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What makes it frustrating is that I can expose to sounds no problem, and then a few hours after...
What makes it frustrating is that I can expose to sounds no problem, and then a few hours after or even in the morning I'll know if it was too much and if I'll spike or have a hyperacusis warning. Makes it SUPER hard to know how and when exposure is successful- Nes
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I've talked to my psychiatrist. What i'm going to do is take clonazepam a bit more frequently...
I've talked to my psychiatrist. What i'm going to do is take clonazepam a bit more frequently for 1 month (0.25mg or 0.5mg every 3-4 days for a month). Since it works well on my tinnitus and hyperacusis, he suspects that clonazepam might calm my nerves enough to allow me to wean off protections...- Nes
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@delta784 loudness and pain if I expose too much to sounds (I get fullness, nausea, headache...
@delta784 loudness and pain if I expose too much to sounds (I get fullness, nausea, headache, sore and dull pain in the ears)- Nes
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Yesterday was a great day I had almost 0 pain and tinnitus was very low. I over did with digital...
Yesterday was a great day I had almost 0 pain and tinnitus was very low. I over did with digital audio it and today it's spiking badly. I am genuinely fed up with this, my life felt so normal and great yesterday, just for it to be bad again the next day. I don't care if the tinnitus gets worse...- Nes
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That's it I'm fed up with hyperacusis. Tomorrow I'll ask my psychiatrist to put me on Clomipramine.
That's it I'm fed up with hyperacusis. Tomorrow I'll ask my psychiatrist to put me on Clomipramine.- Nes
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@in_the_shadows the setback subsided ! It was very unstable for 2 weeks, almost 3. I shielded...
@in_the_shadows the setback subsided ! It was very unstable for 2 weeks, almost 3. I shielded myself from sounds and took clonazepam. I believe the clonazepam nuked the crisis because I took one on last Thursday and a few hours after the spike was gone and has been gone for a week. Unfortunately...- Nes
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I'm having a huge spike. My hyperacusis has been insanely sensitive, to the point I have nausea...
I'm having a huge spike. My hyperacusis has been insanely sensitive, to the point I have nausea when exposed to sounds. My ears feel weird, it's painful but at the same time it's not. I'm not sure if I removed protections too quickly as it happened the night after a discord call. Going to see...- Nes
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@in_the_shadows oh I know about RonnieSpector, thanks for reminding me ! Yeah the spike has been...
@in_the_shadows oh I know about RonnieSpector, thanks for reminding me ! Yeah the spike has been hard on me, it's my first one in 8 months. It's already getting a bit better after 3days though, and I have my emergency clonazepam which helps tremendously. Trying to stay as calm as possible...- Nes
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Struggling Between Protection and Exposure: Finding Balance After Overprotecting from Tinnitus and Hyperacusis
Thanks a lot for your answer, it is really informative and it matches what I am currently experiencing. I am dealing with hearing fatigue and a setback in my hyperacusis, most likely from being on calls with my friends too much and from not sleeping correctly. So I am back to protecting and... -
Hi! It's so nice to hear from someone with a similar experience! Yeah, my tinnitus is very...
Hi! It's so nice to hear from someone with a similar experience! Yeah, my tinnitus is very unpredictable too, as well as my hyperacusis. Lately, I was doing great. I even went to a friend's house and wore just loop earplugs and nothing happened. For me, my reactive tinnitus got better, but the...- Nes
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Struggling Between Protection and Exposure: Finding Balance After Overprotecting from Tinnitus and Hyperacusis
As some of you might know, I’ve had tinnitus for a year and a half now, and I’ve been overprotecting for at least a year. At first, wearing hearing protection most of the time really helped me, and my tinnitus improved a lot. But now I feel like I should start removing them gradually. I miss not... -
Is Hitting Earmuff Cups Dangerous to Hearing/Tinnitus?
This happens to me all the time. My tinnitus has never gotten worse because of it. Rarely, I experience some brief tinnitus, but that might happen only once or twice a year, even though I bump my earmuffs daily. -
In one month I made great progress! I'm able to go out with just my ear muffs, and not double...
