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  1. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi folks! Just a little update about my situation. I have been taking only 7.5 mg of Mirtazapine to sleep for a week now. Before that, I was taking up to 45 mg (the maximum dose) and then gradually reduced it to the minimum dose. I can clearly see a difference. My sleep is not as catastrophic...
  2. Kam75

    Unfortunately, no. My tinnitus became extremely intense (even though it was already bad) two...

    Unfortunately, no. My tinnitus became extremely intense (even though it was already bad) two years ago, because I tried to resume my social life. Since then, my sleep has been catastrophic. Mirtazapine and melatonin, which used to work quite well, no longer has any effect. It's hopeless... I...
  3. Kam75

    Salut, it must be horrible not to have the support of our parents. I'm also having sleepless...

    Salut, it must be horrible not to have the support of our parents. I'm also having sleepless nights for years because of tinnitus. I know the feeling 😔 Are you taking any medicine to help sleep?
  4. Kam75

    I hope you're not serious?! Don't do something like that. Tinnitus can improve, please be...

    I hope you're not serious?! Don't do something like that. Tinnitus can improve, please be patient. It takes years. You have your whole life ahead of you, don't do anything foolish :(
  5. Kam75

    Hyperacousis does get better over time, if you don't overprotect your ears all the time and if...

    Hyperacousis does get better over time, if you don't overprotect your ears all the time and if you expose your ears little by little to sound which are not supposed to be harmful (<70 db). I wish I could sleep again. I didn't have a restful sleep for like 2 years :(
  6. Kam75

    AdventHealth Research Institute Offers Phase II Clinical Trial of Etanercept for Treatment of Blast-Induced Tinnitus

    The thread was created two months ago. So yes, if there have been so few reactions in two months, that raises questions.
  7. Kam75

    AdventHealth Research Institute Offers Phase II Clinical Trial of Etanercept for Treatment of Blast-Induced Tinnitus

    Hi everyone, Could someone please help me understand, as I’m not sure I have this right. We have a treatment already in phase II trials that is intended to treat tinnitus in patients exposed to an explosion. Since an explosion is a sound, it could also potentially help those who developed...
  8. Kam75

    For some people, spikes subside, while for others, the tinnitus returns to its initial state...

    For some people, spikes subside, while for others, the tinnitus returns to its initial state. Unfortunately, for others, the worsening symptoms seem to be permanent. This is the case for me; my symptoms have worsened since I tried to resume my social life two years ago.
  9. Kam75

    Hi mate, I lost mine at the age of 28. I'm 34 now. I know this horrible feeling. I'm like a...

    Hi mate, I lost mine at the age of 28. I'm 34 now. I know this horrible feeling. I'm like a zombie everyday because of the lack of sleep. I live isolated in my room, doing nothing. It is terrible. Personaly I don't want to kill myslef, but I don't want to live like this for the 40 years to come...
  10. Kam75

    Same for me...

    Same for me...
  11. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    I humbly admit that I tend to be a rather negative person in life, because my motto is, “Expect the worst so you are prepared for anything.” However, when it comes to Auricle, I genuinely want to believe that it will work, even if only to reduce tinnitus and finally allow me to sleep again. I...
  12. Kam75

    Salut, I also have a sort of electric/metallic sound that seems to move around inside my head...

    Salut, I also have a sort of electric/metallic sound that seems to move around inside my head. This is one of the 5 sounds I hear that bothers me the most. Complete silence is not good for hyperacusis. Your hears have to get used little by little to noise. But loud noise is definitely dangerous!
  13. Kam75

    My ENT prescribed me Gabapentine for 2 months after my noise trauma. It did absolutely nothing...

    My ENT prescribed me Gabapentine for 2 months after my noise trauma. It did absolutely nothing for my tinnitus. He then made me tried 4 others antiepileptic to no avail.
  14. Kam75

    I first got tinnitus when I was 21 year old, during my Erasmus exchange program (but it was very...

    I first got tinnitus when I was 21 year old, during my Erasmus exchange program (but it was very mild). So I know what it is to have hearing issues during youth. I'm 34 now, and I have been having exremely disabling tinnitus for 6 years.
  15. Kam75

    That's what we call an incurable disease. Nobody can help us unfortuntely :( "Get used to it"...

