jan 30, 2023
        Sammy0225 likes this.
      4. ErikaS
        ErikaS
        @Sammy0225 I have my further testing for TRT tomorrow. Will be cautious with each test and I think I’m going to ask to skip LDLs. Anyway I’m hoping that whatever therapy protocol I’m recommended, if taken slowly, will really help my brain desensitize from the very sensitive winding up, reactivity, and distortions over time.
        Jan 30, 2023
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      5. Sammy0225
        Sammy0225
        Your welcome (:
        And yes I would definitely opt out of the LDL test like someone said why twist a broken ankle just to see how bad it hurts. All the best my friend
        Jan 30, 2023
        ErikaS likes this.
    10. ErikaS
      ErikaS
      The things u do to try to improve fall short, but a simple cold will worsen a sound or move sounds from one ear to other in a few days. WTF.
    11. ErikaS
      ErikaS
      Wish I could trade in my tones that change different notes/pitches every millisecond to just straight tone. It’s like alien signals ;(
      1. View previous comments...
      2. ErikaS
        ErikaS
        @Wrfortiscue I wonder what causes that?? It’s such a mind ef. And you’d think that with time, that should calm down?? Sometimes I wonder if damaged but not dead outer hair cells that intensify sounds are misfiring, and if that’s the case I want them literally killed all the way rather than half alive and causing fluctuations.
        Jan 27, 2023
        Sammy0225 and Strawberryblonde like this.
      3. Jupiterman
        Jupiterman
        It's time and patience we all need for resolution. Trouble is, who can endure this suffering patiently?

        I do wonder if interventions make much difference to the final outcome?

        Ears appear to do whatever they want regards tinnitus. It's as if we just need to sit by, wait and "enjoy the ride" before healing/habituation takes place?
        Jan 28, 2023
        Barry098 and ErikaS like this.
      4. ErikaS
        ErikaS
        @Jupiterman So true. It’s even harder with the world around us. Cutting edge technologies, instant satisfaction and solutions for so many things, the constant go go go of society. But nothing to bring safe, long lasting relief or resolve with these conditions? Insanity.
        Jan 28, 2023
        Jupiterman and Strawberryblonde like this.
    12. ErikaS
      ErikaS
      TRT consult went very well today. Next step is further testing then thepray plan. I am going through University of Pittsburgh/UPMC (PA/USA).
      1. ZFire, CRGC, Sammy0225 and 1 other person like this.
      2. View previous comments...
      3. Sammy0225
        Sammy0225
        His last post was dated 1999) he ended with saying he was no longer suffering from H and his reactiveness was no longer around. He was thankful for TRT and said he was thinking about ending his life right before trying. I’m really hopeful that this will help you @ErikaS he unfortunately suffered most of the 90’s and was still cured of reactiveness after TRT. So There is hope
        Jan 26, 2023
      4. Sammy0225
        Sammy0225
        He states in his diary he was born in 1934, so I'm assuming he's gone by now. I'm glad he was able to recover enough to enjoy his retirement I'll leave the link below to his journal


        http://tinnguy.tripod.com/index-2.html
        Jan 26, 2023
        ZFire likes this.
      5. ErikaS
        ErikaS
        @Sammy0225 thank you so much for sharing all of that and taking the time to write it up. Praying and hoping this is a right path for me!
        Jan 26, 2023
        ZFire and Sammy0225 like this.
    13. ErikaS
      ErikaS
      The cold caught up to me. Turned intermittent hiss into louder constant hiss. I swear a setback always has to follow a better day.
      1. Sammy0225, NYCGuy and JPGL like this.
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      3. Strawberryblonde
        Strawberryblonde
        I stopped mirtazapine cold turkey many moons ago when I had my mild T and never noticed any change. Give it time for your brain to level out again, antidepressants can play havoc or they can help. You don't know till you try unfortunately. Hope you feel better soon and the hiss softens again :)
        Jan 24, 2023
        NYCGuy, ZFire, ErikaS and 1 other person like this.
      4. ErikaS
        ErikaS
        @Strawberryblonde thank you for sharing! I really do think it’s the cold as I held it off pretty well but woke up this morning to much sorer throat and congestion. So maybe just inflammation driven. I have reactive T so it’s always tricky to know what can cause a change!
