MiaVIL
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MiaVIL

Member, Female, from Canada

Ok so horrible screeching tinnitus all night. This morning I pulled a glob of bloody mucous from my right ear!! May 16, 2024 at 1:52 PM

    1. MiaVIL
      MiaVIL
      Ok so horrible screeching tinnitus all night. This morning I pulled a glob of bloody mucous from my right ear!!
      1. kingsfan
        kingsfan
        That doesn't sound good. Could be an infection or ruptured eardrum. I would go to urgent care or ER.
        May 16, 2024 at 4:33 PM
        _Shoto_ and SilverFox like this.
      2. MiaVIL
        MiaVIL
        I have ear tubes in and nobody cares or will do anything to help me.
        May 16, 2024 at 7:44 PM
    2. MiaVIL
      MiaVIL
      Does anyone else’s T sound and feel like metal clanking? I can feel it. It hurts.
      1. tpj and L along the way like this.
    3. MiaVIL
      MiaVIL
      Tinnitus is basically stabilizing to pings/tings and sharp hisses. It’s very thin and severely intrusive. Can’t hold on much longer.
    4. MiaVIL
      MiaVIL
      Carol Lee Brook had one of the worst cases of T & H I have ever heard and made a full recovery. 4th phone call to this 84 year old.
      1. Ngo13 likes this.
      2. View previous comments...
      3. MiaVIL
        MiaVIL
        @4Grace I have spoken to her many times. If she can heal, why can’t we?
        May 15, 2024 at 9:24 PM
      4. 4Grace
        4Grace
        @MiaVIL / maybe you. Not me. Spiked from clenching teeth, pressing the right side of my head, moving my neck, very sound hurts, lost everything, can’t even go for a walk. Spread to my left ear. In pain. Never pain in my neck. Can’t do anything. Anything. Staring at the walls all day. I have no choice. Done reading, done internet … done TV, done, done, done!!
        May 16, 2024 at 10:18 PM
      5. 4Grace
        4Grace
        Nerve pain in neck not never
        May 16, 2024 at 10:19 PM
    5. MiaVIL
      MiaVIL
      Tinnitus has reduced down to a crackling, hissing hell
      1. L along the way, gameover and SumGuy like this.
      2. SumGuy
        SumGuy
        is it easier to mask now?
        May 6, 2024
        gameover likes this.
      3. MiaVIL
        MiaVIL
        @SumGuy no not at all. It cuts through everything
        May 6, 2024
    6. MiaVIL
      MiaVIL
      I want everyone to know that Michael Leigh caused me a suicide attempt and next time I hope it’s successful. I hate my life. I’m done.
      1. View previous comments...
      2. Nick47
        Nick47
        Ok you need to gather yourself again. I think hes a narcissist, repeating the same nonsense again and again, telling people to print his stuff out. An immature man looking for status here and on facebook. Disengage with him. Like talking to chatgpt
        Apr 27, 2024
      3. JeffToob
        JeffToob
        No one's advice or opinions on here are anything more than that. Please be aware that there aren't any 'truths' to tinnitus. It's extremely varied in it's symptoms, causes and effects. Sharing the same cause wont mean sharing the same effects. Ignore the negative stuff - it's only an opinion.
        Apr 27, 2024
        Juliane, Ngo13, weehiru and 1 other person like this.
      4. Juliane
        Juliane
        @JeffToob You are absolutely right! Such an important point
        May 6, 2024
    7. MiaVIL
      MiaVIL
      For those in Ontario- Mississauga mayoral candidate Brian Crombie completely RECOVERED from T by wearing generators!!
      1. cjbhab
        cjbhab
        i do wear generators and they provide relief but will not result in recovery for me.
        Apr 22, 2024
      2. gameover
        gameover
        No, he recovered DESPITE wearing generators.
        Apr 23, 2024
    8. MiaVIL
      MiaVIL
      When someone tells me “I don’t hear it” or “it’s basically gone now” then it means they don’t have it anymore!