    That's what we call an incurable disease. Nobody can help us unfortuntely :( "Get used to it" say all doctors. Yeah, get used to suffer your entire life... What a nice way to respond to a patient. I hope Auricle could at least alleviate tinnitus.
  16. Kam75

    It's almost the same for me, my tinnitus keeps getting worse each year :cry: Even the strong...

    It's almost the same for me, my tinnitus keeps getting worse each year :cry: Even the strong combination of drugs I take too sleep no longer works (Mirtazapine, Quetiapine, Alimemazine, Melatonin). I'm stuck in my room, losing my mind and my life. This terrible condition took everything from...
  17. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    I’m aware of this particular use of Mirtazapine. The problem is that every time I’ve tried reducing it to 15 mg, I’ve had to go back up to 22.5 mg after about a week, because my sleep becomes catastrophic again. Salut @Hyperacusis. I already have an RQTH, but I’m recognized as a disabled...
  18. Kam75

    It is often said that anxiety make tinnitus worse, but I'm not so sure whether this is true. I...

    It is often said that anxiety make tinnitus worse, but I'm not so sure whether this is true. I take as an example the fact that two years ago, I stressed enormously and continuously for at least 2 months (for a personal reason that had nothing to do with tinnitus), and this didn't aggravate my...
  19. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Mirtazapine at 22.5 mg helped me get a halfway decent night’s sleep, but that was before I made the mistake of resuming a social life. I recently tried Quetiapine for the first time, but it did not work, so I stopped taking it. Yet on Tinnitus Talk, I was told that the combination of...
  20. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Tinnitus Talk members often mention Dayvigo or Trazodone. Unfortunately, neither of them is available in France. I’ve been taking Mirtazapine for almost five years. On some nights, I add Alimemazine, Quetiapine, or Melatonin, but sadly this combination no longer works for me. My tinnitus is so...
  21. Kam75

    Mirtazapine (Remeron) vs. Trazodone — Which is Gentler for Tinnitus?

    Ah, sorry for that... Did you see a psychiatrist? He might tell you whether you really need an antidepressant or not. I don't know if antidepressants can make visual snow worse. But I remembered some people on Tinnitus Talk claiming that antidepressants gave them visual snow... The best advice...
  22. Kam75

    Mirtazapine (Remeron) vs. Trazodone — Which is Gentler for Tinnitus?

    At the highest dose (45 mg), it is supposed to work for depression. As I mentioned, I have been taking it for more than four years now, and I am still in deep depression. I do not think I will ever get out of it. I was already struggling with depression long before I developed tinnitus, so you...
  23. Kam75

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    What does it mean that I’m “reaching”? Do you mean that I’m exaggerating? If you think I’m exaggerating, I invite you to read @kelpiemsp’s profile. He wrote this himself in 2019: “I am currently experiencing silence for the 1st time in 31 years. No wonder people are so upset. What a strange...
  24. Kam75

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    I remember @kelpiemsp, the “fortunate” person who experienced silence for the first time in 31 years after trying the University of Minnesota device. It is incredibly frustrating to know that a device capable of silencing tinnitus is sitting unused on a university shelf. Dr. Hubert Lim is...
  25. Kam75

    Suicidal Two Months After Tinnitus Onset from a Child's Scream

    Hi @Annina, Sorry to hear about what you’re going through. Two months is really not a long time. Your situation may very well improve in the coming months if you continue to protect your ears when needed. It is important never to expose yourself to loud noise again once you have tinnitus...
  26. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    @trevl, again, what you say sounds very convincing and rational (and I really appreciate you taking the time to share your knowledge on the subject), but there isn’t a single ounce of positivity in it, and that’s what I need most right now, being at rock bottom emotionally. :( What you wrote...
  27. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    @lostb1t, I don’t know if Quetiapine is specifically meant to help you calm down, but according to my psychiatrist and many members of Tinnitus Talk, it’s primarily used to help with sleep. Personally, I don’t notice any difference when I take Quetiapine for sleep, so I’ve stopped using it...
  28. Kam75

    Mirtazapine (Remeron) vs. Trazodone — Which is Gentler for Tinnitus?