        Jan 25, 2023
      5. ZFire
        ZFire
        @ErikaS It is the cold and it’s temporary. There’s lots of congestion fluid (in your ears) that’s causing this spike. Your Eustachian tubes are causing blockage making your ears feel worse. It should resolve once the cold/congestion passes.The same thing happens to me when I’m sick with cold/virus (along with many others here too). I see no reason why it shouldn’t be the same case for you too.
        Jan 25, 2023
    14. ErikaS
      ErikaS
      Hubby is back from being out of town. I feel much more calm and happy, & ears were quieter. Ears are ALWAYS listening to our brain/emotions.
      1. ZFire, Ngo13, JPGL and 6 others like this.
      2. Joe Cuber
        Joe Cuber
        Aw that's great @ErikaS! Perhaps yoga and meditation would work well for you
        Jan 24, 2023
    15. ErikaS
      ErikaS
      Been on 7.5mg Remeron for 3-4 wks. Started having inner ear vibrations at night, looked up & is a side effect. So much for that. Meds suck.
      1. JPGL, NYCGuy, Guywithapug and 2 others like this.
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      3. ErikaS
        ErikaS
        @Strawberryblonde I have not, I have some supplements from my new functional medicine doc that I hope help, I also have Magnesium Calm. Going to wean off of the Remeron and try Hydroxyzine, which I pray helps becuase it’s just a strong anti-histamine, not so harsh brain chemical stuff. Goal is to be off Ativan eventually too
        Jan 24, 2023
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      4. Sammy0225
        Sammy0225
        @ErikaS I was put on a low dose of hydroxyzine before the onset of my tinnitus. It helped control my panic attacks but the side effects for me out numbers the benefits. It definitely mellows you out and typically hits you within 10-15min, from experience. the calming effect lasted 4hrs or so but shot my pulse rate up so i stopped taking
        Jan 24, 2023
        JPGL, Strawberryblonde and ErikaS like this.
      5. ErikaS
        ErikaS
        @Sammy0225 thank you for letting me know, I will keep that in mind as I try it. I will be taking low dose too, but if it has side affects with me then I will just do my best to go all natural.
        Jan 24, 2023
        JPGL, Sammy0225 and Strawberryblonde like this.
    16. ErikaS
      ErikaS
      I am finding when I am in an anxious, panic state, a glass of alka seltzer gold and a GABA Calm help calm the nervous system.
      1. JPGL, Joe Cuber, Sydney13 and 3 others like this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        What is GABA?
        Feb 3, 2023 at 7:04 PM
      3. ErikaS
        ErikaS
        @SarahMLFlemmer GABA itself is an inhibitory neurotransmitter in the central nervous system. Its principal role is reducing neuronal excitability throughout the nervous system… copied and pasted from Google.
        GABA Calm is a supplement you can get to take. Hope that helps!
        Feb 3, 2023 at 8:58 PM
    17. PlaceHealth
      PlaceHealth
      Hi, just wanted to know if you've had any success treating tinnitus with the neuro stuff
      1. JPGL, NYCGuy and Sammy0225 like this.
      2. ErikaS
        ErikaS
        Hey there @PlaceHealth , by neuro stuff I assume you mean Neurofeedback. I just had my 6th session today. They were closed for two weeks over holiday. We first worked on increasing parasympathetic response, now working on down regulating sympathetic response.
        Jan 21, 2023
        NYCGuy likes this.
      3. ErikaS
        ErikaS
        @PlaceHealth i have two more sessions of that then it is the full on tinnitus protocol. I have not noticed a difference in tinnitus yet, however she told me we had to do this in steps and calm down fight or flight before diving into tinnitus protocol. It makes sense, but also can get frustrating as I just want to know if this will help my T at all. I will report back once I’m into the full T protocol.
        Jan 21, 2023
        NYCGuy likes this.