In one month I made great progress! I'm able to go out with just my ear muffs, and not double protection, again. Most every day noises are tolerable again. It's still not great, but it's progress. My tinnitus however is still pretty reactive and can get VERY loud after just simple conversations...- Nes
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SAGE Therapeutics — CNS Disorders
5 to 10 years IF things go well, of course, because it might also never happen 😉 Apparently it is. Although, given the very small number of participants, it might be considered an early Phase 2 or Phase 2a.- Nes
- Post #62
- Forum: Research News
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Tinnitus Gets Worse When Trying to Nap/Sleep
It depends. Usually, it does not change much. If I take a full nap cycle of about one to one and a half hours, it quiets down. If I nap for 40 minutes to an hour, there is no change. If I nap for less than that, it does get worse temporarily, but I avoid such short naps because I feel too tired... -
Tinnitus Gets Worse When Trying to Nap/Sleep
I’m the exact opposite. My tinnitus is very quiet when I wake up, but it gets louder as the day goes on. -
SAGE Therapeutics — CNS Disorders
It might mean that, although more trials will certainly be needed. Ten participants with one adverse effect is not very strong evidence. More importantly, it opens the door for further research in two areas: The involvement of the GABA pathway in tinnitus The development of neurosteroids as...- Nes
- Post #59
- Forum: Research News
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SAGE Therapeutics — CNS Disorders
I’m looking forward to the publication, and that seems like good news!- Nes
- Post #57
- Forum: Research News
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@delta784 not really, mine is more localized in my ears directly (both ear are drastically...
@delta784 not really, mine is more localized in my ears directly (both ear are drastically different)- Nes
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In need of a bit of advice : I'm weening off hearing protection at home, my hyperacusis is...
In need of a bit of advice : I'm weening off hearing protection at home, my hyperacusis is really settling down, but my tinnitus is getting worse. It gets so loud by just having simple conversations although it does not hurt my ears- Nes
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Hello! I think the last time I took clonazepam was when I was hospitalized in June and couldn't...
Hello! I think the last time I took clonazepam was when I was hospitalized in June and couldn't sleep because I had bad tachycardia. Otherwise no, I don't really need it lately. But I keep pills in my bedside table just in case- Nes
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Seven Months with Sound-Induced Tinnitus: Is Anyone Seeing Improvements or Finding Hope?
Yeah, I get it. I had that a lot too. Now I’ve accepted that it’s not going away, so I might as well live my life again. It’s hard to say because my tinnitus is not constant. I have five or six different tones, and they all come and go. The volume also changes, sometimes it’s very loud, and... -
Ear Pressure and Pain After a Restroom Hand Dryer and Child Screaming
I know you’ve had this condition for a while, and that you know yourself better than anyone. But is there even the slightest chance that the radiating pain comes from clenching your jaw due to the stress that sounds cause?- Nes
- Post #40
- Forum: Hyperacusis and Ear Pain
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Seven Months with Sound-Induced Tinnitus: Is Anyone Seeing Improvements or Finding Hope?
I got tinnitus about 1.5 years ago, and I started seeing the first signs of improvement after beginning Clonazepam, following 10 months of pure hell with loud tinnitus. Now, at 1.5 years, I still have it, but I have a lot of hope for the future, and it doesn’t bother me nearly as much anymore. I... -
Actually, my hyperacusis is almost completely gone today. It makes no sense, I'm running on 2h...
Actually, my hyperacusis is almost completely gone today. It makes no sense, I'm running on 2h of sleep- Nes
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My tinnitus is often lower when I'm exhausted. That's a good news because tinnitus is exhausting lol
My tinnitus is often lower when I'm exhausted. That's a good news because tinnitus is exhausting lol- Nes
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Is Your Tinnitus Quieter First Thing in the Morning?
Mine is often louder when I wake up, then it calms down within ten minutes to an hour after waking. If I wake up in the middle of the night, it can be extremely loud. I have TMJD, so that’s probably the reason why. -
My Hearing Has Slightly Improved Since 2019
I have the same thing, and for me, I attribute it to a general lack of auditory input since I overprotect a lot. The more I panic about it, the more the sounds stick in my head. If you can, try to distract yourself from it, or gradually introduce a bit more background noise around you and see if...- Nes
- Post #13
- Forum: Success Stories
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@Kam75 i took the opposite approach and overprotected until it went down (my H is accompanied by...
@Kam75 i took the opposite approach and overprotected until it went down (my H is accompanied by nerve pain and my tinnitus is reactive). Sorry about your situation!- Nes
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Also, quick update: my hyperacusis has gone down to the point I feel comfortable listening to...
Also, quick update: my hyperacusis has gone down to the point I feel comfortable listening to cars passing outside again. Spikes are very short-lived now, at most 3 days compared to the 2 months it used to take. I sleep so much better and it helps a lot- Nes
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Today I saw a great ENT who told me that recovering from hyperacusis is like recovering from...
