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  • Users: Tim
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  1. T

    AdventHealth Research Institute Offers Phase II Clinical Trial of Etanercept for Treatment of Blast-Induced Tinnitus

    I had a call with Dr. Seidman to connect and hear about the early results from his study. Instead, he gave me a current status update: they are facing major problems recruiting patients. This is not because of serious side effects, but rather because they are not entirely sure why participation...
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    Elon Musk’s Neuralink Looking to Treat Tinnitus

    Neuralink explained their plan for the next three years during their last update. And yes, they actually mentioned tinnitus. It’s Elon Musk, so of course he makes big promises. And yes, the technology is expensive and invasive, but it is gaining more attention, and the approach itself is truly...
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    Columbia University Microneedle

    In my eyes, this is a game changer. Just imagine what we can do now. The phrase “the inner ear is a black box” no longer applies. This is incredible new information. I’m not well-informed about gene therapy, but with this development, it should be possible to regenerate the inner ear—or at the...
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    Introducing Tinnitus Quest

    I woke up today with that spike again. It has been tormenting me for days. No sleep. No peace. Just this constant noise, screaming in my head while the world remains silent. And what do we do when this happens? We search. Again. Despite everything we have already learned. We scroll through...
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    Introducing Tinnitus Quest

    Hey @Brave Zebra, Thank you for sharing! Feel free to check out our website and get to know our team. We are fortunate to already have amazing people like Dr. Sedley on board. As you can see, we are working very hard and have many excellent researchers involved. But we are still growing, and...
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    Introducing Tinnitus Quest

    Hey @Scruffiey, it looks like you are very motivated to help us, which I think is great. Would you like to talk more via e-mail? If so, you can contact me under tim@tinnitusquest.com :) That’s brilliant! Every dollar makes a difference. I hope we can make one final push. Together, we are many...
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    Introducing Tinnitus Quest

    For those interested in getting involved in Tinnitus Quest, we would first like to say that we appreciate any and all support. At the moment, we are aiming to build a stronger presence in the UK and France. If you have any knowledge of these markets, whether through communities, organizations...
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    Introducing Tinnitus Quest

    @SafeMusicFan and @Nocca, hello, both of you. Yes, you’re right about the language barrier. We have a general, detailed flyer that explains our vision, working methods, and plans. I would like to translate it into as many languages as possible. Currently, we have translations in English...
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    Introducing Tinnitus Quest

    Yes, but I hope that in 5-10 years, we find a solution for everyone, not just an 80% reduction of suffering for 80% of sufferers. In that regard, Dr. Djallilian was the most optimistic. However, I think Dr. De Ridder is the best at self-marketing. He's great at explaining things and has a...
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    Introducing Tinnitus Quest

    Hey, I came across an organization called Tinnitus Free on Instagram. I only checked it out for about two minutes, but I noticed that Dr. Dirk De Ridder is also involved. Is it possible for Tinnitus Quest to form an alliance with this organization?
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    Introducing Tinnitus Quest

    First of all, I want to make it clear that this is not meant to be personally negative toward you. However, I must admit, I feel a bit disappointed. After frequently reading about wealthy and well-known individuals, particularly those featured in videos, I had the impression that raising...
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    Introducing Tinnitus Quest

    Hey Hazel, That sounds great! I can imagine it's a lot of effort and hard work, but it's also fantastic that there's so much interest. Hopefully, you'll have a few more helping hands on the team in the future. :) Thanks again, and much respect to you and the team. I look forward to hearing...
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    NeuroMed Tinnitus Program — Founded by Dr. Hamid Djalilian

    I would like to try the NeuroMed Tinnitus Protocol without the medications. Could you provide the exact dosages for the following supplements? Magnesium Vitamin D Melatonin Vitamin B2 Are there any other supplements? I took cortisone for two weeks, and I felt better only when I reduced it...
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    Introducing Tinnitus Quest

    Hey Hazel :) I saw the first video on Instagram yesterday, along with the comments about contributing to the patient board. I had the same question. I signed up for Tinnitus Quest at the very beginning to express my interest in helping and shared my qualifications. However, I still don’t have a...
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    Introducing Tinnitus Quest

    I've now watched most of the Q&A, and I think it's good. Dr. Djalilian seems very convinced of the migraine therapy. Have any of you had any experience with it? I'm not sure if I understood it correctly, but he mentioned that bringing the implant to market would cost "100 million." Please...
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    Introducing Tinnitus Quest

    I couldn't take part. Will the recording be published later?
  17. T

    Hope that the question is here correct. Can you ask Dr Djadillian how his migraine therapy...

    Hope that the question is here correct. Can you ask Dr Djadillian how his migraine therapy works? And if he can give us some result of his study where we can see everything about the possible negative side effects and how good it worked? Thank you very much !!
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    Introducing Tinnitus Quest

    I've noticed that donating to Tinnitus Quest is now possible, including monthly donations. Personally, I prefer giving a small amount each month, as it feels more manageable. When we think about it, we already pay for so many things, like Netflix, Spotify, and other subscriptions. If everyone...
  19. T

    Electrical Stimulation of the Cochlea for Treatment of Chronic Disabling Tinnitus

    Nice! I see hope that a market-ready solution will exist by 2030. The approach seems similar to what Dr. Djalilian and the Mayo Clinic are doing, and the results have been consistently good to very good. Dr. Djalilian mentions that it works in 60-70% of cases, and it worked here as well...
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    Police Car Turned on the Siren Close to Me: Will This Make My Tinnitus Worse?

    I was outside when a police car approached and turned a corner without the siren on. Suddenly, it activated the siren very close to me—probably just 5 to 10 meters away. Startled, I quickly sprinted into a nearby snack bar. I had a decibel app running at the time, and as you can see from the...
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    Introducing Tinnitus Quest

    Yes, it's the same in Germany. If I understand correctly, they have developed the high-tech implant and are ready to begin testing it. I believe they have already conducted some tests. However, we need to speed up the process and increase transparency. Tinnitus Quest gives me so much hope for a...
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    Introducing Tinnitus Quest

    Hey @Hazel, When is the first Q&A with Dr. Djalilian? I found that in Germany, they are also working with implants and inner ear stimulation, but there’s very little information available. That’s a significant problem that I hope Tinnitus Quest can help address. The project started in 2017...
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    New University of Michigan Tinnitus Discovery — Signal Timing

    An honest question for you: What is your opinion? I think we will get other treatments before the Auricle. It's a shame what they're doing. Can you explain the regulatory process in general? What are the hurdles that we might not see at the moment? I come from Germany, the land of rules, and...
  24. T

    New University of Michigan Tinnitus Discovery — Signal Timing

    It would be nice to hear some news about the device.
  25. T

    Introducing Tinnitus Quest

    Yes, a good idea. We need to use every opportunity. We can also make flyers for the waiting rooms at doctors' offices. There are so many tinnitus patients who don't search online but who also want a cure. But it's expensive to make flyers. Maybe the money is better used for something else...
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    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    I think the results were positive. If it were negative, no private company would publish it so quickly.
  27. T

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    Why do you think that? If it works for Meniere's disease-related tinnitus, it could work for garden-variety tinnitus, too.
  28. T

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    They will test SPI-1005 for tinnitus next year.
  29. T

    Introducing Tinnitus Quest

    @Hazel, thank you very much for your work. I would like to help—with donations as well as work. I have exchanged ideas with Sven. Maybe we can exchange ideas, too. I wrote an email to Tinnitus Quest. I'm new to Tinnitus Talk and would like to support my/our healing through Tinnitus Quest. I...