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That is funny you say that because your story is a big inspiration to me. When I get spikes, I remind myself that it can get better, even if it takes four years, and that helps me calm down.

Yeah, I get it. I had that a lot too. Now I’ve accepted that it’s not going away, so I might as well live my life again. It’s hard to say because my tinnitus is not constant. I have five or six different tones, and they all come and go. The volume also changes, sometimes it’s very loud, and...

I know you’ve had this condition for a while, and that you know yourself better than anyone. But is there even the slightest chance that the radiating pain comes from clenching your jaw due to the stress that sounds cause?

I got tinnitus about 1.5 years ago, and I started seeing the first signs of improvement after beginning Clonazepam, following 10 months of pure hell with loud tinnitus. Now, at 1.5 years, I still have it, but I have a lot of hope for the future, and it doesn’t bother me nearly as much anymore. I...

My tinnitus is often lower when I'm exhausted. That's a good news because tinnitus is exhausting lol

Mine is often louder when I wake up, then it calms down within ten minutes to an hour after waking. If I wake up in the middle of the night, it can be extremely loud. I have TMJD, so that’s probably the reason why.

I have the same thing, and for me, I attribute it to a general lack of auditory input since I overprotect a lot. The more I panic about it, the more the sounds stick in my head. If you can, try to distract yourself from it, or gradually introduce a bit more background noise around you and see if...

Also, quick update: my hyperacusis has gone down to the point I feel comfortable listening to cars passing outside again. Spikes are very short-lived now, at most 3 days compared to the 2 months it used to take. I sleep so much better and it helps a lot

Today I saw a great ENT who told me that recovering from hyperacusis is like recovering from surgery. It takes time, and everyone is different. He told me I was right to protect, that I should continue to do so until I feel comfortable moving to the next step. When I mentioned that other ENT...

When I wake up, my jaw feels tight. Because of that, it was pretty easy for me to recognize that I have TMJ. In addition to that, I experience jaw pain, limited mouth opening, hyperacusis, ear pain, and jaw spasms where my mouth suddenly opens—those are very painful. For now, I try to relieve...

Hello, I do not take it regularly. I only use it during very difficult periods, and I usually take 0.25 to 0.5 mg every three days, one to three hours before sleeping. I have never taken it for more than two weeks.

Big progress in june 2025 ! Tinnitus stabilizing, hyperacusis softening a bit, shorter spikes :)

Do you have acid reflux? I know acid reflux gives me pulsatile tinnitus, and it used to give me a sore throat.

Hello, my longest spike lasted for three to four months. I got it after going to a restaurant. During those three months, my tinnitus was extremely loud and constantly changing. I thought it was going to be permanent, but after three months, and after starting Clonazepam, it finally went down...

Hello, my tinnitus is almost the same as yours. In my case, I have found that it is best to expose yourself to sound only when you feel safe or when you are having a better day. Do it slowly and very gradually. Every worsening I experienced—some temporary, some more long-lasting—happened because...

I'm getting weird headaches/tinnitus flare ups in the early morning. It's like my head is pulsating with sound. Hyperacusis has been flaring up too after a noisy day, although it's getting better by day 3

She was genuinely obnoxious. She even recommended that I read a book about “the Judeo-Christian guilt.” While I was explaining my symptoms, she kept contradicting me or repeating them back incorrectly. When I corrected her, she got upset and said, “You really don’t want to be wrong, do you?”...

Be prepared for the ENT to possibly get angry too. I recently refused all tests during an ENT appointment because the doctor would not tell me what tests she planned to do, and she refused to avoid using loud ones. She basically told me that if I had tinnitus, it was my own fault for refusing to...

I have autism and some auditory processing difficulties. I also have hyperacusis and tinnitus. Let me clarify that hyperacusis and auditory processing disorder are very different conditions. Auditory processing disorder is not physically uncomfortable or painful, unlike hyperacusis. Anyone who...

Hello @daniel12345, do you have any TMJ disorder? I ask because I have the exact same symptoms, and I’m quite sure mine comes from my jaw. I have a hum in my right ear, sometimes accompanied by the feeling and sound of my own heartbeat. When I clench my jaw a lot, the sound becomes very loud...

Exactly the same for me! It can also mimic external noises, and it is sometimes accompanied by pulsatile tinnitus. The louder it gets, the more I experience the pulsatile component. I would say mine is around 500 to 800 Hz, although it is a bit hard to pinpoint, as it feels more like a...

Penicilins do not affect my tinnitus at all but ppi like pentoprazol do. Good to know !

