MiaVIL
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Gender:
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MiaVIL

Member, Female, from Canada

I am blowing up angry now. All talk no action Shore. RED FLAG- hiding the most important info- FDA approval, coming out, non somatic etc Jun 12, 2024 at 2:09 PM

    1. MiaVIL
      MiaVIL
      I cannot describe one of my T sounds. It's like in my head and it's rhythmic like a bunch of maracas shaking at the same time.
      1. 4Grace likes this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        Yeah! I describe mine as buzzing bees, electrical current, pure tone, morse code. Stupidest condition I've ever heard of. Coping with it all better at 8 months though.
        Sep 4, 2023
        Juliane likes this.
      3. MiaVIL
        MiaVIL
        Sep 6, 2023
      4. SarahMLFlemmer
        SarahMLFlemmer
        @MiaVIL Accutane, directly or the withdrawl from it.
        Dec 18, 2023
    2. MiaVIL
      MiaVIL
      I just want to tell my mom that I am happy and healthy again. I am sorry mom. I love you.
      1. Tryn2BHopeful
        Tryn2BHopeful
        You didn't do anything wrong. From your post it seems like you may have a chance of this being corrected. Have hope!
        Aug 29, 2023
        4Grace and SarahMLFlemmer like this.
      2. MiaVIL
        MiaVIL
        My mom keeps me alive. She believes I will beat this.
        Aug 29, 2023
    3. MiaVIL
      MiaVIL
      I don't want to die please God help me. I don't want to live with this anymore.
      1. aab, Juliane, PennyCat and 5 others like this.
      2. View previous comments...
      3. SarahMLFlemmer
        SarahMLFlemmer
        @Utdmad89 13 months in. Depression has lifted some but it's still a battle against my mind every day.
        Dec 18, 2023
      4. Utdmad89
        Utdmad89
        @SarahMLFlemmer my depression had just lifted after a year then 14 months in my symptoms got worse and now I'm back to feeling suicidal and hopeless.
        Dec 18, 2023
      5. SarahMLFlemmer
        SarahMLFlemmer
        @Utdmad89 I am so sorry. I'm fighting the anxiety today since my eyes have opened. It's so hard to go on like this.
        Dec 18, 2023
    4. MiaVIL
      MiaVIL
      My tinnitus sounds like bugs flapping their wings really fast all around my head and ears. I need help
      1. View previous comments...
      2. MiaVIL
        MiaVIL
        @DeanD do you think this could be pulsatile tinnitus?
        Aug 28, 2023
      3. SharonBell
        SharonBell
        Mine is buzzing-static electricity in both ears and head. Sometimes it’s like my head is sizzling.
        Dec 18, 2023
      4. SharonBell
        SharonBell
        I get the sizzling sometimes but mine is buzzing-static electricity
        Jan 6, 2024
    5. MiaVIL
      MiaVIL
      My conductive hearing loss and negative pressure caused my T. I am begging God for a miracle this can heal.
      1. 4alien2
        4alien2
        It looks like eustachian dysfunction. Have you seen ENT for this?
        Aug 25, 2023
        4Grace and Tryn2BHopeful like this.
      2. MiaVIL
        MiaVIL
        Yes I have. Suggesting tubes or waiting it out. I don't know what to do.
        Aug 25, 2023
    6. MiaVIL
      MiaVIL
      I am praying for a miracle to end the buzzing in my head. God please give me my life back. I want to be a mother and do good works for you.
      1. gameover
        gameover
        I want to be a father and husband. God does not care.
        Aug 25, 2023
      2. Utdmad89
        Utdmad89
        @MiaVIL i hope you get better one way or another.
        Aug 25, 2023
        4Grace likes this.
      3. MiaVIL
        MiaVIL
        Aug 25, 2023
    7. 4Grace
      4Grace
      Hi Miavil, sorry to hear you are suffering with Tinnitus. It’s only been 3 months so there is so much hope for you. I just wanted to suggest a great success story for you to read. From Darkness To Light from Billie48. It’s very informative. His success story was my favourite. It’s very informative. Tinnitus is unique to everyone so nobody’s negative story will necessarily be your experience. I wish you all the best.
      1. 4alien2 likes this.
      2. MiaVIL
        MiaVIL
        Thank you I am suffering. Hope as in it can fade? I have read stories of it fading out.
        Aug 25, 2023
      3. 4Grace
        4Grace
        Hope that the T can fade out or you habituate to the sound. At this moment since you are early on the sound can actually still fade out. I am assuming you are referring to T fading out. :) I know the suffering. For what it is worth, you are not alone in your suffering. We are there with you. I know a lot of people that live very normal lives with T.
        Aug 25, 2023
        SarahMLFlemmer likes this.
    8. MiaVIL
      MiaVIL
      I want to be happy again. I want to be my spunky, healthy, care free self. Please God help me and help everyone.
      1. Sha27
        Sha27
        how r u now Miavil? hope you're doing better
        Aug 30, 2023
      2. MiaVIL
        MiaVIL
        @Sha27 I am not better. It's static hissing and flapping like thumping.
        Sep 2, 2023
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  • About

    Gender:
    Female
    Location:
    Canada
    Tinnitus Since:
    05/2023
    Cause of Tinnitus:
    ear and sinus infection