cjbhab

Boogie woogie, woogie.... sorry I couldn't help myself.

Stress and anxiety maybe? Today is the first time I got a headache from all this and I have been more stressed about it...

@Tryn2BHopeful possibly a factor. After next Thursday I will be off work for 6.5 weeks for vacation so I hope that helps calm my T and headaches down. Lots of outdoor activities planned. Quiet office just makes my brain go crazy. Luckily I can work from home over half the time.

@TomK i sometimes think about changing my diet , but never end up doing it because I know deep down it will do nothing. I lost 95 lbs and got in the best shape of my life and it did nothing. So some minor diet changes will do nothing at this point.

Hopefully you can find a psychiatrist who understands what benzodiazepines do to Tinnitus. They calm it down and it is a nice feeling w/o hissing driving me to a slow death.

I love life. Life don't like me.

Let's hope! I think it will!

YES, IT IS!

I agree with you. Some GPs do have the attitude that tinnitus is nothing, learn to live with it. I was told this 27 years ago when I first got it. I attended the surgery everyday for 8 days, until a GP took me seriously and made the referral to ENT. I have also had very understanding GPs, ENT doctors and Audiologists, so they are not all clueless. Best of luck.

Quite the opposite @sakrt. I have had no adverse effects taking St John's Wort. tinnitus can cause headaches for some people. It wasn't until my ENT consultant mentioned it, that I began to notice, my tinnitus can cause headaches when it's intrusive.

@Michael Leigh Yes, when T. is more intrusive, it triggers headaches for me too. In past, each time I tried St. John's Wort I woke up with a nagging headache, like you can w/ melatonin. However, I can't recall how many mg. at the time though, so that be a factor (too much?) and was possibly interacting w/ other meds then. What was your dosage?

;(

keep pushing.

That's not true! You matter and so does your life. Everyday is hard, I get it but your're important and strong. Keep your head up. You have so many people in your same shoes. We keep fighting and findings way to carry on.

@ErikaS True money can help with some treatments but not everything. I know some people suffer more then others that's for sure. I wish I could fix this problem like the rest of you.

Not to sound depressing but if there were things to fix the brain my son wouldnt of died and I wouldn't need brain surgery. The brain controls everything and yet we don't understand it. Shit I work in Neurology helping brain disorders when I'm screaming for help myself!

@cjbhab rant away! I get it. This shit sucks!

I thought about the same thing last night.

I keep thinking of how I can re-invent my life. Buy a camper, travel with family around the world. Decal camper in order to raise awareness of T. The only problem, I would be travelling with T but would be a better distraction then now. Maybe set up a YouTube channel with my travels. Will be interesting to see if we grow a large following. It will give us an indication of the number of suffers.

Your not alone my friend.

Sorry I did not realize this was an old post.

@4Grace lol it feels like a current post. Been going through a spike. I think it is improving though.

Oh nice one, enjoy the golf! Best wishes

I dont know, but atleast I would get some good sleep! :P

I would say an improvement as the body would be in total 'self-care-mode'.

One day, one moment at a time.

Did this ever go away for you?

thanks for this info - I will look into it!! have you tried it? no negative effects on T?

I have tried it during a very dark time in my life, so I know it works. It also had no effect on my T but since every body reacts in a different way I cannot promise it will be the same for you. Sorry.

@Lelia did you get headaches at times from St. John's wort? Why did you stop taking it?

Lol yeah, i can’t even imagine what it would be like to live without this inconvenience anymore. Everything would be so easy. We are playing life on hard mode.

For real!

https://www.youtube.com/watch?v=miD_TWmdGIY

Sorry made me think of this...

Hi @cjbhab ! I understand exactly where you're at. The only thing I can lean on is that His grace is sufficient and in my weakness, is where He is strong. This fallen world sucks. I'm sorry you're going through this too. :(

Same, bro. Same. Keep hanging in there.

Interesting theory!

Get the drill please.

@cjbhab - I often question, do I really need to stay away from restaurants,.. do I really need to wear protection when I go outside,… it must be me being to sensitive. My family compares me to those people with T that do everything. I tell them…. I keep having to remind them, I probably do not have the same T.

@4Grace I still think this stat is completely wrong. If I go to the mall and poll random people if they currently have ringing in their ears, I probably won’t even find somebody who says yes. 1 in 6 might have at one point experienced ringing, sure.

@4Grace you probably aren’t being sensitive. I think everybody’s T is so different that only you know what you can handle. Quiet restaurants are okay for me but any place where there are a bunch of people talking in a small space is the worst thing for me. I think those people doing everything with T have very minor T and they don’t experience spikes like we do.

I’ve got vitiligo and also hypothyroidism.

As of Monday seems to have resolved or at least is not as prevalent.

Honestly to keep moving on with life. Is it harder, yes! But not letting this control you is the only way to help yourself and gain some quality that's still lingering.