Hopefully last night in the hospital. I can't wait to go back home and sleep in my bed with my cat

Everything was going OK at the hospital until I was put in a room with someone hooked to various extremely loud beeping machines. I got blasted with high pitched pure tones and my tinnitus is not liking that

Currently hospitalised because I have air around my heart. They have to put me on penicilin and I'm SCARED. No choice if I don't want to die though

I don’t know if it’s exactly the same, but I also experience a cyclic low tone in my right ear only. I would describe it as sounding like Morse code, but more similar to pipe noises. For me, it often turns into a constant hum by the end of the day or at night. It usually takes a few weeks or...

So, if I understand correctly, they have not yet obtained FDA clearance, but they have begun the process to apply for it?

I still use TikTok. Tinnitus is not going to take away another thing I enjoy. However, I only use it without sound unless I am certain the video does not contain any strange or potentially triggering sounds. I am not too concerned about videos where people are just talking, or content from...

I’m aware that any kind of healing will probably take years, but I’m confused about what the safest route is in the meantime. The problem is that this reactivity is only getting worse, and it started fairly recently. It began in my left ear three months ago after I listened to a “soothing music”...

I accidentally listened to the coil whine on my monitor while looking for the source of some noise I was hearing and now I have this awful new tinnitus sound. It's been 24h. Scared I gave myself a new permanent sound...

It happened to me. I was searching for a friend’s username on TikTok, and the first result was one of those pure frequency tracks that are supposed to “heal your soul and chakra” or something like that. This caused a new sound in the ear that was exposed, which lasted for three days. It...

Hello everyone, As some of you might have read, I’m doing much better lately. My tinnitus is more stable, my spikes are shorter, and my hyperacusis is improving. However, there is one very specific sound that makes my tinnitus go haywire, and I can’t avoid it. The sound is just a beep, but not...

I’m following the same path. I’m 15 months in, and my hyperacusis has started to improve as well. Just last month, even my cat’s purring felt too loud, but now I can listen to outside noises like cars without feeling the need to use protection. My tinnitus has also become much more stable...

Hello, Yes, I have! I already know that my posture is directly responsible for my transient tinnitus episodes, so I’ve been working extensively on it. I bought a desk chair with upper back support and armrests, and I actively try not to slouch. I also noticed that all pillows hurt my neck...

My radiator was super loud, which caused an accidental sound enrichement in my room for 2 days. My hyperacusis today is almost gone and my T doesn't react. I've decided to do sound enrichment by opening the windows

May Update: This month I’m doing better. Tinnitus still has its ups and downs, but I have hope, as I’m experiencing more and more periods where it doesn’t bother me as much. As a result, I’ve been sleeping very well, which significantly reduces my tinnitus. Sleeping well also greatly decreases...

I managed to obtain the PDF. The pharmacological treatment includes Amitriptyline, Clonazepam, and Ginkgo Biloba. I only skimmed through the text, but the aim and conclusion of the article are to demonstrate that pharmacological treatments alone are less effective than a combination of...

I am asking my partner, who has institutional credentials, if he can access it. If not, you might have some luck by emailing the author directly.

Hello everyone, I’ve had tinnitus for a year now, and although I am coping much better—and sleeping much better too—I am still struggling with certain noises. My tinnitus is not constant. By that, I mean it can shift quickly from a hiss to a ringing sound. One of the things that triggers these...

Currently trying to not care about my tinnitus and hyperacusis and it's actually working. Tinnitus is less reactive and when it is, it doesn't last long (except for the 2 days of ambulance siren phantom noise I got lol)

Oh, that’s good to know! What are your triggers, and what are you doing to avoid them? In my case, I’m currently wondering if I might have chronic sinusitis. I have a lot of breathing issues, and my TMJ specialist told me he could tell from my posture that I mouth breathe. I also suspect I...

I get similar sensations all the time when I am lying in bed. Usually, I can feel my tinnitus cutting in and out before it happens, so I have a chance to get up. But if I do not, I get the piercing tinnitus, which can last from 10 seconds to a few days. The longest it lasted for me was two days...

You also have to be proficient in Dutch. I would have participated otherwise 😢

If you find something, could you let us know what you buy? I’m interested too!

We also had mold issues in our bedrooms, and the two times it happened, my tinnitus lessened a lot after clearing the mold.

Since last November, I've been having more and longer periods where my T is predominantly a hiss. Although it's also reactive, the intensity of neck and jaw pain I have is directly related to the loudness and nature of my T.

Update: I think I have a slight idea of what my baseline is, but the issue is that I cannot figure out how to stay at baseline. As I have mentioned, my tinnitus is extremely reactive and somatosensory. The problem is that I am a very tense person. Even the slightest stress causes all my...

A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.

I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week. When it's not vacuums, it's alarms. I rarely have a full night of sleep; it's insane.