      4. ErikaS
        ErikaS
        @PlaceHealth i saw you inquired about sleep med. If you haven’t tried already, I would try a combo of benedryl + melatonin (1-3mg) + magnesium and see if you can get any more sleep with that. Always worth it to try more natural before the heavy duty stuff. If that doesn’t work, many of us find sleep help with low dose Remeron (7.5mg) you could ask your doc about that. Known to be a safer med with T.
        Jan 21, 2023
        JPGL and NYCGuy like this.
    18. ErikaS
      ErikaS
      First day of feeling like a cold coming on and T is, dare I say, exceptionally quiet. Anyone else experience this? Calm before the storm?
      1. View previous comments...
      2. ErikaS
        ErikaS
        Thanks @Strawberryblonde and @Jupiterman , now to find something odd to reduce reactivity; I’d consider myself more than halfway healed! :)
        Jan 19, 2023
        ZFire likes this.
      3. Sammy0225
        Sammy0225
        Yes I definitely get this as well like body is telling me something is about to happen it's so strange
        Jan 19, 2023
        ZFire likes this.
      4. Samy
        Samy
        Probably you won’t have any spike. I had 2 colds since onset and nothing changed with T. Just drink lots of water and use nasal sprays
        Jan 20, 2023
        Sammy0225 and ErikaS like this.
    19. ErikaS
      ErikaS
      Sleep is improving which always helps the mental state, but woke up with a cold coming on. I try so hard to not get sick as it worsens T.
    20. ErikaS
      ErikaS
      Praying and hoping for everyone who feels despair and fear with this condition. In my own slump due to lack of sleep. Not coping well.
      1. Joe Cuber, Ondine, NYCGuy and 6 others like this.
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      3. NYCGuy
        NYCGuy
        Is so hard, habituation may start sitting with you in 6 months to 12 months, someday you will see that you don't even listen it to it during the day but at night there is no way to not hear it, is awful as always.
        Jan 17, 2023
        Strawberryblonde likes this.
      4. ErikaS
        ErikaS
        @Strawberryblonde thanks girly ❤️ As if this isn’t hard enough, we have to deal with the normal cycle stuff that can exacerbate things. Brighter days ahead
        Jan 17, 2023
        Strawberryblonde likes this.
      5. ErikaS
        ErikaS
        @DeanD Ugh I’m sorry things stopped working. Have you tried melatonin + benedryl + magnesium ? That could help
        Jan 17, 2023
    21. ErikaS
      ErikaS
      What do we think the very “elite” do when they get intrusive T and/or H? Do they go behind the scenes & get treatment/care we can’t yet?
      1. SarahMLFlemmer, Samy and Sammy0225 like this.
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      3. ErikaS
        ErikaS
        I just feel like if very “important”, well known people dealt with the debilitation of severe T, reactive T, hyperacusis, we would hear more about it. I would just think they would try all the TMS or stem cell type things, or, they would find a doctor willing to do something for them that hasn’t been FDA approved/cleared for the masses.
        Jan 16, 2023
        SarahMLFlemmer, Samy and Sammy0225 like this.
      4. Jupiterman
        Jupiterman
        Rich people have quick and easy access to the world's best medical personnel. They are told if they notice the slightest thing wrong then to pick up the phone immediately. Early intervention gives you the best chance of preventing T/H condition worsening and to promote recovery too.
        Jan 16, 2023
        Samy, sakrt, Strawberryblonde and 3 others like this.
      5. ErikaS
        ErikaS
        @Jupiterman and that is so so frustrating. I know the masses don’t have the money they do, but for something that doesn’t yet have a cure and can completely stop someone’s ability to function, the absolute lack of response and help we get from ENTs etc. is awful.
        Jan 16, 2023
        SarahMLFlemmer and Samy like this.
    22. ErikaS
      ErikaS
      Those w/ benzo experience: I have taken .25mg Ativan/day for 3.5 mos. Could even low dose be holding me back/not letting reactivity improve?