      1. Juliane
        Juliane
        Yes it does. Agree
        Apr 22, 2024
        gameover likes this.
    9. MiaVIL
      MiaVIL
      December 30th 1991- May 24th 2023
      1. BrOKeN_1
        BrOKeN_1
        Stop.
        Apr 20, 2024
        Tryn2BHopeful likes this.
      2. MiaVIL
        MiaVIL
        Stop what?
        Apr 20, 2024
      3. BrOKeN_1
        BrOKeN_1
        Sry. I guess I shouldn't read into your post. I wish you well.
        Apr 20, 2024
    10. MiaVIL
      MiaVIL
      Ben Thompson says anyone who has had it for a year it’s permanent
      1. View previous comments...
      2. MiaVIL
        MiaVIL
        @Varda there’s no tears in heaven
        Apr 20, 2024
      3. Varda
        Varda
        @MiaVIL maybe there's still tinnitus in Heaven but everyone has learned to habituate
        Apr 20, 2024
      4. MiaVIL
        MiaVIL
        @Varda you’re thinking of hell
        Apr 20, 2024
        tpj, Juliane and BrOKeN_1 like this.
    11. MiaVIL
      MiaVIL
      looking for some opinions here- if you had thick mucous coming out of your ears and a CT scan showing this would you think it’s cause of T
    12. MiaVIL
      MiaVIL
      I’ve stopped talking to my family.
      1. Kiyomi and gameover like this.
      2. View previous comments...
      3. MiaVIL
        MiaVIL
        @Juliane I’m jealous of their health and happiness.
        Apr 20, 2024
      4. Juliane
        Juliane
        :-(
        May 19, 2024 at 1:53 AM
      5. Juliane
        Juliane
        Honest
        May 19, 2024 at 1:53 AM
    13. MiaVIL
      MiaVIL
      Very mild yesterday. Crackling/hiss is back today. Senior audiologist thinks it’s the fluid causing this and agrees with ENT. Don’t know.
      1. streifzug likes this.
    14. MiaVIL
      MiaVIL
      Still draining mucous from my middle ear spaces. Hopefully getting another CT scan in the summer.
      1. Tryn2BHopeful likes this.
      2. SumGuy
        SumGuy
        hi how do you know if its draining?
        Apr 11, 2024
      3. MiaVIL
        MiaVIL
        @SumGuy the mucous comes out of my ears
        Apr 12, 2024
    15. MiaVIL
      MiaVIL
      Do you get moments when you think “it’s finally over” then it comes back the next day
      1. RunningMan
        RunningMan
        It's never close to being over for me, but some days are less intense, which makes it easier.
        Mar 21, 2024
      2. cjbhab
        cjbhab
        i get stretches where i think i am going to manage and then i get kicked right back down.
        Mar 21, 2024
        Nick47, Juliane and gameover like this.
      3. BrOKeN_1
        BrOKeN_1
        Unfortunately. Not for me. From the moment I wake until I fall back asleep it's stun grenade time!
        Mar 21, 2024
        Utdmad89 and gameover like this.
    16. MiaVIL
      MiaVIL
      Ok someone told me that mucous in the ears causes signals from the cochlea to the brain in what is T. This could be ONE cause of T.
      1. Tryn2BHopeful likes this.
      2. Pinhead
        Pinhead
        Mucous in the ears causes signals from the cochlea. I'm sorry, but how?
        Mar 18, 2024
      3. MiaVIL
        MiaVIL
        @Pinhead causes bones to vibrate and signal something is wrong. Ear space is normally filled with air. Mucous signals a problem.
        Mar 20, 2024
    17. MiaVIL
      MiaVIL
      I have no success stories to lean on for my condition. Although some of Jason C’s former sounds I believe I have.
      1. gameover likes this.
      2. MiaVIL
        MiaVIL
        The pinging he describes for sure. Could that be a sign of reduced T?
        Mar 13, 2024
        SarahMLFlemmer likes this.
