Supersix

I tried taking 100mg once, but it made me feel mellow. I have GERD, and it triggered it, so I can't take it. My advice to anyone out there: don't be afraid to try anything. It can't be any worse than what you're going through now, and it might improve your quality of life. And if it does spike, it will come down. I'll try anything now; in the past, I was terrified, to.

Yeah, I'm grateful too I'm financially stable. I had a minor tbi 6 months prior to tinnitus and STD coverage kicked in. I was later granted SSDI and the medical coverage is the best I've ever had. It's a huge relief having support through this.

I was financially stable, but after 3 years of being unemployed and too distraught to make competent financial decisions, everything I spent 20 years working for is gone. Was always just behind housing prices, could never quite catch up. By the time I saved to afford a ~$300k house, the average price rose to $800-900k. And that would have been a house way out in Redlands, CA with a looong commute to LA/OC

@kingsfan You need to move to Central California. Your money will go further.

@Varda - when I was in university I was like that … could sleep for days. Needed to alarm clocks to get up. Now I can’t stay in bed. Going insane. I wish I could.

Two alarm

I slept fine in college at a university. My sleep did get worse when I had mild tinnitus but went to hell went it got severe. I had some nights with zero sleep, even back to back. Now I might get 5 to 6 hours broken sleep with meds before bedtime plus overnight.

I'm unfortunately not sure its that intense.

i believe it, the japanese research capabilities . they are much more focused and less profit-centered than US

there are too many secrets in this world. Real information is hard to get

That's ossiculoplasty. Nothing exactly "new", I believe.

I'd agree with you on that one @Utdmad89

I was habituated to mild tinnitus. Then it turned severe suddenly well over two years ago, and has actually worsened, so I'm further removed from habituation than ever, although some days are worse than others.

I have ADHD and A little OCD.

@kingsfan Have you tried the Azelastine?

Not yet. Actually forgot to pick it up last time I was at the store. Maybe next time

The pollen levels are decreasing. I'll use it if I get irritated by my pets or if bad air quality affects my ETD.

I suffer from allergies and ETD, and when they flare up, everything seems to go wrong. Recently, I decided to use a prescription nasal spray that I had been sitting on for a year. However, I finally decided to try it. I told myself it couldn't make my T any louder than it was, which was a good decision. The spray dried me out. I love the results so far and am curious to see how I feel over the next few days.

Azelastine HC is the prescription that helped alleviate my tinnitus and dry me out. Let's see how tomorrow goes.

I wasn't clear earlier. I meant that I think the new sleep med is making me feel worse since upping the dose. Sadly, I'm not sleeping any better, yet, either. I'm hoping I adjust and it improves.

I concur. Highly recommended.

I don't have Remeron, but I have a little Ambien left. When I wake and can't get back to sleep, Ambien helps me get back to sleep at a small dose better than the full pill of Lorazepam. But I no longer have an Ambien prescription. Dr. less likely to prescribe Remeron, especially since he prescribed Quviviq. That's why he stopped Ambien. I need to give Quviviq more time.

Well had the upper GI. No problems seen but waiting on random biopsies.

That's great news. I had scarring on my lower esophagus I have to take a-PPI for maintenance every day, Luckily it doesn't spike my T

I noticed my hissing tone improved two days after the massage, but I'm unsure if it was directly related. I was like, wait a minute, my tone is quieter now. What happened? It's been two weeks now, and it is still the same. I hope it stays.

Mental Note... "Get Swedish Massage". :)

I've tried with my airpod pros, but it doesn't give me any benefit. I just use them for at-home audiograms from time to time with the MiMi app since they are specifically calibrated for it.

Also the "connecting" sound they play when I put them in my ears is uncomfortable.

I don't know of any, but "new" usually means expensive and insurance doesn't cover when there are lower cost drugs available.

@cyberspace "I'm sorry, dude. I hope things will change for you in the future.

Getting through it. Then getting through the working week to get to the weekend. Then the cycle repeats. No real enjoyment ever.

@Juliane completely relate and SICK of living this way.