    Hi @ErnieRo, I have been taking Mirtazapine for more than four years now, and I have never stopped it. It did not make my tinnitus worse, and I have not experienced any side effects. I have taken it at the maximum dose of 45 mg, but I am currently down to 15 mg. This drug actually works...
  29. Kam75

    Maria's Hyperacusis & Tinnitus Success Story

    I can confirm that tinnitus can improve, but only if you give up your social life completely. Two years ago, I felt almost cured after four years without any exposure to music. Unfortunately, after resuming a social life and exposing myself to music again, my tinnitus became extremely...
  30. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @virginiadoc, it is disheartening to read that even a psychiatrist cannot find a solution to relieve the pain. It almost makes me wonder, what is the point of continuing to see my psychiatrist if he cannot help me anyway? I don't have any other health problems in my life except tinnitus and...
  31. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Among all the therapies I have tried, there were sophrology, hypnosis, and cognitive behavioral therapy for insomnia. None of them helped. I am considering trying cognitive behavioral therapy specifically for tinnitus, or possibly EMDR. I am not sure yet.
  32. Kam75

    Significant Tinnitus Relief Using Vicks VapoInhaler and VapoRub

    Glad to hear you found something that helps. Obviously, this is very unlikely to work for noise-induced tinnitus. How long does the reduction in ringing last?
  33. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    @trevl, I already read the threads you mentioned, and I understood the lesson. I will never, ever go to any bar, pub, club, or party again. As I said in my first message, I now only leave my apartment to go to work, to go to the gym, and to do my shopping. That is all. I have accepted that my...
  34. Kam75

    Same for me, same for nearly all of us here :( Two years ago I started living almost normally...

    Same for me, same for nearly all of us here :( Two years ago I started living almost normally, going to bars and clubs, as I felt better. But now I'm living a nightmare... Tinnitus increased because of that. I have sleepless nights every nights. This conditions always reminds you that your...
  35. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    You may be right about that. I’ve already come across this theory on Tinnitus Talk. It’s neither reassuring nor optimistic to read, because it makes you realize how fragile and damaged our ears really are, and how easily their condition can deteriorate again. I always wonder, how on earth do...
  36. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @trevl, it seems there are no drugs on the market that have the potential to reduce tinnitus volume, except Clonazepam, if I am not mistaken. I was prescribed this drug a long time ago, but I do not take it. It does not have a good reputation. Currently, I am taking Mirtazapine (between 15...
  37. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @Carolan! I’ve been recognized as a disabled worker, but unfortunately, that doesn’t grant me many rights—except for the possibility of retiring early under normal conditions. As far as teleworking is concerned, since I’m a consultant, I am subject to the policies set by the client’s...
  38. Kam75

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    I do not think there is a clear answer to this question, as we all react differently to medication, stimulants, and alcohol. However, it is true that coffee and alcohol are often considered substances that can temporarily increase tinnitus. Personally, that has not been the case for me. Up...
  39. Kam75

    Naproxen made my tinnitus worse. You can find my whole story here. I swiched to Mirtazapine...

    Naproxen made my tinnitus worse. You can find my whole story here. I swiched to Mirtazapine because Amitriptyline no longer worked. Now Mirtazapine no longer works because 2 years ago I resumed a social life and exposed myself to music.
  40. Kam75

    Naproxen made my tinnitus worse. My ENT specialist confirmed afterwards that it was indeed an...

    Naproxen made my tinnitus worse. My ENT specialist confirmed afterwards that it was indeed an ototoxic anti-inflammatory. I started with Amitriptyline and have now been on Mirtazapine for 4 years. Neither of the 2 antidepressants made my tinnitus worse. Going to music evenings has made it much...
  41. Kam75

    Hi @Nocca, as I said in my thread in which you have commented, I'm going to ask my psychiatrist...

    Hi @Nocca, as I said in my thread in which you have commented, I'm going to ask my psychiatrist to add Duloxetine to my current treatment (Mirtazapine) :) My appoitment with him is in July. Best wishes to you too.
  42. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @Knietppe, I’m really sorry for what you’re going through. Yes, I completely understand what you described, and I also feel like a zombie because of the lack of sleep. My eyes are as red as tomatoes every day due to insomnia. I feel weak and unsteady, so much so that I sometimes think if...
  43. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @object16, thank you for all your advice. I already eat a lot of oats every day—60 grams of rolled oats for breakfast with milk, and 30 grams of instant oats as an afternoon snack. I’m on a diet because I do fitness training, and I also limit sugar and saturated fats. This has had no effect...
  44. Kam75

    Could Tinnitus Have a Genetic Predisposition?

