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You’re looking at it from the wrong angle. Tinnitus, a bad knee, slipped back disc, all are just a percentage the VA must pay out to a Veteran who signed a contract to enlist and allow the government to own their body. In return anything that is worn down or broken gets compensated and...

I agree.

Tinnitus setting in the brain is BS. I had had tinnitus for 5 years. I got a cochlear implant and my tinnitus is much better as a result. It takes time for the brain to adjust but it filters and adjusts to hearing sound again.

My tinnitus was doing well with CROS hearing aids, but I couldn’t hear over my tinnitus with my good ear. I have no hyperacusis except for a couple times at night. Yes, I occasionally take the implant off for a day and it’s too much; I have to put it back on.

For single-sided deafness, with one great ear, it is robotic, but close enough with certain frequencies. It will never be full original hearing but it definitely fills gaps since after surgery you’re most likely fully deaf. It does work for sure.

In my case a team of audiologists and a surgeon determined it by case of severeness and word discrimination, including how it affects your quality of life. I had a hard time hearing with my good ear over the tinnitus etc. It’s a tough decision but I had nothing to lose. When not using my...

These are excellent points.

Because 65 dB is extremely loud. The same as my shower fan. I measured my own tinnitus to it and it matched. So at 50 dB his is still loud.

A cochlear implant is considered for the patient when a hearing aid is no longer of value. If a hearing aid is useless and word recognition is very poor, you either stay deaf or choose to get a cochlear implant. Without restorative advances in medicine, there just aren't many choices.

Other doctors say tinnitus will be reduced by 75% due to a cochlear implant, and yes the hearing may be different or may become close to normal like before after a year. It’s all up in the air. @Gb3, you can get a cochlear implant with single-sided deafness with moderate to severe hearing loss...

"Dr. Santosh Kesari of the Saint John's Cancer Institute in the U.S., who had conducted clinical trials to treat recurrent glioblastoma of HLB Therapeutics, suggested its possible efficacy in tinnitus." Or does he? Maybe he has jars of it. Either way people will have to reach out to him.

How are people going to get access to the drug without contacting the doctor who has it?

If you have hearing loss on that side and tinnitus that bothers you enough; it wouldn’t be a question. You would already be ready in the parking lot for the shot. The choice is yours and the trial team alone.

They saw effectiveness in the first trial; that’s why they are on the second.

After exercise (increased blood flow) my tinnitus is worse. After coffee (decreased blood flow) my tinnitus is worse for hours. Not sure I believe any of this, but if they have an answer, more power to them.

Neuromod claimed Lenire cured 1 patient that had no hearing loss. If the other 2 people who these devices cured had no hearing loss, that may say something about neuromodulation.

Did those 2 people have hearing loss as well?

They get rich by selling their stock high through hype, getting money even though the drug doesn't work. Not a bad gig. Produce no cure, still get money. I’m not so wickedly dumb; when I lived in Boston’s north end; to see how arrogant some New England residents are, believing they’re...

Then we'll see how many on Tinnitus Talk enter when the time comes. Since everyone on here has tinnitus, one person will have good results, correct? They've had some trials already, someone had to have gotten the drug, even the one which was botched while the company sold stock and made money.

This means barely anyone will qualify to enter, and the stock talk will start again, as the rich get richer.

Hough Ear Institute: Bringing Back Silence

You may be completely right.

There should be an update on this tech considering people have donated and put valuable time into it. There are students who have worked on this, and it’s been over 20 years now. Somatic patients are the only ones in trial, due to what is the outdated system of honing in on isolated data, 2...

I’d rather have silence than constant sound if it was up to me. For people who have severe and profound hearing loss, it would take a drug or any miracle to reverse the hearing loss to gain sound. I see a tinnitus cure coming before hearing restoration. In the end I’d take any fix, let me know...

OK. I was in their trial booth at two different locations for two different trials. The fewer words you said, the less your chance of getting in was. It’s official, nobody knows what’s going on unless they took the drug, and since there’s no reports it improves tinnitu,s it’s a complete waste to...

While you're in the booth, they purposely do not reveal how many words you need to enter the trial. You don't know if it's 1 or 50. How are you faking that to get in? Patients were not aware which ear was going to be treated: I'm deaf in one ear, what ear do I think I'm going to get the shot...

That’s an excellent example, but let me demonstrate why I complain about this criteria to get accepted into the trial. To enter the trial, you needed 4 or 8 words out of 20 or 30. This is a different scenario. You can’t fake the words unless you get extremely lucky. You have to repeat the word...

Wait, what? Some people got tinnitus after having the shot? I didn’t see that in the report.

I’ve been following this drug more than the others; please keep me updated, good luck.

Everybody with tinnitus should be in this trial. That’s my opinion.

If you have been on Tinnitus Talk even for a little while, you know that there is absolutely nothing that is on time. Some say Dr. Shore's device works, yet delays are in years --- not months --- for this.

