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Kelvin - Sorry to hear that you have this. I've had it for 18 months and it has improved very slowly and inconsistently. The hardest part for me has been the constantly changing volume when I do hear it, it is very hard for me to ignore. Mine is much more intermittent and quieter in general...

Mine is similar to Owen. I started having tiny improvements a few weeks after onset, the improvements were more frequent early on, but I still notice small improvements now, just less frequent. By improvement I mean quieter or not hearing it at all. I also have a very rare type of tinnitus...

Where do you live? There are tinnitus clinics located at some universities, they don't advertise very well. I attended stage 1 at the university of Maryland.

I'm sorry you are still struggling with reactive T after so long. Reactive T was the worst part. They do make pillows with masking devices installed in them which may allow you to sleep in your right side. I think you should also look at "Mindfulness". Dr. Bruce Hubbard is in the doctors...

I am sorry you are going through this, changes in T can be tough. My T was reactive to noise in the beginning, it improved about 90% after 3 months and is about 95% better today. I would even get multiple additional sounds that weren't even present before being exposed to sound. I really...

I think that fluid in a person's ear could cause pulsatile tinnitus if it makes a connection between a capillary and the cochlea, or something along those lines. I also haven't heard of nasal inflammation causing it, but the nasal passages do connect to the ears. Having said that I think you...

A dentist could evaluate you for TMJ, it might be worth a shot. I don't know enough about it to say. There have been a bunch of discussions on this site about it. One test I do know of for checking the TMJ is to put your pinkies in each ear, then fully open and close your jaw. Your pinkies...

Sorry to hear you are experiencing T. I could write for an hour about your T but I'll keep it brief and to the point. ENTs are usually worthless when it comes to T, the diagnosis doesn't mean anything. An audiologist can provide a lot more data about your hearing, but no one can tell you...

I think you could get temporary PT if you have fluid in your ear that connects and transmits sound from a capillary to your cochlea. That would be the most likely scenario if your PT started with an ear infection. If the PT persists after the infection is gone, then maybe something else is...

This is my guess but I think the definition of PT is broad, if your T goes with your heart beat or blood flow then it is PT. I don't know if tonal PT is rare but I haven't heard from someone else having it. Classic PT is caused by turbulent blood flow near the ear, or blood flow that is too...

That's really tough. I would think they would have found it with all those tests if it was vascular. If you can feel the pulsing all the time then maybe it is something to do with blood pressure. I can feel slight pulsing and it gets louder only when I stand up quickly, bend over, or my...

I haven't. I've found a couple of places that do it and will ask my insurance company if they cover it, but I'm waiting to see if mine goes away on its own. One doctor that is seeing me is going to ask an acupuncturist about it. I will do it if it doesn't go away and bothers me. I think...

I'll answer as many questions as you want, it's no problem. I can usually suppress the pulsating sound completely by pushing on the right side of my jaw. If my T is aggravated then it's more likely to make it go steady instead of going away. There are also certain maneuvers I can do where...

DebinAustralia, I forgot to answer your question about residual inhibition (RI). I've experienced strange volume reductions in T, but I'm not sure if it is RI. A few months ago when I was suffering from "winding up" and "kindling" (T increases when exposed to noise), I could get the T to...

From the research report, typically people with this syndrome can both induce or inhibit the pulsating by moving the head, neck, or jaw. For me there are a few things I can do to induce in either ear, and a few things I can do to suppress it. It is dominant in my left ear, I have to go out...

I've done a bunch of research but I can't come up with anything that I think caused mine. My hearing is normal up to 8k, I haven't been tested above that. I think my hissing sound is below 8k, but I'm not sure. I don't have any pain or discomfort in my head, neck, or jaw. I occasionally get...

Mine isn't continuous. I can make it start by putting my head in certain positions, but in a neutral position sometimes it's there and sometimes it isn't. I haven't experienced the alternating beats, mine goes right with the heartbeat when it's there I believe I have the condition too, I just...

I initially thought it might be a problem with my neck, maybe a nerve or something. Yawning tends to temporarily increase mine more than anything, so I can't really isolate a specific area in the neck. Along with the pulsating hiss, I also had a 3 month period of noise sensitivity known as...

They are listing the most severe causes of tinnitus, and most rare, except for hearing loss causing higher pitched sounds. I guess if they say a blocked ETD could cause PT then maybe it could. I still don't see how since the ETD is normally closed anyway, until you yawn, swallow, or perform a...