      1. Sammy0225 likes this.
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      3. Pistolpete
        Pistolpete
        But I wonder if it’s more the effect of «contrast» as however loud external sounds are you simply can’t mask with evironmental sounds when T > 8 - 10 kHz. At least I can’t. Are you sure it’s all about reactivity and not at least partly related to it’s high frequenzy? 2/2
        Jan 14, 2023
      4. Pistolpete
        Pistolpete
        As I’ve written in one of my threads my tinnitus often seems somewhat so quiet when in complete silence, but I’m often horrified how prominent it is when there’s external sounds as fans, AC, traffic noise, dishwasher etc. heard. I don’t think it reacts or the volume changes, but it just seems so much worse. It drives me crazy sometimes.
        Jan 14, 2023
      5. Pistolpete
        Pistolpete
        Anyway if Ativan helps you relax I see no harm in using it for a while longer. I can’t imagine such a low dose is holding you back in terms of improving.
        Jan 14, 2023
    23. ErikaS
      ErikaS
      High hiss has become more metalic & intrusive, goes in/out in intensity w/ noise, goes from R ear to both ears then back. Not a fan :(
      1. View previous comments...
      2. ErikaS
        ErikaS
        @Joe Cuber I hope one day your reactivity and annoying screech just disappear and never come back. Hoping for the both of us :)
        Jan 13, 2023
      3. ErikaS
        ErikaS
        @just1morething I am throwing functional/natural approaches at this with all I have first. Working with functional med doc, doing Neurofeedback, and TRT consult on 25th. I will exhaust all of those before doing any more meds. I’m already on .25mg Ativan a day and 7.5 Remeron at night. My goal is to improve to a point to wean the Ativan.
        Jan 13, 2023
      4. just1morething
        just1morething
        @Erika, I understand. I felt great today but am very tired tonight. Meds can have their downside. They can be a bit dangerous when driving. I was on Remeron years ago but I thought I had weight gain if I remember right. Not sure of the dosage though.
        Jan 14, 2023
        Wrfortiscue likes this.
    24. hopefuldede
      hopefuldede
      hi @ErikaS you mentioned in a post a while back about taking DAO supplements. Which ones do you use and what dose? I have angry eustachian tubes (fluid build-up etc) I am going to start as best I can a low histamine diet but want to increase the DAO too. thanks so much.
      1. View previous comments...
      2. ErikaS
        ErikaS
        @hopefuldede this is the worst “waiting” game I’ve ever experienced in my life, and my husband and I were actively in our 3 year infertility journey. This has completely put that on hold, along with my life as I knew it before T, and I am so angry because of it. (1/2)
        Jan 12, 2023
      3. ErikaS
        ErikaS
        I am currently on leave from work, I am a speech/language therapist in the schools. May have to take the rest of the school year off with hopes I can return in some fashion next year. How about you, are you working?
        Jan 12, 2023
        hopefuldede likes this.
      4. hopefuldede
        hopefuldede
        I work in healthcare communications. It certainly doesn't help any health anxieties I get working in this field. Also I think I am going to take a break from here. Although I find it super helpful, I fear I am visiting the forum and reading and focusing to much.
        Jan 13, 2023
        ErikaS and Sydney13 like this.
    25. ErikaS
      ErikaS
      It is very emotionally challenging to live with someone whose auditory system is fine while trying to survive each day with this.
      1. Samy, NYCGuy, SamRosemary and 8 others like this.
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      3. ErikaS
        ErikaS
        @Pistolpete my sympathy goes out to you and all who have children while suffering from this crap. I can’t imagine. That’s why I’m going to literally throw everything at the wall (TRT, functional medicine, diet, brain retraining) and see if anything sticks before I move forward with trying to build our family.
        Jan 9, 2023
        Samy and Sammy0225 like this.
      4. Pistolpete
        Pistolpete
        I sometimes wonder if trying «everything» actually have made me worse. I feel as if tinnitus actually feeds on desperation, and trying so hard to get better means you monitor and focus a lot on the sounds. If only I could just accept it and try to live my life somehow with tinnitus, things might slowly get better. Easier said than done….
        Jan 10, 2023
      5. ErikaS
        ErikaS
        @Pistolpete I can understand that thought process. For me, I don’t need to be “cured” with no tinnitus. My goal is to minimize reactivity and hopefully eliminate some tones. My baseline is not loud, so if I just have a couple tones stay low and not so reactive I can definitely learn to live with that. I also think in the next 1-3 years many will find relief they never could before with things coming our way.