I have been exposed to another account of a single-sided deaf person getting a cochlear implant and it totally eliminating their 15 year 24/7 tinnitus. Electrical current and sound definitely has potential to do something, until a drug can open a channel or repair connections etc. This method...

Why would they kick anyone out of the trial for having formal musical training?

Correct, and it seems we always end up knowing nothing since all groups and variations are never allowed in a trial. I relish that day when someone says come everyone with tinnitus, put these headphones on and let’s see if this works for 6 weeks. Otolith Labs is the only one who has done this...

They recruited a particular kind of tinnitus sufferer for their study: those who can temporarily alter their symptoms if they clench their jaws, stick out their tongues, or turn or flex their necks. These maneuvers, Shore says, appear to be self-discovered ways of changing the activity of...

No, that’s just her trial criteria. She is unsure if it works for everyone but she does it’s the same fusiform cells, whether it’s from either ailment. The problem comes from the same place in the brain.

What if those with tinnitus were the only ones able to benefit from their synapse drug solution? I guess we’ll never know with their restrictive trial criteria?

They are creating so many electronic devices because in single-sided deafness it is becoming apparent that a cochlear implant is helping patients.

According to Otonomy, OTO-313 is not useless for tinnitus. FX-322 hasn’t shown anything for tinnitus.

How’s that working out for tinnitus?

Just an update. I completed the screening for the trial. I was not accepted due to being on medication for depression and anxiety. The medications could affect the fMRI results. I also learned why they take right-handed people over left-handed people. Exclusion criteria: pharmaceuticals...

I don’t think one phone call before they even started the clinical trial is wasting their time. I also don’t think telling them that there are plenty of people out there who would enroll in the trial if they extended their tinnitus duration criterion is a waste either. What is a waste is for...

Well you won the battle, I was blocked from being a part of the trial due to the duration of my tinnitus. What’s that going to accomplish? Absolutely no results and no knowledge if OTO-313 works or not?

Really, so all the criteria they list on the website are 100% accurate, they don’t have any other criteria beyond what’s written? How many trials have you and @Tezcatlipoca been in? Keep in mind people are entering the trial willingly, knowing they might just get a needle in their ear for...

Any details on the criteria? How many days did it take after the fax? Although I’m sure some locations have a different speed as well.

Otonomy now has 8 sites on the ClinicalTrials.gov page.

It doesn't matter, you're not getting it. Be honest and the location will let you know if they want to see you at an appointment. But on the other hand, you can never stop people from being dishonest. That can happen even if they meet the inclusion criteria. This is why it makes no sense to...

Dishonest about what? What’s the timeframe they’re measuring exactly? I hear my tinnitus. I’ll be honest and tell you if I don’t hear it.

No, you don’t get it. It’s hard to tell anything to someone who thinks they know everything. I’ve stood in the trial ENT building in Carolina. It took months for anyone to qualify for FX-322 and their parameters, that’s why they were late but yet they have the power to approve or disapprove...

I have unilateral tinnitus. @Mentos, it’s your ears, your brain and your choice alone, don’t let anybody on here dictate your decision. These companies don’t know everything. If they did, there would be a cure. Who is to say a 12-month time period isn’t a bad parameter on their part, maybe...

Wrong, it takes about 1 to 2 hours to go through, even if they have a hearing test. They reach back to the company and in a couple of days you’ll have yay or nay. There isn’t an army of people smacking the glass door every day, but it would be great if there was.

No one said to lie. Everyone should attempt to get into the trial.

These trials are always vague or confusing in the literature; even on the Clinical Trials page at times. If you meet all of the inclusion criteria, they can still reject you from entering the trial and not tell you why. What they can’t do is force people to get to the clinic and take action...

You should absolutely enter this trial. Whether you've had tinnitus for 4 months or 40 years, if the drug works, it works. Frequency Therapeutics never reported FX-322 did anything for tinnitus, while Otonomy has stated so. No one knows how well it's going to work yet, that's why they need...

A lot of stock talk on here. I’ll buy the stock when someone comes out of the trial and says it cured their tinnitus and hearing loss.

The trial can be faked if you memorize the words from the first batch to the second and they’re the same. I couldn’t tell you though if they were the same since I couldn’t decipher.

Like I said, why isn’t there more hype on OTO-313 tinnitus results? At least they posted something positive even if it’s in early stages. I’ll be following that thread for the upcoming trial info.

I have hope. I just wish they could pinpoint why some with hearing loss have no tinnitus, and some do. That seems like the correct path. I wish teams like the Bionics Institute who hopefully keep running these tests would team up with Frequency Therapeutics and Otonomy and roundtable some...

I do understand now why they use these limiting factors. Since I only got 3 or 4 WR correct and I believe I needed 8 to move on, my worry was the drug would be useless due to lack of supporting cells and they know it. I’m used to being deaf in that ear, tinnitus cure is my main goal.

Severe range.