    18. MiaVIL
      MiaVIL
      I don’t understand how can fluid cause this?
      1. streifzug likes this.
      2. 4Grace
        4Grace
        It would have been nice if when they found the fluid and removed it if it helped? I guess it did nothing.
        Mar 9, 2024
      3. MiaVIL
        MiaVIL
        @4Grace they can’t remove it manually. The treatment is tubes, which I’ve had since September. It’s thick, snot like sticky mucous that was trapped in my ears. It’s not even liquid. It’s still coming out and it’s in the back of my middle ears and mastoids where they can’t reach
        Mar 10, 2024
        streifzug likes this.
    19. MiaVIL
      MiaVIL
      9- mos of hell. 3 ENTs. 2 audiologists. tubes for 6 mos. pulled huge amounts of thick mucous out of ears today. Goodbye dairy & gluten.
    20. MiaVIL
      MiaVIL
      If your ears were filled with fluid (found on CT scan) would you believe that this could be the cause of your T?
      1. 4Grace, Kiyomi and streifzug like this.
    21. MiaVIL
      MiaVIL
      Tsk, tsk, tsk. That’s all I hear. Like a cymbal or a pebble on glass.
      1. L along the way, streifzug and aab like this.
    22. Lipshitz
      Lipshitz
      Full Habituation is a cure , if Tinnitus no longer bothers somebody at all then that is a cure . Anything less than 100% full Habituation isn't a cure it is just living with it and dealing with it .
      1. gameover and BrOKeN_1 like this.
      2. MiaVIL
        MiaVIL
        loved Al Lipschitz
        More than I can possibly say
        He was a real artistic guy
        Sensitive, a painter

        are you the Lipschitz from Cell Block Tango?
        Mar 5, 2024
        tpj and gameover like this.
    23. MiaVIL
      MiaVIL
      Walked out on ENT during appt today. Ears still filled with fluid apparently. Told me nothing she could do that I have to cope with it.
      1. View previous comments...
      2. MiaVIL
        MiaVIL
        @Tryn2BHopeful yes and they said the same thing the fluid is causing the T. They said that I haven’t had the tubes in for very long (6 months not long for them) and said it could take a while before all cleared. Apparently I am not clearing it fast enough as it’s like snot and sticky. I am trying some dietary changes like no dairy to see if it helps but all they can do is monitor with CT scans.
        Mar 4, 2024
      3. Tryn2BHopeful
        Tryn2BHopeful
        That's crazy, but it sounds like it's possible for you to see improvement when the fluid clears.
        Mar 4, 2024
      4. MiaVIL
        MiaVIL
        I get mucous coming out of my ears daily and who knows maybe I will go into remission… maybe not…. I try to have faith that there will be more to life than this but I can’t get this fluid to stop right now don’t know what to do
        Mar 5, 2024
    24. MiaVIL
      MiaVIL
      Michael Leigh told me that anyone who says that they don’t have tinnitus anymore is lying.
      1. gameover likes this.
      2. View previous comments...
      3. gameover
        gameover
        Just shows what a tool he is. He knows everything based on his own experience. It is best to ignore him.
        Mar 3, 2024
        Travis Henry and MiaVIL like this.
      4. crescentsky
        crescentsky
        IDK. If someone tells me their T went away, I don't think I would argue with that. When I had my concert T for a few(?) days, it completely faded into silence for 10 years before current T came out. I 2000%+ experience complete silence.
        Mar 3, 2024
        MiaVIL, Kiyomi and gameover like this.
      5. HearingHell
        HearingHell
        @MiaVIL A lot of people who experience T remission don't write success stories, they just leave this website without saying anything.

        The people you spoke to on the phone are likely telling the truth. Tinnitus plays out differently for everyone. It gets quieter for some people, and for others, it doesn't. There's no logical reason to believe that everyone who claims their T reduced/resolved are lying.
        Mar 3, 2024
        BrOKeN_1, MiaVIL and Kiyomi like this.