        Jan 10, 2023
    26. ErikaS
      ErikaS
      My therapists encourage me to find outlets to let my brain calm. Ordered puzzles from Amazon, just started 1st one. Wish I did this sooner!
      1. View previous comments...
      2. ErikaS
        ErikaS
        @Lilah ironic you say that. The one I’m doing now is a jigsaw. I didn’t realize it until I put the pieces out! Up for the challenge though lol
        Jan 9, 2023
        Lilah likes this.
      3. Lurius
        Lurius
        @Ondine I sometimes use art from Magic the Gathering as my avatar actually :)
        Jan 9, 2023
      4. ErikaS
        ErikaS
        @Ondine that’s a sweet fiancé :) I will have to look into that one!
        Jan 9, 2023
    27. ErikaS
      ErikaS
      When I lay down in quiet to go to bed, vibration sensation/sound in R ear. Will go away with noise, & isn’t there in AM. What is this? :(
      1. Sammy0225 and NYCGuy like this.
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      3. ErikaS
        ErikaS
        @Sammy0225 good for you! It’s so hard to try to eat super healthy and prep when you are in our current mental states, so I commend you for doing so! Go the f*ck away, tones and reactivity!
        Jan 8, 2023
        Sammy0225 likes this.
      4. hopefuldede
        hopefuldede
        Hi Erika - How are you getting on this week? We roughly have the same onset and similar type symptoms. Did you ever experience the inside of your ear being warm or hot?
        Jan 9, 2023
      5. ErikaS
        ErikaS
        Hey there @hopefuldede , thanks for checking in. I have “ok, getting by” moments surrounded by sad, scared, angry, moments. Trying not to focus on the past or predict the future, trying to focus on each day and the therapies I have in front of me this coming month (TRT, functional medicine, etc.) I have not experienced the warm/hot ear feeling. How are you doing?
        Jan 9, 2023
    28. ErikaS
      ErikaS
      Saw a functional med doc tonight. Treating viral overload & mult. cranial nerve dysfunction. Hoping he can aide my healing *prayers up*
    29. ErikaS
      ErikaS
      My thoughts on intratympanic dexamethasone shot… if you are more than a month out from HL or T onset, let the ears be. Regret trying it.
      1. Sammy0225 and NYCGuy like this.
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      3. CRGC
        CRGC
        I wish I could tell you what was going on with your fluctuations, but this stuff is so different from person to person. From what I've read on here, fluctuations are usually a good sign, especially if you get moments of (relative) calm. For my part the tones and reactivity started improving after 3-4 months, but slowly. Good luck with everything!
        Jan 4, 2023
        Sammy0225 and NYCGuy like this.
      4. ErikaS
        ErikaS
        @CRGC I am into month 5, and I feel like things have only worsened tbh. Idk what I’m doing wrong, starting to think the .25mg Ativan a day may need to go (very slowly) and see if that is holding me back.
        Jan 4, 2023
        Sammy0225 and CRGC like this.
      5. Sammy0225
        Sammy0225
        I'm so sorry to hear this I was hoping it would help thank you for leaving a detailed note it will help someone down the line
        Jan 4, 2023
        ErikaS likes this.
    30. ErikaS
      ErikaS
      Wishing I didnt do 2nd dex. shot. 4 days post & ears seem more sensitive to sound & T is sharper/louder.Damned if we do, damned if we don’t.
      1. Nadia231, Sammy0225 and NYCGuy like this.
      2. CRGC
        CRGC
        I remember my symptoms taking a few days to settle down after my second shot too. I wouldn’t worry too much for the time being. Sending good vibes your way!
        Jan 3, 2023
      3. ErikaS
        ErikaS
        Thank you @CRGC ! I think that was the last shot. He offered to do 3, but with not noticing any type of improvement at this point, and with sensitivity lingering longer than first, unfortunately I think this “experiment” is done.
        Jan 3, 2023
        Sammy0225 and CRGC like this.
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  • About

    Gender:
    Female
    Tinnitus Since:
    09/2022
    Cause of Tinnitus:
    Ear infection/Ultra High Frequency Loss in Right Ear