Today I saw a great ENT who told me that recovering from hyperacusis is like recovering from surgery. It takes time, and everyone is different. He told me I was right to protect, that I should continue to do so until I feel comfortable moving to the next step. When I mentioned that other ENT...- Nes
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Right-Sided Low-Frequency Tinnitus: Suspected Vascular or Somatic Origin with Vacation-Linked Relief
When I wake up, my jaw feels tight. Because of that, it was pretty easy for me to recognize that I have TMJ. In addition to that, I experience jaw pain, limited mouth opening, hyperacusis, ear pain, and jaw spasms where my mouth suddenly opens—those are very painful. For now, I try to relieve... -
Struggling with a New Tinnitus Tone After Noise Exposure: Can It Get Better Two Months Later?
Hello, I do not take it regularly. I only use it during very difficult periods, and I usually take 0.25 to 0.5 mg every three days, one to three hours before sleeping. I have never taken it for more than two weeks. -
Big progress in june 2025 ! Tinnitus stabilizing, hyperacusis softening a bit, shorter spikes :)
Big progress in june 2025 ! Tinnitus stabilizing, hyperacusis softening a bit, shorter spikes :)- Nes
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Pulsatile Tinnitus with One-Sided Throat Pain When Swallowing — Anyone Experienced This?
Do you have acid reflux? I know acid reflux gives me pulsatile tinnitus, and it used to give me a sore throat.- Nes
- Post #3
- Forum: Pulsatile Tinnitus
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Struggling with a New Tinnitus Tone After Noise Exposure: Can It Get Better Two Months Later?
Hello, my longest spike lasted for three to four months. I got it after going to a restaurant. During those three months, my tinnitus was extremely loud and constantly changing. I thought it was going to be permanent, but after three months, and after starting Clonazepam, it finally went down... -
Desperate for Help with Severe Reactive Tinnitus and Life Impact
Hello, my tinnitus is almost the same as yours. In my case, I have found that it is best to expose yourself to sound only when you feel safe or when you are having a better day. Do it slowly and very gradually. Every worsening I experienced—some temporary, some more long-lasting—happened because... -
I'm getting weird headaches/tinnitus flare ups in the early morning. It's like my head is...
I'm getting weird headaches/tinnitus flare ups in the early morning. It's like my head is pulsating with sound. Hyperacusis has been flaring up too after a noisy day, although it's getting better by day 3- Nes
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Informed Consent: Say NO to an Acoustic Reflex Test
She was genuinely obnoxious. She even recommended that I read a book about “the Judeo-Christian guilt.” While I was explaining my symptoms, she kept contradicting me or repeating them back incorrectly. When I corrected her, she got upset and said, “You really don’t want to be wrong, do you?”... -
Informed Consent: Say NO to an Acoustic Reflex Test
Be prepared for the ENT to possibly get angry too. I recently refused all tests during an ENT appointment because the doctor would not tell me what tests she planned to do, and she refused to avoid using loud ones. She basically told me that if I had tinnitus, it was my own fault for refusing to... -
Tomatis Method for Hyperacusis Despite Tinnitus Concerns: Headphone Use Required
I have autism and some auditory processing difficulties. I also have hyperacusis and tinnitus. Let me clarify that hyperacusis and auditory processing disorder are very different conditions. Auditory processing disorder is not physically uncomfortable or painful, unlike hyperacusis. Anyone who... -
Right-Sided Low-Frequency Tinnitus: Suspected Vascular or Somatic Origin with Vacation-Linked Relief
Hello @daniel12345, do you have any TMJ disorder? I ask because I have the exact same symptoms, and I’m quite sure mine comes from my jaw. I have a hum in my right ear, sometimes accompanied by the feeling and sound of my own heartbeat. When I clench my jaw a lot, the sound becomes very loud... -
Cyclical Low-Frequency Tinnitus + Hyperacusis After Viral Infections — Anyone Else?
Exactly the same for me! It can also mimic external noises, and it is sometimes accompanied by pulsatile tinnitus. The louder it gets, the more I experience the pulsatile component. I would say mine is around 500 to 800 Hz, although it is a bit hard to pinpoint, as it feels more like a...- Nes
- Post #10
- Forum: Introduce Yourself
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I also think I'm starting to develop an outer ear infection because of the constant protection...