    Okay, so I understand why I developed tinnitus. I am both anxious and depressed… 😐
  45. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    These are the types of advice I received when I underwent CBT for insomnia. Yes, a few years ago I tried it. I completed two full courses of CBT for insomnia, four days per course, so eight days in total, with three-hour sessions each day, all held in the hospital. Unfortunately, it did not...
  46. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Thank you so much @SafeMusicFan for your long message of support. I really appreciate it! You are right about everything. I am indeed depressed and have been for many, many years. I was depressed even before I had tinnitus, so you can imagine how I feel now. My psychiatrist has been trying for...
  47. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Oh my God, you got tinnitus one year before I was born. That is crazy. :( I guess that is not you in your profile picture. The person there looks young. Thank you very much for your support. 🙏
  48. Kam75

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Hi @object16, thank you for giving credence to what I said previously. I am sorry to hear about your difficult situation. My case is particularly catastrophic. Believe it or not, I suffered the sound trauma, which gave me four new disabling tinnitus symptoms and hyperacusis, at a music festival...
  49. Kam75

    My psychiatrist urges me to try an SSRI antidepressant such as Venlafaxine, but I've read on...

    My psychiatrist urges me to try an SSRI antidepressant such as Venlafaxine, but I've read on Tinnitus Talk that these types of antidepressant can worsen tinnitus. I don't know what to do, but I can't continue with sleepless nights. What about you?
  50. Kam75

    Hi @Marcello, I come with news. I did manage to lower Mirtazapine again to 22.5 mg, but I still...

    Hi @Marcello, I come with news. I did manage to lower Mirtazapine again to 22.5 mg, but I still can't get a decent sleep even with 50 mg of Quetiapine and 2 mg of Melatonine. This night I took these three medications and woke up every 15 minutes as my tinnitus is so loud. I can't even go to work...
  51. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @delta784, yes, I know about your story. I have read it. You are very unlucky as well. But why do you say that people on this forum caused this? Do you mean that someone on Tinnitus Talk advised you to take this medication and you followed that advice without any medical guidance? As for...
  52. Kam75

    Hi Joeseph Stope! To be honest, I'm not exactly sure what following someone on Tinnitus Talk...

    Hi Joeseph Stope! To be honest, I'm not exactly sure what following someone on Tinnitus Talk means in practical terms either 😅 I think it's just a way of quickly finding a forumer you've had an interesting interaction with. I also appreciated what you've said in Tom Cnyc thread that's why I...
  53. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @L along the way, thank you so much for taking the time to write to me. I've never heard of Kratom, but after a brief search, I see that it's banned in France, which is probably why I've never heard of it. And I completely understand what you mean when you say that people don't understand...
  54. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Thank you for your support @MindOverMatter. What does your therapy involve, if I may ask? CBT?
  55. Kam75

    Psychiatrist with Tinnitus: My Goal Is to Try TMS or the Susan Shore Device

    Hi @virginiadoc, sorry to hear that you are suffering. I have also been dealing with disabling tinnitus (at least five sounds) and hyperacusis for six years, which prevent me from living fully and sleeping well. Like you, I am eagerly waiting for Susan Shore’s device. However, do not forget...
  56. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    I am so sorry for you also, @vilebubbles, but nine months is not that long, if I may say so. You might recover a little in a couple of years if you protect your ears from noise and ototoxic medications. I can confirm that this terrible condition can improve, but not without a lot of sacrifices...
  57. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi all, I have been a regular on Tinnitus Talk since 2019, but I feel the need to share my tinnitus history as my emotional state is currently at its lowest. I will try to be as concise as possible so as not to make it too boring to read. The first time I had tinnitus was in 2012. I was 21...
  58. Kam75

    First Major Spike After Six Years — Hoping for Improvement

    I have been suffering from extremely debilitating tinnitus for six years, following a music festival where I was wearing custom-made hearing protection (minus 25 dB). Two years ago, I started to sleep better, so I decided to resume a social life and began going to parties again (with...
  59. Kam75

    NeuroVR Device: Neurofeedback to Treat Tinnitus

    Two days ago, I came across this speech by Dr. Alain Londero, whom I mentioned earlier, at a hearing aid professionals’ conference in 2024 (the speech is in French). He confirms what I said earlier in this thread: even though virtual reality has been beneficial to a certain extent for a few...
  60. Kam75

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Hi @Tom Cnyc, I beg your pardon. My intention was not to take away from your success story when I shared mine. I only wanted to warn others so that they do not end up in the same situation as me. I can confirm that it is extremely important to be careful after experiencing sound trauma, as...