    25. MiaVIL
      MiaVIL
      Just spoke to Michael Leigh. He said Jason C is not cured of his tinnitus. Basically told me he “habituated to it”.
      1. View previous comments...
      2. gameover
        gameover
        That's not what "Jason C" wrote. So one of them is lying. Gotta say Mr. Leigh never struck me as someone trustworthy with his robotic and annoying manners.
        Mar 2, 2024
        Travis Henry and RunningMan like this.
      3. RunningMan
        RunningMan
        I recall reading about that before. It seems like there were some conflicting statements IIRC.
        Mar 2, 2024
      4. gameover
        gameover
        The conflicting statements were solely made by Leigh. @Jason C was unequivocal his T went away and stayed away, confirming that years later.
        Mar 3, 2024
        MiaVIL, Kiyomi, HearingHell and 2 others like this.
    26. MiaVIL
      MiaVIL
      6 months of having tubes in my ear drums. Just went for check up-ears still saturated with fluid, especially my right ear (throbbing)
      1. streifzug and Kiyomi like this.
    27. MiaVIL
      MiaVIL
      Heart is broken, a kid in my SIL’s school she works at just recovered from a sinus infection but now has T. I got mine the same way.
      1. streifzug likes this.
    28. MiaVIL
      MiaVIL
      For Canadians: Audiosense in Toronto is working on securing a deal with Auricle once it becomes FDA approved & Health Canada approved.
      1. Kiyomi, 4Grace, streifzug and 2 others like this.
    29. DesertRain
      DesertRain
      I love your profile pic. I was in high school when they did the Death To All reunion tour. I had the opportunity to attend but chose not to and I've regretted it for years. I told myself if they did another tour I would absolutely go. Well, they recently announced another tour and I won't be going again. Not by choice this time though lol
      1. MiaVIL likes this.
      2. View previous comments...
      3. DesertRain
        DesertRain
        Musical genius forsure. Wish he hadn't passed so young, I felt he was just entering his songwriting prime. Every album was an improvement over the last. TSOP is already so damn good, to think he could've written something even better makes me sad. I was 5 when he passed.
        Mar 1, 2024
      4. DesertRain
        DesertRain
        I used to go to backyard shows when i was a teen. There was a band that always covered Evil Dead and Pull the Plug. The energy was always electrifying when they played those two songs. It was a garaunteed moshpit lol I can imagine how much better it would have been to hear Death play those live.
        Mar 1, 2024
      5. MiaVIL
        MiaVIL
        I think at the time around his death he just wanted be on guitar for Control Denied and focus on that. Yeah being old enough in the 90s to see Death would be out of this world. I watched the Death documentary recently on Youtube but it mostly just ex band members talking crap.
        Mar 3, 2024
    30. MiaVIL
      MiaVIL
      Spoke to 4 people who claim TRT (sound generators) helped them actually get rid of their Tinnitus. Not habituation,actually gone.
      1. View previous comments...
      2. RunningMan
        RunningMan
        Yeah not arguing. Is she making money off books or something? I saw a reference she made to TRT helping with habituation, then added that the tinnitus is low. I think you see little reference on Tinnitus Talk because most don't think it was worth the cost for little to no benefit. But if you try it, let us know how it goes.
        Feb 24, 2024
      3. MiaVIL
        MiaVIL
        @RunningMan She told me she never made any money off her books and has tons at her house still not wanted. She is old now like early 80s. Back in the 90s she had bad hyperacusis and “12 tones which were louder than all of San Francisco”. She is fully recovered now after wearing the generators for 4 years. Anyways that’s a condensed version her story.
        Feb 24, 2024
      4. Tryn2BHopeful
        Tryn2BHopeful
        It's always possible, keep that hope alive. It's what gets us through this. Just be cautious because there are alot of people trying to scam T sufferers.
        Feb 25, 2024
        RunningMan likes this.
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  • About

    Gender:
    Female
    Location:
    Canada
    Tinnitus Since:
    05/2023
    Cause of Tinnitus:
    ear and sinus infection