A dentist did a check for TMJ but didn't see any problems. I don't have any symptoms of it either. Some doctors can listen around your ear with a stethoscope, maybe a doctor could listen near your ear while you do the maneuver that creates it. Fun times.

It is hard to understand, I'm sorry you are going through this. I think we are our own best doctors and that you will figure it out. I've been dealing with mine for 6 months and have spent a lot of time researching and trying to understand mine. I spent a lot of time researching somatic...

It's probably nothing serious, but very annoying. I think an open eustacian tube would cause your chewing and voice to be loud, probably some other things. I don't think it would cause you to hear your heartbeat.

I think you should see an ENT to check you out. If it is low frequency then you probably are hearing blood flow. If it goes away by putting your finger in your ear then somehow you might be disrupting the blood flow. Maybe something in your ear canal? Maybe a small capillary too close to...

The two possible causes that Dr. Levine lists are a) cardiac synchronous somatosensory activation of the central auditory pathway or (b) failure of the somatosensory-auditory central nervous system interactions to suppress cardiac somatosounds. For a) my guess for what is happening is that...

I don't recall neck pain, spasms, aching, etc. or the waxing and waning being mentioned in the research that Dr. Levine did. They actually say that it is relatively constant. Have doctors at MGH done additional research to change this? If not then it seems like they are trying to gravitate...

The vast majority of pulsatile tinnitus is benign and not life threatening. It is still a good idea to get the standard tests, MRA, CT scan of temporal bones, and ultrasound of carotid arteries to rule out anything serious. It could be vascular, there are a bunch of things that could cause...

I don't have any symptoms like that, if all of your symptoms started at the same time then it may be some underlying condition waiting to be found. Tinnitus is just a symptom, it wouldn't cause any of those. Have you seen a doctor? I would start with a regular doctor. I'm not sure about...

It's nice to know its there and they seemed to have good success. I think we are lucky to at least have a chance of making go away or get better. I want to know if there are any risks and talk to someone who does it. I keep looking around for more info about it, but I'm going to wait and...

I was able to get in touch with Dr. Robert Levine, the lead Dr. on the research, he sent me this PDF summarizing their efforts with this condition. His e-mail also had some links to Youtube videos, but I think they were more about general tinnitus. I can forward the e-mail if anyone wants...

I don't know what caused it, but I think I am hearing sensory nerves. It was a gradual onset starting early last December, the pulsating started about a week before Xmas. I am around loud noise a lot, but I always wear protection, my hearing test in February showed no worse than 15db loss...

I hope something can improve it for you, I have no idea how mine started, no pain or anything, no idea why it is getting better, I haven't taken anything for it. In addition to the pulsating hiss I also went through 3.5 months of being sensitive to noise and experiencing the winding up and...

I've been reading the research, trying to absorb it, it seems that they did have some success with auricular electro acupuncture, at least a decrease in sound. They list the 2 primary causes as 1) failure of the somatosensory-auditory CNS interactions to suppress cardiac somatosounds or 2)...

Thank you for telling me about that syndrome and article, I have researched countless hours in the past 4 months trying to figure out what I'm experiencing and that article is the first one that pretty much sums it up. Nothing else I've read was even close. I'm going to try and contact the...

Correct me Doc, I think it's really called "winding up" when relatively soft sounds over a period of time causes T to spike or "kindling" if louder sounds do. But I think kindling means the spike lasts for more than a day. I only use the term "reactive" because more people seem to use it.

Mark-I hope it gets better for you, it was very difficult to deal with. I didn't have the pain or tone shift, I can only imagine. I know everyone is different and has their own timeline, hopefully your timeline will end soon. I have two categories of sounds, the reactive part essentially...

I had the exact same thing, it ended up going away after 3 months but it was very difficult and somewhat debilitating. I would say it's 95% gone, maybe 100%, but I wouldn't know for sure unless I go to a night club or something. I don't know exactly what helped it but here is what I did. In...

I experienced a reduction in T numerous times early on while wearing ear plugs in a loud environment, the reduction would last about 30-60 minutes, I never exposed myself to dangerous sound though. The first time was when I went to the Beatles cirque du soleil show in Vegas, I wore ear plugs...

Random thought, have you ever been tested for Lyme disease? You have a lot of symptoms, and fibromyalgia has been incorrectly diagnosed at times. I know someone that didn't realize they had it for a long time. Lyme disease can cause hearing problems and tinnitus, I don't think it would...