I also think I'm starting to develop an outer ear infection because of the constant protection. Good thing I'm already under antibiotics but it's stressing me out- Nes
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Penicilins do not affect my tinnitus at all but ppi like pentoprazol do. Good to know !
Penicilins do not affect my tinnitus at all but ppi like pentoprazol do. Good to know !- Nes
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Hopefully last night in the hospital. I can't wait to go back home and sleep in my bed with my cat
Hopefully last night in the hospital. I can't wait to go back home and sleep in my bed with my cat- Nes
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@tobyharrixon fortunately I can. I wore them for almost 48 hours straight though so my ears are...
@tobyharrixon fortunately I can. I wore them for almost 48 hours straight though so my ears are getting sore... But today was a quiet day, I did fine with just ear defenders- Nes
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@kingsfan @Watasha thanks for the reinsurance ! I'm on my 6th iv bag so far and 0 change :)
@kingsfan @Watasha thanks for the reinsurance ! I'm on my 6th iv bag so far and 0 change :)- Nes
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Everything was going OK at the hospital until I was put in a room with someone hooked to various...
Everything was going OK at the hospital until I was put in a room with someone hooked to various extremely loud beeping machines. I got blasted with high pitched pure tones and my tinnitus is not liking that- Nes
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Currently hospitalised because I have air around my heart. They have to put me on penicilin and...
Currently hospitalised because I have air around my heart. They have to put me on penicilin and I'm SCARED. No choice if I don't want to die though- Nes
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Cyclical Low-Frequency Tinnitus + Hyperacusis After Viral Infections — Anyone Else?
I don’t know if it’s exactly the same, but I also experience a cyclic low tone in my right ear only. I would describe it as sounding like Morse code, but more similar to pipe noises. For me, it often turns into a constant hum by the end of the day or at night. It usually takes a few weeks or...- Nes
- Post #7
- Forum: Introduce Yourself
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New University of Michigan Tinnitus Discovery — Signal Timing
So, if I understand correctly, they have not yet obtained FDA clearance, but they have begun the process to apply for it?- Nes
- Post #6,810
- Forum: Research News
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False alarm, it's gone after a good night of sleep!
False alarm, it's gone after a good night of sleep!- Nes
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Has Anybody Recovered from a Tinnitus Spike Caused by Pure Tone Exposure?
I still use TikTok. Tinnitus is not going to take away another thing I enjoy. However, I only use it without sound unless I am certain the video does not contain any strange or potentially triggering sounds. I am not too concerned about videos where people are just talking, or content from... -
Tinnitus Reactivity Triggered by Specific Beep Sounds and Sirens — Advice on Exposure vs. Protection?
I’m aware that any kind of healing will probably take years, but I’m confused about what the safest route is in the meantime. The problem is that this reactivity is only getting worse, and it started fairly recently. It began in my left ear three months ago after I listened to a “soothing music”... -
I accidentally listened to the coil whine on my monitor while looking for the source of some...
I accidentally listened to the coil whine on my monitor while looking for the source of some noise I was hearing and now I have this awful new tinnitus sound. It's been 24h. Scared I gave myself a new permanent sound...- Nes
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Has Anybody Recovered from a Tinnitus Spike Caused by Pure Tone Exposure?
It happened to me. I was searching for a friend’s username on TikTok, and the first result was one of those pure frequency tracks that are supposed to “heal your soul and chakra” or something like that. This caused a new sound in the ear that was exposed, which lasted for three days. It... -
Tinnitus Reactivity Triggered by Specific Beep Sounds and Sirens — Advice on Exposure vs. Protection?
Hello everyone, As some of you might have read, I’m doing much better lately. My tinnitus is more stable, my spikes are shorter, and my hyperacusis is improving. However, there is one very specific sound that makes my tinnitus go haywire, and I can’t avoid it. The sound is just a beep, but not... -
Six Years Later: My Journey Through Tinnitus and Hyperacusis Recovery
I’m following the same path. I’m 15 months in, and my hyperacusis has started to improve as well. Just last month, even my cat’s purring felt too loud, but now I can listen to outside noises like cars without feeling the need to use protection. My tinnitus has also become much more stable...- Nes
- Post #8
- Forum: Success Stories
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A Year Later, I Don't Know What My Tinnitus Baseline Is
Hello, Yes, I have! I already know that my posture is directly responsible for my transient tinnitus episodes, so I’ve been working extensively on it. I bought a desk chair with upper back support and armrests, and I actively try not to slouch. I also noticed that all pillows hurt my neck...