I visited an Ear, Nose, and Throat doctor who is a semi-retired professor and a graduate of Stanford University. He had asked me to bring my medical records four months before my visit, which he reviewed. During the examination of the hearing test, he noticed that although I could not hear from my right ear, the bones in that ear could still receive sound. He explained that there is a surgical.

That is incredible! Congratulations

It's called Orsicular Chain Reconstruction with titanium in my right ear. He said they could restore the hearing to 80-70 DB, and I would wear a hearing aid. He stated it would make my life better and offset the Tinnitus in the left ear.

@RunningMan My insurance wont cover them... I dont qualify for a hearing aid as far as for amplification as my normal audiogram is fine. However despite my efforts none of them would offer me maskers. I feel I have been pretty much dismissed everywhere I go.

@Tryn2BHopeful Oh, I see. Yeah, I actually have hearing loss, although I don't normally have trouble hearing in conversations, even in groups, so I haven't been quick to get hearing aids, even though I would like to try the masking (or sound enrichment, whatever. lol).

To use white noise with your hearing aid, you'll need one that has Bluetooth connectivity. Many hearing aids come with a companion app that can play white noise. The Resound hearing aid app is one such app that allows you to customize the sounds you hear. and it's especially handy when I experience sudden spikes in my T Additionally, you take calls on your mobile phone directly through your hearing aid.

Sadly nothing works for me. Everything seems to make my T react more... So I dont even try.

"I have trouble listening to white noise when I sleep because it makes my tinnitus sound louder, Occasionally, during the day, when my tinnitus is particularly intense and wearing on me mentally, I'll listen to rain noise for a short time.

This was posted with some discussion in the Lenire thread: https://www.tinnitustalk.com/posts/702597

That's nice to read. Btw, I've never been a big fan of pharmaceuticals. But when it comes to a good night's rest.. I just value that so much. For now the medication helps, I hope in the future, with mindfulness & a healthy lifestyle I can feel better & sleep well again

Meditation and breathing exercises are crucial; I practice them daily. Also, it's essential to reduce salt intake and identify tinnitus triggers. I have bad anxiety. I will drink chamomile tea in the morning. It calms me down, and I have Benzo for emergencies and eat very clean.

"It's amazing how I had a wonderful day yesterday, but everything went wrong at 3:30 am deep ringing. Whenever I have a good day, the next day is a disaster. I don't understand why I can't have three consecutive good days. Occasionally, I can have two good days in a row. It's because the barometer goes up and down during the winter, and it effects my ETD

I considered canceling the procedure because my T levels spike with everything I take. I need a pill with Propofol and a small amount of Klonopin i would be set a night

I would love to try this, but my ears cannot tolerate the stringed instruments.

@kingsfan , look into Frederic Chopin. He does a lot of solo piano compositions. not too hard on the ears. He’s not a classical composer, but a romantic one. Still very good era of music. Give it a look maybe.

I find Mozart really chill.

@kingsfan "The piano is a calming instrument. I will adjust the volume or switch to a different song if the string instruments become to distracting.

yeah, I've done it, just not a lot. I didn't seem to help much after I was done.

@RunningMan it helps with anxiety and can calm you down before bed. If you have loud T its hard to sleep without meds.

Yeah, I take a med almost every night, sometimes 2 or 3, and I still usually come up short on sleep, which is always quite broken as well.

I guess it depends on whether one wants a long life....

@Supersix To a point obviously, taking .5mg might do nothing. The idea is that at low doses it only effects the part of the brain that has an anti-histamine response... thus makes you sleep. At higher doses it has more effect on other chemicals in the brain.

@Tryn2BHopeful

Right now, I'm trying to get my sleep under control. I wouldn't say I like taking these meds. I know I have significant anxiety, but I think I can control it with better sleep. I'll still have anxiety, but I won't have to worry about a permanent spike loading up on this medicine.

@Supersix I know you took hydroxyzine. Did Mirt seem to have a much more sedating effect for you? Hydroxyzine and other antihistimine OTC sleep meds don't seem to help me sleep much better - sometimes they seem completely ineffective despite rarely using.