I also agree about wanting something to be found. It sounds like yours is probably a more classical whooshing PT, mine is a pulsating hiss. When you get the ultrasound I would mention to the technician that the noise stops when you push on the veins, and which ear so they can spend extra time...

As a long term solution I've heard that mindfulness based stress reduction (MBSR) can help with anxiety.

Hopefully it will clear up when the virus goes away. I think it would be good to get the support of your wife somehow, I would be in much worse shape if my family didn't understand. Maybe she can read some of the posts on this site to see that your emotions towards T are normal. My wife...

I think Jefferson University in Philadelphia has a treatment program, I know the University of Maryland School of Medicine in Baltimore has a tinnitus treatment program. Sorry it's not very close.

Hi Karen, I hope yours continues to improve too. In the past 4 months I have had what I would call two categories of T. The first is the hissing, pulsating in my left ear, steady at times, fluctuating volume in my right ear based on foot steps ( sounds like I'm walking in snow). This first...

It was dr. Eisenman, it was a 30' appointment, he looked at my mra and ct scans and said that I didn't have any of the leading causes. He mentioned the angiogram but said it was intrusive and wouldn't recommend it for me. He said I should take a wait and see approach since mine is improving...

Mine is similar, I have a high pitched pulsating hiss that goes with my heartbeat. The pulsating has improved and is more intermittent and quieter than two months ago. The hissing gets louder or quieter in the left/right ear depending on where I push on my jaw, face or head. Extended...

Not doing any damage to your hearing is a must, I think the book answer is no more than 8 hours at 85db, but I would go with the 75-80 like ricky81 said. This is with ear plugs, so if it is 100db then 25 db ear plugs would do the trick. The other issue is what will the tinnitus do, and that is...

I had an MRA and I'm glad I wore ear plugs (foam). They offered a headset to play music but I'm glad I wore the plugs because it is loud and takes about 30'. No effect on my T.

My mother has an appointment in Tampa, FL in the next 2 weeks to enter the autifony study for age related hearing loss. This is probably a screening, but she seems to fit all there criteria so I hope she is entered into the program. She does seem to have difficulty hearing someone in a noisy...

I have a high pitched pulsating hiss in my left ear that gets louder when my blood pressure or heart rate spikes (yawning, climbing stairs, getting up quickly, etc., but not as many triggers as you have), it usually lasts for about 5 heartbeats. Mine also gets louder or quieter with head and...

Karen, Yes, my appointment is with Dr. Eisenman at the University of Maryland School of Medicine, I hope he can shed more light on my condition, although I'm doubting that mine is cardiovascular since it isn't 24/7, and has become more intermittent. I've thought about getting copies of my MRA...

Worker- I'm not a member of whooshers on Facebook, I've looked at the website a few times. For a while I thought I was in the pulsatile category, but I read dr Bruce hubbards story and he had a pulsating hiss, along with two loud steady tones. That made me think that maybe I'm more like...

Walking in snow is a good example of what mine sounds like sometimes, I thought my walking was causing small changes in blood flow in my body, including near my ear. I didn't notice movements affecting my T until about a month into it. I think 3 months is still early, I'm about 3 months...

Not to that extent, but my pulsating hissing changes volume a lot with head movement, yawning, standing up. Sometimes it changes volume when I walk. There are things that make mine better too, and it has gradually been getting better over the last 7 weeks, still a ways to go though. I can't...

They make hearing protection for gun ranges that allow low level sounds in, like talking, but block out sudden loud noises. A friend showed me his, I think they were MSA, they are an electronic headset. When I put them on I could hear ambient sounds and talking, but when he clapped his hands...

I agree with rube, a T treatment center could probably help the H with pink noise and T with TRT. A lot of medical schools have treatment programs, they just aren't advertised very well. Your well being is too important, hopefully it will get better on its own but know that it is treatable...

I have PT that changes volume with head and jaw movements, I can usually suppress it by putting my chin down, or pushing on my right jaw. I have a Skype session scheduled in 10 days with a Dr. In Brazil that treats somatic T. Hopefully she can recommend exercises. I think mine is more like...

My PT started a couple of months ago and changes volume a lot with head and jaw movements. It has gradually gotten quieter but still a ways to go, I went through anxiety, depression, all that stuff. Mine was never 24/7. Initially I thought it was something cardiovascular, all tests normal...